CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 869
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20704 Quality of Life - Loneliness assessment past week scale

The scale which represents how often the participant felt lonely in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

 Supplemental Neuro-QOL Adult Bank - Depression True General (For all diseases) General (For all diseases)
C56515 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent sit 30 minute more scale

Scale related to how often pain prevented an individual from sitting for more than 30 minutes in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C12725 Electrophysiology repetitive nerve postactivation number

The numeric value given to the amplitude and area values recorded for postactivation during the repetitive nerve stimulation study

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C21306 Quality of Life - Stigma illness unfair treatment recent assessment scale

The scale representing how often the participant was treated unfairly by others because of their illness lately, as part of Neuro-QOL Stigma

 Supplemental Neuro-QOL Adult Bank - Stigma True General (For all diseases) General (For all diseases)
C00719 Tobacco product used type

Type of tobacco product (e.g., cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

 Supplemental Behavioral History False General (For all diseases) General (For all diseases)
C04503 ECG heart rate

Rate in beats per minute of ventricular contractions recorded in the electrocardiogram (ECG/EKG) being recorded. Also called Heart Rate (HR)

 Supplemental Electrocardiogram (ECG) False General (For all diseases) General (For all diseases)
C21198 Quality of Life - Keep track time difficulty scale

The scale which represents the amount of difficulty the participant currently has in keeping track of time (e.g., using a clock), as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
C56477 PROMIS - Pain Behavior when pain clench jaw grit teeth scale

Scale related to the individual feeling as if when in pain he/she clenched his/her jaw or gritted his/her teeth in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Item Bank v1.1 - Pain Behavior False General (For all diseases) General (For all diseases)
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C21271 Quality of Life - Family member activity level satisfaction past week scale

The scale which represents the extent to which the participant was satisfied with their current level of activity with family members in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C21175 Quality of Life - Community activity ability complete past week scale

The scale representing how often the participant was able to do all of the community activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C54693 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out physical activity scale

Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health

 Supplemental PROMIS Item Bank v1.2 - Global Health True General (For all diseases) General (For all diseases)
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

 Supplemental Laboratory Tests and Tracking False General (For all diseases) General (For all diseases)
C10566 Imaging radio frequency coil name

Name of the radio frequency (RF) coil(s) used for the body part scanned

 Supplemental Magnetic Resonance Imaging (MRI) False General (For all diseases) General (For all diseases)
C21252 Quality of Life - Satisfaction laugh humor recent assessment scale

The scale representing how often the participant could laugh and see the humor in situations lately, as part of Neuro-QOL Positive Affect and Well-Being

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
C18809 Electrophysiology motor unit number estimation nerve other text

The free-text field related to 'Electrophysiology motor unit number estimation nerve type' specifying other text. Type of nerve where an electrical signal is measured with the MUNE (motor unit number estimation) technique

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C18740 Off study intervention prematurely other text

The free-text field related to 'Off study intervention prematurely reason' specifying other text. Primary reason participant/subject discontinued study intervention before planned end of study

 Supplemental Study Discontinuation/Completion False General (For all diseases) General (For all diseases)
C10682 Imaging anatomic site

Anatomic site of body part or anatomy scanned in the imaging study

 Supplemental Diffusion Tensor Imaging (DTI) False General (For all diseases) General (For all diseases)
C56485 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain interfere ability concentrate scale

Scale related to how much pain interfered with an individual's ability to concentrate in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C21279 Quality of Life - Work people disappointment self-assessment past week scale

The scale which represents the extent to which the participant felt that they were disappointing to other people at work in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C21183 Quality of Life - Work everything ability past week scale

The scale representing how often the participant could do everything for work that they wanted do (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C56445 PROMIS - Pain Behavior when pain move extreme slow scale

Scale related to an individual feeling as if when he/she was in pain he/she moved extremely slowly in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Item Bank v1.1 - Pain Behavior False General (For all diseases) General (For all diseases)
C10587 Imaging echo spacing value

Measurement, in milliseconds, of the echo spacing used in diffusion acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False General (For all diseases) General (For all diseases)
C21260 Quality of Life - Satisfaction live life fully recent assessment scale

The scale representing how often the participant felt they were living life to the fullest lately, as part of Neuro-QOL Positive Affect and Well-Being

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
C02015 Medication prior or concomitant route type

Type of access route for the administration of the prior/concomitant medication

 Supplemental Prior and Concomitant Medications False General (For all diseases) General (For all diseases)
Displaying 101 - 125 of 869

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.