CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0022-C02005	C02005	Study drug returned date and time	Date (and time, if applicable and known) on which the study drug was returned	Supplemental	Study Drug Compliance	False	General (For all diseases)	General (For all diseases)
F1053-C18657	C18657	Imaging diffusion sixth b value	Value, in square millimeters per second, of the sixth b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F0013-C59019	C59019	Birth weight measurement	Measurement in kilograms of the weight of a neonate at birth	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F2057-C21295	C21295	Quality of Life - Stigma illness avoid visual contact recent assessment scale	The scale representing how often people avoided looking at the participant because of their illness lately, as part of Neuro-QOL Stigma	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)
F0037-C01015	C01015	Physical exam performed indicator	Indicator of whether a physical exam was performed on the participant/subject	Supplemental	Physical Exam	False	General (For all diseases)	General (For all diseases)
F0003-C19069	C19069	Screening visit eligibility other text	The free-text field related to 'Screening visit eligibility status' specifying other text. The status determined from screening criteria that indicates whether a participant/subject may be eligible for a study	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F0004-C20403	C20403	Serious adverse event investigator assessment	Indicate the principal investigator's opinion of the cause of the event	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F2054-C21241	C21241	Quality of Life - Satisfaction well being recent asssement scale	The scale representing how often the participant had a sense of well-being lately, as part of Neuro-QOL Positive Affect and Well-Being	Supplemental	Neuro-QOL Adult Bank - Positive Affect and Well-Being	True	General (For all diseases)	General (For all diseases)
F1062-C12764	C12764	Electrophysiology tilt study blood pressure change result	Blood Pressure changes experienced from a tilt test	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2059-C20550	C20550	Quality of Life in Neurological Disorders (Neuro-Qol) - Frustration tired for action fatigue assessment past week scale	The scale representing how often the participant felt frustrated by being too tired to do the things they wanted to do in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)
F1053-C10584	C10584	Imaging phase resolution percentage value	The value in percent of the phase resolution used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2052-C20693	C20693	Quality of Life - Other people withdrawal assessment past week scale	The scale which represents how often the participant withdrew from other people in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F1062-C12721	C12721	Electrophysiology repetitive nerve activation technique type	Indicator of the activation technique used in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0010-C00711	C00711	Tobacco prior use indicator	Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F0038-C02214	C02214	Randomized date and time	Date (and time, if applicable and known) the participant/subject is randomly assigned (i.e., by chance not choice) to an intervention/treatment group or control group	Supplemental	Informed Consent and Enrollment	False	General (For all diseases)	General (For all diseases)
F0005-C21121	C21121	Subject zip postal code number	The number of the subject/participant's zip/postal code	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F2059-C20571	C20571	Quality of Life in Neurological Disorders (Neuro-Qol) - Poor appetite fatigue assessment past week scale	The scale representing how often the participant was too tired to eat in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)
F1053-C10593	C10593	Imaging fat signal suppressed indicator	Indicator as to whether or not fat signal was suppressed in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2052-C20730	C20730	Quality of Life - Unhappiness assessment past week scale	The scale which represents how often the participant felt unhappy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F1062-C12729	C12729	Needle electromyography spontaneous activity type	The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2057-C21310	C21310	Quality of Life - Stigma illness burden worry recent assessment scale	The scale representing how often the participant worried that he/she was a burden to others because of their illness lately, as part of Neuro-QOL Stigma	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)
F0011-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	General (For all diseases)	General (For all diseases)
F0039-C04507	C04507	ECG complete bundle branch block status	Status of complete bundle branch block on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	General (For all diseases)	General (For all diseases)
F2050-C21202	C21202	Quality of Life - Manage time daily activity difficulty scale	The scale which represents the amount of difficulty the participant currently has in managing their time to do most of their daily activities, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C10777	C10777	Electrophysiology study type	Type of electrophysiology study conducted	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.