CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1062-C12734	C12734	Needle electromyography motor unit action potential stable indicator	The stability of the action potential measure during needle electromyography	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2057-C21315	C21315	Quality of Life - Stigma illness other people lost job recent assessment scale	The scale representing how often people with the participant's illness lost their jobs when their employers found out about it lately, as part of Neuro-QOL Stigma	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)
F0012-C02215	C02215	Study eligibility indicator	Indicator of whether the participant/subject is eligible for participation in the clinical research protocol according to its inclusion and exclusion criteria	Supplemental	Inclusion and Exclusion Criteria	False	General (For all diseases)	General (For all diseases)
F0039-C04512	C04512	ECG QTc interval	Interval in milliseconds (msec) as corrected for the period from the start of the Q wave to the end of the T wave (QTc interval) for the electrocardiogram (ECG/EKG) being recorded	Supplemental	Electrocardiogram (ECG)	False	General (For all diseases)	General (For all diseases)
F2050-C21207	C21207	Quality of Life - Learn new task difficulty scale	The scale which represents the amount of difficulty the participant currently has in learning new tasks or instructions, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C10785	C10785	Electrophysiology motor unit number estimation value	Value of the motor unit number estimate (MUNE), derived by dividing compound muscle action potential (CMAP) amplitude by single motor unit potential (SMUP) amplitude	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0008-C21116	C21116	Visit follow-up indicator	Indicator for a follow-up visit	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F0026-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0001-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	General (For all diseases)	General (For all diseases)
F0004-C02310	C02310	Adverse event CTCAE low level term name	Text that represents the Common Terminology Criteria for Adverse Events (CTCAE) low level term name for an adverse event	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F2053-C21237	C21237	Quality of Life - Movement twenty minute duration brisk walk difficulty scale	The scale which represents the amount of difficulty the participant currently has in taking a 20-minute brisk walk, without stopping to rest, as part of Neuro-QOL Lower Extremity Function	Supplemental	Neuro-QOL Adult Bank - Lower Extremity Function	True	General (For all diseases)	General (For all diseases)
F1062-C12742	C12742	Electrophysiology neuromuscular jitter pair or endplate study count	Count of the pairs/endplates studied in the neuromuscular jitter study being described	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2058-C21133	C21133	Quality of Life - Movement body wash dry ability scale	The scale which represents the extent to which the participant was able to wash and dry their body, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
F0299-C05122	C05122	Study therapy administered date and time	Date (and time, if applicable and known) the study therapy was administered to the participant/subject	Supplemental	Study Therapies Compliance	False	General (For all diseases)	General (For all diseases)
F2050-C21215	C21215	Quality of Life - Room Walked into room and forgot why past week scale	The scale representing how often the participant walked into a room and forgot what they meant to do or get there in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C12701	C12701	Electrophysiology motor nerve F-wave minimum latency value	The length of time needed for the impulse to travel from the site, to the spine, and back to the site measured during the motor nerve conduction study	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0009-C02307	C02307	Adverse event verbatim term text	Text that describes the adverse event word for word as described by the participant/subject	Supplemental	Adverse Events	False	General (For all diseases)	General (For all diseases)
F0026-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0003-C02211	C02211	Enrolled in study date and time	Date (and time, if applicable and known) the participant/subject is enrolled into the study	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F0004-C20392	C20392	Serious adverse event treatment description text	The text that describes the interventions specific to the serious adverse event	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F2053-C21321	C21321	Quality of Life - Movement push open heavy door ability scale	The scale which represents the extent to which the participant was able to push open a heavy door, as part of Neuro-QOL Lower Extremity Function	Supplemental	Neuro-QOL Adult Bank - Lower Extremity Function	True	General (For all diseases)	General (For all diseases)
F1062-C12753	C12753	Electrophysiology expiratory inspiratory ratio	Ratio of the expiratory time to the inspiratory time during the breathing cycle measured during autonomic function testing	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2058-C21141	C21141	Quality of Life - Movement full food plate hold ability scale	The scale which represents the extent to which the participant was able to hold a plate full of food, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
F1053-C08239	C08239	Imaging echo duration	Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2050-C21223	C21223	Quality of Life - Trouble start simple task past week scale	The scale representing how often the participant had trouble getting started on very simple tasks in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.