F2055-C20742
C20742
Patient-Reported Outcome Measurement Information System (PROMIS) - Social activity current level satisfaction past week scale
The scale which represents the extent of the participant's satisfaction with his/her current level of social activity in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21148
C21148
Quality of Life - Regular family activity ability past week scale
The scale representing how often the participant was able to do all of their regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2056-C21289
C21289
Quality of Life - Bad dream sleep trouble past week scale
The scale representing how often the participant had trouble sleeping because of dreams in the past 7 days, as part of Neuro-QOL Sleep Disturbance
Supplemental
Neuro-QOL Adult Bank - Sleep Disturbance
True
General (For all diseases)
General (For all diseases)
F0008-C21112
C21112
Visit form name
Name of the form used during the visit
Supplemental
Visit Schedule
False
General (For all diseases)
General (For all diseases)
F2049-C20779
C20779
Quality of Life - Fidgety assessment past week scale
The scale which represents how often the participant felt fidgety in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety
Supplemental
Neuro-QOL Adult Bank - Anxiety
True
General (For all diseases)
General (For all diseases)
F2055-C20751
C20751
Patient-Reported Outcome Measurement Information System (PROMIS) - Home fun ability satisfaction past week scale
The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun at home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21156
C21156
Quality of Life - Regular family activity limit ability past week scale
The scale representing how often the participant had to limit regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F1053-C18690
C18690
Imaging analysis software other text
The free-text field related to 'Imaging analysis software name' specifying other text. Name of the software used for data processing or analysis of the imaging study
Supplemental
Diffusion Tensor Imaging (DTI)
False
General (For all diseases)
General (For all diseases)
F2057-C21297
C21297
Quality of Life - Stigma illness uncomfortable other people recent assessment scale
The scale representing how often some people seemed uncomfortable with the participant because of their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2049-C20792
C20792
Quality of Life - Uneasiness assessment past week scale
The scale which represents how often the participant felt uneasy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety
Supplemental
Neuro-QOL Adult Bank - Anxiety
True
General (For all diseases)
General (For all diseases)
F2055-C20761
C20761
Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance time spent satisfaction past week scale
The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent performing daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21164
C21164
Quality of Life - Friend visit limit time past week scale
The scale representing how often the participant felt limited in the amount of time they had to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F0026-C18767
C18767
Temperature measurement other text
The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured
Supplemental
Vital Signs
False
General (For all diseases)
General (For all diseases)
F2059-C20573
C20573
Quality of Life in Neurological Disorders (Neuro-Qol) - Overall weakness fatigue assessement past week scale
The scale representing how often the participant felt weak all over in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)
Supplemental
Neuro-QOL Adult Bank - Fatigue
False
General (For all diseases)
General (For all diseases)
F0013-C59687
C59687
COVID-19 first date
Date the participant/subject was first told or first thought that they had coronavirus disease 2019 (COVID-19)
Supplemental
Medical History
False
General (For all diseases)
General (For all diseases)
F2052-C20732
C20732
Quality of Life - Hopelessness assessment past week scale
The scale which represents how often the participant felt hopeless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression
Supplemental
Neuro-QOL Adult Bank - Depression
True
General (For all diseases)
General (For all diseases)
F2057-C21312
C21312
Quality of Life - Stigma illness different feel compare other people recent assessment scale
The scale representing how often the participant felt different from others because of their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2050-C21204
C21204
Quality of Life - Organize difficulty scale
The scale which represents the amount of difficulty the participant currently has in getting things organized, as part of Neuro-QOL Cognitive Function
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
F2052-C21234
C21234
Quality of Life - Maintain task thought trouble past week scale
The scale representing how often the participant had trouble keeping their mind on what they were doing in the past 7 days, as part of Neuro-QOL Depression
Supplemental
Neuro-QOL Adult Bank - Depression
True
General (For all diseases)
General (For all diseases)
F2058-C21130
C21130
Quality of Life - Movement pick up coin ability scale
The scale which represents the extent to which the participant was able to pick up coins from a table top, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity
Supplemental
Neuro-QOL Adult Bank - Upper Extremity
True
General (For all diseases)
General (For all diseases)
F2050-C21212
C21212
Quality of Life - Multitask difficulty past week scale
The scale representing how often the participant had difficulty doing more than one thing at a time in the past 7 days, as part of Neuro-QOL Cognitive Function
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
F0004-C18659
C18659
Unexpected adverse event indicator
The indicator of whether the adverse event is unexpected
Supplemental
Serious Adverse Events
False
General (For all diseases)
General (For all diseases)
F2053-C21318
C21318
Quality of Life - Movement up down step curb ability scale
The scale which represents the extent to which the participant was able to step up and down curbs, as part of Neuro-QOL Lower Extremity Function
Supplemental
Neuro-QOL Adult Bank - Lower Extremity Function
True
General (For all diseases)
General (For all diseases)
F2058-C21138
C21138
Quality of Life - Movement small object remove wrap difficulty scale
The scale which represents the amount of difficulty the participant currently has in removing wrappings from small objects, as part of Neuro-QOL Upper Extremity
Supplemental
Neuro-QOL Adult Bank - Upper Extremity
True
General (For all diseases)
General (For all diseases)
F2050-C21220
C21220
Quality of Life - Thought process slow past week scale
The scale representing how often the participant's thinking was slow in the past 7 days, as part of Neuro-QOL Cognitive Function
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)