CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 740
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20741 Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity time amount satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with the amount of time he spent doing leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C12708 Electrophysiology H-reflex latency right value

The H-reflex duration of latency for the right side of the body

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C01010 Physical exam date and time

Date (and time if applicable and known) physical exam was performed

 Supplemental Physical Exam False General (For all diseases) General (For all diseases)
C00700 Alcohol use stopped age value

Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking

 Supplemental Behavioral History False General (For all diseases) General (For all diseases)
C21288 Quality of Life - Force awake morning past week scale

The scale representing how often the participant had to force himself/herself to get up in the morning in the past 7 days, as part of Neuro-QOL Sleep Disturbance

 Supplemental Neuro-QOL Adult Bank - Sleep Disturbance True General (For all diseases) General (For all diseases)
C12760 Electrophysiology quantitative sweat function proximal leg measurement

The amount of sweat collected on the proximal leg

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C18495 Protocol ID number

The designated number used to identify the protocol or study to which participants/subjects will be enrolled

 Supplemental Screening Log False General (For all diseases) General (For all diseases)
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

 Supplemental Diffusion Tensor Imaging (DTI) False General (For all diseases) General (For all diseases)
C20750 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship time spent visit satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with the amount of time spent visiting his/her friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C12717 Electrophysiology repetitive nerve stimulation study stimulus intensity value

Value, in mV, of stimulation intensity in the repetitive nerve study being recorded

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C02210 Enrolled in study indicator

Indicator of whether the participant/subject was enrolled into the clinical research study

 Supplemental Informed Consent and Enrollment False General (For all diseases) General (For all diseases)
C00708 Alcohol use related to hospitalization indicator

Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)

 Supplemental Behavioral History False General (For all diseases) General (For all diseases)
C21296 Quality of Life - Stigma illness embarrassment recent assessment scale

The scale representing how often the participant felt embarrassed about their illness lately, as part of Neuro-QOL Stigma

 Supplemental Neuro-QOL Adult Bank - Stigma True General (For all diseases) General (For all diseases)
C12768 Electrophysiology short post-exercise compound muscle action potential measurement

The compound muscle action potential (CMAP) values measured at the post-exercise intervals

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C21118 Subject mailing address name

Name of the mailing address of subject/participant

 Supplemental Participant/Subject Contact Information False General (For all diseases) General (For all diseases)
C10589 Imaging shot count

The number of shots used in the imaging echo-planner acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False General (For all diseases) General (For all diseases)
C20759 Patient-Reported Outcome Measurement Information System (PROMIS) - Work ability satisfaction past week scale

The scale which represents how often the participant's satisfaction with his/her ability to work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C12725 Electrophysiology repetitive nerve postactivation number

The numeric value given to the amplitude and area values recorded for postactivation during the repetitive nerve stimulation study

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C04503 ECG heart rate

Rate in beats per minute of ventricular contractions recorded in the electrocardiogram (ECG/EKG) being recorded. Also called Heart Rate (HR)

 Supplemental Electrocardiogram (ECG) False General (For all diseases) General (For all diseases)
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant

 Supplemental Behavioral History False General (For all diseases) General (For all diseases)
C21108 Visit present indicator

Indicator for the presence of the subject at the visit

 Supplemental Visit Checklist False General (For all diseases) General (For all diseases)
C21267 Quality of Life - Friend regular activity limitation bother past week scale

The scale which represents the extent to which the participant was bothered by limitations in their regular activities with friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C12733 Needle electromyography motor unit action potential complexity percent value

The complexity of the motor unit action potential measured during needle electromyography

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C20410 Serious adverse event not resolution indicator

Indicates whether the adverse event was not resolved

 Supplemental Serious Adverse Events False General (For all diseases) General (For all diseases)
C04511 ECG QT interval

Interval in milliseconds (msec) from the start of the Q wave to the end of the T wave (QT interval) for the electrocardiogram (ECG/EKG) being recorded

 Supplemental Electrocardiogram (ECG) False General (For all diseases) General (For all diseases)
Displaying 276 - 300 of 740

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.