F2050-C21201
C21201
Quality of Life - Plan keep appointment not weekly routine difficulty scale
The scale which represents the amount of difficulty the participant currently has in planning for and keeping appointments that are not part of their weekly routine (e.g., a therapy or doctor appointment, or a social gathering with friends and family), as part of Neuro-QOL Cognitive Function
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
F2052-C21231
C21231
Quality of Life - Everything extra effort complete past week scale
The scale representing how often the participant felt that everything they did was an effort in the past 7 days, as part of Neuro-QOL Depression
Supplemental
Neuro-QOL Adult Bank - Depression
True
General (For all diseases)
General (For all diseases)
F2058-C21127
C21127
Quality of Life - Movement turn key lock ability scale
The scale which represents the extent to which the participant was able to turn a key in a lock, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity
Supplemental
Neuro-QOL Adult Bank - Upper Extremity
True
General (For all diseases)
General (For all diseases)
F2050-C21209
C21209
Quality of Life - Almost remember word past week scale
The scale representing how often words the participant wanted to use seemed to be on the "tip of their tongue" in the past 7 days, as part of Neuro-QOL Cognitive Function
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
F2053-C21239
C21239
Quality of Life - Movement no handrail stair climb difficulty scale
The scale which represents the amount of difficulty the participant currently has in climbing stairs step over step without a handrail (alternating feet), as part of Neuro-QOL Lower Extremity Function
Supplemental
Neuro-QOL Adult Bank - Lower Extremity Function
True
General (For all diseases)
General (For all diseases)
F2058-C21135
C21135
Quality of Life - Movement spoon eat meal difficulty scale
The scale which represents the amount of difficulty the participant currently has in using a spoon to eat a meal, as part of Neuro-QOL Upper Extremity
Supplemental
Neuro-QOL Adult Bank - Upper Extremity
True
General (For all diseases)
General (For all diseases)
F2050-C21217
C21217
Quality of Life - Clear thought difficulty past week scale
The scale representing how often the participant had trouble thinking clearly in the past 7 days, as part of Neuro-QOL Cognitive Function
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
F2053-C21323
C21323
Quality of Life - Movement without assistance floor stand ability scale
The scale which represents the extent to which the participant was able to get up off the floor from lying on their back without help, as part of Neuro-QOL Lower Extremity Function and Patient-Reported Outcome Measurement Information System (PROMIS) Mobility
Supplemental
Neuro-QOL Adult Bank - Lower Extremity Function
True
General (For all diseases)
General (For all diseases)
F2058-C21143
C21143
Quality of Life - Movement button shirt ability scale
The scale which represents the extent to which the participant was able to button their shirt, as part of Neuro-QOL Upper Extremity and Patient Repoted Outcome Measurement Information System (PROMIS) Upper Extremity
Supplemental
Neuro-QOL Adult Bank - Upper Extremity
True
General (For all diseases)
General (For all diseases)
F2050-C21225
C21225
Quality of Life - Trouble plan task step past week scale
The scale representing how often the participant had trouble planning out steps of a task in the past 7 days, as part of Neuro-QOL Cognitive Function
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
F2057-C21295
C21295
Quality of Life - Stigma illness avoid visual contact recent assessment scale
The scale representing how often people avoided looking at the participant because of their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2049-C20790
C20790
Quality of Life - Sleep difficultly assessment past week scale
The scale which represents how often the participant had difficulty sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety
Supplemental
Neuro-QOL Adult Bank - Anxiety
True
General (For all diseases)
General (For all diseases)
F2055-C20757
C20757
Patient-Reported Outcome Measurement Information System (PROMIS) - Work time spent satisfaction past week scale
The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent doing work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21162
C21162
Quality of Life - Friend visit limit ability past week scale
The scale representing how often the participant felt limited in their ability to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F0008-C21115
C21115
Visit week count
Count of days in a week where a visit was made
Supplemental
Visit Schedule
False
General (For all diseases)
General (For all diseases)
F2049-C21195
C21195
Quality of Life - No reason fear assessment past week scale
The scale which represents how often the participant suddenly felt scared for no reason in the past 7 days, as part of Neuro-QOL Anxiety
Supplemental
Neuro-QOL Adult Bank - Anxiety
True
General (For all diseases)
General (For all diseases)
F2055-C21266
C21266
Quality of Life - Family socialize ability disappointment past week scale
The scale which represents the extent to which the participant was disappointed in their ability to socialize with their family in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21170
C21170
Quality of Life - Leisure activity satisfactory complete past week scale
The scale representing how often the participant was able to do all of the leisure activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F0004-C20409
C20409
Adverse event attribution indicator
Indicator of whether the adverse event was cause by the treatment in question
Supplemental
Serious Adverse Events
False
General (For all diseases)
General (For all diseases)
F2054-C21247
C21247
Quality of Life - Satisfaction life functional recent assessment scale
The scale representing how often the participant felt their life was worth living lately, as part of Neuro-QOL Positive Affect and Well-Being
Supplemental
Neuro-QOL Adult Bank - Positive Affect and Well-Being
True
General (For all diseases)
General (For all diseases)
F2055-C21274
C21274
Quality of Life - Friend socialize ability disappointment past week scale
The scale which represents the extent to which the participant was disappointed in their ability to socialize with their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21178
C21178
Quality of Life - Group social activity decrease complete past week scale
The scale representing how often the participant did fewer social activities with groups of people than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F0025-C18731
C18731
Lab test other text
The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions
Supplemental
Laboratory Tests and Tracking
False
General (For all diseases)
General (For all diseases)
F2054-C21255
C21255
Quality of Life - Satisfaction emotion stable recent assessment scale
The scale representing how often the participant felt emotionally stable lately, as part of Neuro-QOL Positive Affect and Well-Being
Supplemental
Neuro-QOL Adult Bank - Positive Affect and Well-Being
True
General (For all diseases)
General (For all diseases)
F2055-C21282
C21282
Quality of Life - Daily routine limitation bother past week scale
The scale which represents the extent to which the participant was bothered by limitations in performing their daily routines in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)