CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 226 - 250 of 740

« first
‹ previous
…
6
7
8
9
10
11
12
13
14
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0010-C00707	C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F2048-C21182	C21182	Quality of Life - Good work ability complete past week scale	The scale representing how often the participant's ability to do their work was as good as it could be (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F0013-C59689	C59689	COVID-19 vaccine or clinical vaccine trial status	Status related to whether the participant/subject has ever been given a coronavirus disease 2019 (COVID-19) vaccine or has enrolled in COVID-19 vaccine clinical trials	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F2054-C21259	C21259	Quality of Life - Satisfaction peaceful life recent assessment scale	The scale representing how often the participant felt their life was peaceful lately, as par of Neuro-QOL Positive Affect and Well-Being	Supplemental	Neuro-QOL Adult Bank - Positive Affect and Well-Being	True	General (For all diseases)	General (For all diseases)
F0005-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0037-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Physical Exam	False	General (For all diseases)	General (For all diseases)
F0004-C02309	C02309	Serious adverse event indicator	The indicator of whether the adverse event is serious.	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F2052-C21236	C21236	Quality of Life - Enjoyment trouble past week scale	The scale representing how often the participant had trouble enjoying things that they used to enjoy in the past 7 days, as part of Neuro-QOL Depression Adult Bank	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F1062-C12741	C12741	Electrophysiology neuromuscular jitter stimulation type	Indicator of the stimulation technique, if applicable, used for activation in the neuromuscular jitter study being described	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2058-C21132	C21132	Quality of Life - Movement zipper open close ability scale	The scale which represents the extent to which the participant was able to open and close a zipper, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Information Measurement System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
F2050-C21214	C21214	Quality of Life - Trouble remembering new information past week scale	The scale representing how often the participant had trouble remembering new information, like phone numbers of simple instructions, in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C12700	C12700	Electrophysiology motor nerve dispersion result	Amount of test signal dispersion measured during the motor nerve conduction study	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1053-C10567	C10567	Imaging radio frequency coil type	Type of radio frequency (RF) coil(s) used for the body part scanned	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F0037-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Physical Exam	False	General (For all diseases)	General (For all diseases)
F0004-C20391	C20391	Sex type	The sex of the subject/participant	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F2053-C21320	C21320	Quality of Life - Movement bed chair ability scale	The scale which represents the extent to which the participant was able to get out of bed into a chair, as part of Neuro-QOL Lower Extremity Function	Supplemental	Neuro-QOL Adult Bank - Lower Extremity Function	True	General (For all diseases)	General (For all diseases)
F1062-C12752	C12752	Electrophysiology heart rate variability value	The heart rate variability with deep breathing measured during autonomic function testing	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2058-C21140	C21140	Quality of Life - Movement open prior open jar ability scale	The scale which represents the extent to which the participant was able to open previously opened jars, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
F2050-C21222	C21222	Quality of Life - Trouble concentrate past week scale	The scale representing how often the participant had trouble concentrating in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C12708	C12708	Electrophysiology H-reflex latency right value	The H-reflex duration of latency for the right side of the body	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1053-C10587	C10587	Imaging echo spacing value	Measurement, in milliseconds, of the echo spacing used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F0039-C04501	C04501	ECG assessment date and time	Date (and time, if applicable and known) the electrocardiogram (ECG/EKG) was administered	Supplemental	Electrocardiogram (ECG)	False	General (For all diseases)	General (For all diseases)
F0004-C20399	C20399	Serious averse event end treatment indicator	Indicate whether the study was discontinued due to the serious adverse event	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F2053-C21328	C21328	Quality of Life - Movement low soft couch stand difficulty scale	The scale which represents the amount of difficulty the participant currently has in standing up from a low, soft couch, as part of Neuro-QOL Lower Extremity Function	Supplemental	Neuro-QOL Adult Bank - Lower Extremity Function	True	General (For all diseases)	General (For all diseases)
F1062-C12760	C12760	Electrophysiology quantitative sweat function proximal leg measurement	The amount of sweat collected on the proximal leg	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)

Displaying 226 - 250 of 740

« first
‹ previous
…
6
7
8
9
10
11
12
13
14
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.