F2048-C21156
C21156
Quality of Life - Regular family activity limit ability past week scale
The scale representing how often the participant had to limit regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F1053-C18690
C18690
Imaging analysis software other text
The free-text field related to 'Imaging analysis software name' specifying other text. Name of the software used for data processing or analysis of the imaging study
Supplemental
Diffusion Tensor Imaging (DTI)
False
General (For all diseases)
General (For all diseases)
F2057-C21297
C21297
Quality of Life - Stigma illness uncomfortable other people recent assessment scale
The scale representing how often some people seemed uncomfortable with the participant because of their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2049-C20792
C20792
Quality of Life - Uneasiness assessment past week scale
The scale which represents how often the participant felt uneasy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety
Supplemental
Neuro-QOL Adult Bank - Anxiety
True
General (For all diseases)
General (For all diseases)
F2055-C20761
C20761
Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance time spent satisfaction past week scale
The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent performing daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F0025-C18731
C18731
Lab test other text
The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions
Supplemental
Laboratory Tests and Tracking
False
General (For all diseases)
General (For all diseases)
F2048-C21164
C21164
Quality of Life - Friend visit limit time past week scale
The scale representing how often the participant felt limited in the amount of time they had to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2049-C21197
C21197
Quality of Life - Shyness assessment past week scale
The scale which represents how often the patient felt shy in the past 7 days, as part of Neuro-QOL Anxiety
Supplemental
Neuro-QOL Adult Bank - Anxiety
True
General (For all diseases)
General (For all diseases)
F2055-C21268
C21268
Quality of Life - Household chore satisfaction ability past week scale
The scale which represents the extent to which the participant was satisfied with their ability to do household chores and tasks in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21172
C21172
Quality of Life - Social activity outside home limit complete past week scale
The scale representing how often the participant had to limit activities outside of their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F0004-C20411
C20411
Serious adverse event outcome status other text
Free-text field to specify an alternate outcome attributed to the serious adverse event
Supplemental
Serious Adverse Events
False
General (For all diseases)
General (For all diseases)
F2054-C21249
C21249
Quality of Life - Satisfaction life many area interest recent assessment scale
The scale representing how often the participant was interested in many areas of their life lately, as part of Neuro-QOL Positive Affect and Well-Being
Supplemental
Neuro-QOL Adult Bank - Positive Affect and Well-Being
True
General (For all diseases)
General (For all diseases)
F2055-C21276
C21276
Quality of Life - Community activity ability other people disappointment self-assessment past week scale
The scale which represents the extent to which the participant felt that others were disappointed in their ability to do community activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21180
C21180
Quality of Life - Work usual abililty complete past week scale
The scale representing how often the participant was able to do all of their usual work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2054-C21257
C21257
Quality of Life - Satisfaction confident recent assessment scale
The scale representing how often the participant felt confident lately, as part of Neuro-QOL Positive Affect and Well-Being
Supplemental
Neuro-QOL Adult Bank - Positive Affect and Well-Being
True
General (For all diseases)
General (For all diseases)
F2055-C21284
C21284
Quality of Life - Work home limitation bother past week scale
The scale which represents the extent to which the participant was bothered by limitations in performing their work (include work at home) in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21188
C21188
Quality of Life - Work usual ability past week scale
The scale representing how often the participant was able to do all of their usual work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2055-C20742
C20742
Patient-Reported Outcome Measurement Information System (PROMIS) - Social activity current level satisfaction past week scale
The scale which represents the extent of the participant's satisfaction with his/her current level of social activity in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21148
C21148
Quality of Life - Regular family activity ability past week scale
The scale representing how often the participant was able to do all of their regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2058-C21138
C21138
Quality of Life - Movement small object remove wrap difficulty scale
The scale which represents the amount of difficulty the participant currently has in removing wrappings from small objects, as part of Neuro-QOL Upper Extremity
Supplemental
Neuro-QOL Adult Bank - Upper Extremity
True
General (For all diseases)
General (For all diseases)
F0008-C21112
C21112
Visit form name
Name of the form used during the visit
Supplemental
Visit Schedule
False
General (For all diseases)
General (For all diseases)
F2050-C21220
C21220
Quality of Life - Thought process slow past week scale
The scale representing how often the participant's thinking was slow in the past 7 days, as part of Neuro-QOL Cognitive Function
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
F2053-C21326
C21326
Quality of Life - Movement chair sit stand difficulty scale
The scale which represents the amount of difficulty the participant currently has in sitting down on and standing up from a chair with arms, as part of Neuro-QOL Lower Extremity Function
Supplemental
Neuro-QOL Adult Bank - Lower Extremity Function
True
General (For all diseases)
General (For all diseases)
F2058-C21146
C21146
Quality of Life - Movement bend down pick up cloth ability scale
The scale which represents the extent to which the participant was able to bend down and pick up clothing from the floor Neuro-QOL Upper Extremity
Supplemental
Neuro-QOL Adult Bank - Upper Extremity
True
General (For all diseases)
General (For all diseases)
F2051-C21228
C21228
Quality of Life - Conversation familiar people difficulty scale
The scale which represents the amount of difficulty the participant currently has in carrying on a conversation with a small group of familiar people (e.g., family or a few friends), as part of Neuro-QOL Communication
Supplemental
Neuro-QOL Adult Bank - Communication
True
General (For all diseases)
General (For all diseases)