F2050-C21212
C21212
Quality of Life - Multitask difficulty past week scale
The scale representing how often the participant had difficulty doing more than one thing at a time in the past 7 days, as part of Neuro-QOL Cognitive Function
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
F2049-C21197
C21197
Quality of Life - Shyness assessment past week scale
The scale which represents how often the patient felt shy in the past 7 days, as part of Neuro-QOL Anxiety
Supplemental
Neuro-QOL Adult Bank - Anxiety
True
General (For all diseases)
General (For all diseases)
F2048-C21172
C21172
Quality of Life - Social activity outside home limit complete past week scale
The scale representing how often the participant had to limit activities outside of their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F0004-C18659
C18659
Unexpected adverse event indicator
The indicator of whether the adverse event is unexpected
Supplemental
Serious Adverse Events
False
General (For all diseases)
General (For all diseases)
F2053-C21318
C21318
Quality of Life - Movement up down step curb ability scale
The scale which represents the extent to which the participant was able to step up and down curbs, as part of Neuro-QOL Lower Extremity Function
Supplemental
Neuro-QOL Adult Bank - Lower Extremity Function
True
General (For all diseases)
General (For all diseases)
F2058-C21138
C21138
Quality of Life - Movement small object remove wrap difficulty scale
The scale which represents the amount of difficulty the participant currently has in removing wrappings from small objects, as part of Neuro-QOL Upper Extremity
Supplemental
Neuro-QOL Adult Bank - Upper Extremity
True
General (For all diseases)
General (For all diseases)
F2050-C21220
C21220
Quality of Life - Thought process slow past week scale
The scale representing how often the participant's thinking was slow in the past 7 days, as part of Neuro-QOL Cognitive Function
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
F2048-C21180
C21180
Quality of Life - Work usual abililty complete past week scale
The scale representing how often the participant was able to do all of their usual work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2053-C21326
C21326
Quality of Life - Movement chair sit stand difficulty scale
The scale which represents the amount of difficulty the participant currently has in sitting down on and standing up from a chair with arms, as part of Neuro-QOL Lower Extremity Function
Supplemental
Neuro-QOL Adult Bank - Lower Extremity Function
True
General (For all diseases)
General (For all diseases)
F2058-C21146
C21146
Quality of Life - Movement bend down pick up cloth ability scale
The scale which represents the extent to which the participant was able to bend down and pick up clothing from the floor Neuro-QOL Upper Extremity
Supplemental
Neuro-QOL Adult Bank - Upper Extremity
True
General (For all diseases)
General (For all diseases)
F2051-C21228
C21228
Quality of Life - Conversation familiar people difficulty scale
The scale which represents the amount of difficulty the participant currently has in carrying on a conversation with a small group of familiar people (e.g., family or a few friends), as part of Neuro-QOL Communication
Supplemental
Neuro-QOL Adult Bank - Communication
True
General (For all diseases)
General (For all diseases)
F2048-C21188
C21188
Quality of Life - Work usual ability past week scale
The scale representing how often the participant was able to do all of their usual work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2055-C21269
C21269
Quality of Life - Socialize ability family disappointment past week scale
The scale which represents the extent to which the participant felt that their family was disappointed in their ability to socialize with them in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2054-C21250
C21250
Quality of Life - Satisfaction life enjoyment ability recent assessment scale
The scale representing how often the participant was able to enjoy life lately, as part of Neuro-QOL Positive Affect and Well-Being
Supplemental
Neuro-QOL Adult Bank - Positive Affect and Well-Being
True
General (For all diseases)
General (For all diseases)
F2055-C21277
C21277
Quality of Life - Leisure activity ability disappointment past week scale
The scale which represents the extent to which the participant was disappointed in their ability to do leisure activites in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2054-C21258
C21258
Quality of Life - Satisfaction good life recent assessment scale
The scale representing how often the participant had a good life, as part of Neuro-QOL Positive Affect and Well-Being
Supplemental
Neuro-QOL Adult Bank - Positive Affect and Well-Being
True
General (For all diseases)
General (For all diseases)
F0016-C58780
C58780
Birth sex assigned type other text
The free-text field related to 'Birth sex assigned type', specifying other text
Supplemental
Demographics
False
General (For all diseases)
General (For all diseases)
F2055-C21285
C21285
Quality of Life - Personal responsibility care ability satisfaction past week scale
The scale which represents the extent to which the participant was satisfied with their ability to take care of personal and household responsibilities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2055-C20743
C20743
Patient-Reported Outcome Measurement Information System (PROMIS) - Important community activity ability satisfaction past week scale
The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the community activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2056-C21290
C21290
Quality of Life - Awake pain past week scale
The scale representing how often pain woke the participant up in the last 7 days, as part of Neuro-QOL Sleep Disturbance
Supplemental
Neuro-QOL Adult Bank - Sleep Disturbance
True
General (For all diseases)
General (For all diseases)
F2055-C20752
C20752
Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity complete important ability satisfaction past week scale
The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the leisure activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2057-C21298
C21298
Quality of Life - Stigma illness physical limit embarassment recent assessment scale
The scale representing how often the participant felt embarassed because of their physical limitations lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2055-C20767
C20767
Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance ability satisfaction past week scale
The scale which represents the extent of the participant's satisfaction with his/her ability to perform daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21189
C21189
Quality of Life - Work limit complete past week scale
The scale representing how often the participant was limited in doing their work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21149
C21149
Quality of Life - Social interaction friend ability past week scale
The scale representing how often the participant was able to socialize with their friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)