F2050-C21222
C21222
Quality of Life - Trouble concentrate past week scale
The scale representing how often the participant had trouble concentrating in the past 7 days, as part of Neuro-QOL Cognitive Function
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
F2053-C21328
C21328
Quality of Life - Movement low soft couch stand difficulty scale
The scale which represents the amount of difficulty the participant currently has in standing up from a low, soft couch, as part of Neuro-QOL Lower Extremity Function
Supplemental
Neuro-QOL Adult Bank - Lower Extremity Function
True
General (For all diseases)
General (For all diseases)
F2059-C20546
C20546
Quality of Life in Neurological Disorders (Neuro-Qol) - No energy fatigue asssessment past week scale
The scale representing how often the participant felt no energy in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)
Supplemental
Neuro-QOL Adult Bank - Fatigue
False
General (For all diseases)
General (For all diseases)
F2051-C21230
C21230
Quality of Life - Clear telephone speech difficulty scale
The scale which represents the amount of difficulty the participant currently has in speaking clearly enough to use the telephone, as part of Neuro-QOL Communication
Supplemental
Neuro-QOL Adult Bank - Communication
True
General (For all diseases)
General (For all diseases)
F2057-C21300
C21300
Quality of Life - Stigma illness blame recent assessment scale
The scale representing how often some people acted as though it was the participant's own fault they have this illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2049-C21192
C21192
Quality of Life - Normal routine disturbance nervousness past week scale
The scale representing how often the participant felt nervous when their normal routine was disturbed in the past 7 days, as part of Neuro-QOL Anxiety
Supplemental
Neuro-QOL Adult Bank - Anxiety
True
General (For all diseases)
General (For all diseases)
F1055-C18696
C18696
Imaging dimension other text
The free-text field related to 'Imaging dimension type' specifying other text. Type of imaging dimension used
Supplemental
Magnetic Resonance Imaging (MRI)
False
General (For all diseases)
General (For all diseases)
F2055-C20771
C20771
Patient-Reported Outcome Measurement Information System (PROMIS) - Errand performance ability satisfaction past week scale
The scale which represents how often the participant's satisfaction with his/her ability to run errands in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21167
C21167
Quality of Life - Hobby leisure activity limit complete past week scale
The scale representing how often the participant had to limit their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F0016-C58677
C58677
Gender identity type
Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth
Core
Demographics
False
General (For all diseases)
General (For all diseases)
F2055-C21271
C21271
Quality of Life - Family member activity level satisfaction past week scale
The scale which represents the extent to which the participant was satisfied with their current level of activity with family members in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21175
C21175
Quality of Life - Community activity ability complete past week scale
The scale representing how often the participant was able to do all of the community activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2054-C21252
C21252
Quality of Life - Satisfaction laugh humor recent assessment scale
The scale representing how often the participant could laugh and see the humor in situations lately, as part of Neuro-QOL Positive Affect and Well-Being
Supplemental
Neuro-QOL Adult Bank - Positive Affect and Well-Being
True
General (For all diseases)
General (For all diseases)
F0017-C18740
C18740
Off study intervention prematurely other text
The free-text field related to 'Off study intervention prematurely reason' specifying other text. Primary reason participant/subject discontinued study intervention before planned end of study
Supplemental
Study Discontinuation/Completion
False
General (For all diseases)
General (For all diseases)
F2055-C21279
C21279
Quality of Life - Work people disappointment self-assessment past week scale
The scale which represents the extent to which the participant felt that they were disappointing to other people at work in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21183
C21183
Quality of Life - Work everything ability past week scale
The scale representing how often the participant could do everything for work that they wanted do (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2054-C21260
C21260
Quality of Life - Satisfaction live life fully recent assessment scale
The scale representing how often the participant felt they were living life to the fullest lately, as part of Neuro-QOL Positive Affect and Well-Being
Supplemental
Neuro-QOL Adult Bank - Positive Affect and Well-Being
True
General (For all diseases)
General (For all diseases)
F1807-C58676
C58676
Birth sex assigned type
Self-reported phenotypic sex of participant/subject, assigned at birth
Core
General Core
False
General (For all diseases)
General (For all diseases)
F2055-C21287
C21287
Quality of Life - Work performance limitation bother past week scale
The scale which represents the extent to which the participant was bothered by limitations in performing their work in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21191
C21191
Quality of Life - Work shorter time period past week scale
The scale representing how often the participant had to do their work for shorter periods of time than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2055-C20745
C20745
Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity ability satisfaction past week scale
The scale which represents the extent of the participant's satisfaction with his/her ability to do leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21151
C21151
Quality of Life - Social commitment maintain past week scale
The scale representing how often the participant was able to keep up with their social commitments in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F1053-C18610
C18610
Imaging in plane resolution axis 2 measurement
Axis 2 of in-plane spatial resolution used in imaging acquisition
Supplemental
Diffusion Tensor Imaging (DTI)
False
General (For all diseases)
General (For all diseases)
F2056-C21292
C21292
Quality of Life - Middle night physical tension past week scale
The scale representing how often the participant felt physically tense during the middle of the night or early morning hours in the past 7 days, as part of Neuro-QOL Sleep Disturbance
Supplemental
Neuro-QOL Adult Bank - Sleep Disturbance
True
General (For all diseases)
General (For all diseases)
F2049-C20785
C20785
Quality of Life - Overwhelm worry assessment past week scale
The scale which represents how often the participant's worries overwhelmed him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety
Supplemental
Neuro-QOL Adult Bank - Anxiety
True
General (For all diseases)
General (For all diseases)