CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02003 Medication prior or concomitant ongoing indicator

Indicator of or description that the prior/concomitant medication usage is ongoing

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C02006 Medication prior or concomitant dose

Dose of prior/concomitant medication taken per administration

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C02011 Medication prior or concomitant dose frequency

Frequency of use of a prior/concomitant medication

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C02013 Medication prior or concomitant dose unit of measure UCUM code

Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C02014 Medication prior or concomitant name

Name of the prior/concomitant agent or drug administered

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C02015 Medication prior or concomitant route type

Type of access route for the administration of the prior/concomitant medication

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C02016 Medication prior or concomitant start date and time

The date (and time, if applicable and known) on which the prior/concomitant medication usage began

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C02024 Medication prior or concomitant indication text

Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C02025 Medication prior or concomitant RXNorm code

Code for name of the prior/concomitant agent or drug administered

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C18737 Medication prior or concomitant route type other text

The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C04800 Death cause text

Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate

Supplemental Death Report General (For all diseases) General (For all diseases)
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

Supplemental Death Report General (For all diseases) General (For all diseases)
C21665 Death cause ICD-10-CM code

ICD-10-CM code that describes the cause of participant/subject's death

Supplemental Death Report General (For all diseases) General (For all diseases)
C02004 Study drug dispensed date and time

Date (and time, if applicable and known) on which a participant/subject was given or applied a therapeutic agent (drug, intervention therapy) used in a clinical trial protocol

Supplemental Study Drug Compliance General (For all diseases) General (For all diseases)
C02005 Study drug returned date and time

Date (and time, if applicable and known) on which the study drug was returned

Supplemental Study Drug Compliance General (For all diseases) General (For all diseases)
C02010 Study drug dosage form text

Text of dosage form used to administer study drug

Supplemental Study Drug Compliance General (For all diseases) General (For all diseases)
C02018 Study drug dispensed count

Count of amount of study drug dispensed to the participant/subject

Supplemental Study Drug Compliance General (For all diseases) General (For all diseases)
C02019 Study drug actual return count

Count of amount of study drug returned

Supplemental Study Drug Compliance General (For all diseases) General (For all diseases)
C02020 Study drug expected returned count

Count of expected amount of study drug returned

Supplemental Study Drug Compliance General (For all diseases) General (For all diseases)
C02021 Study drug expected taken count

Count of expected amount of study drug taken

Supplemental Study Drug Compliance General (For all diseases) General (For all diseases)
C02007 Study drug dose

Dose of study drug taken per administration

Supplemental Study Drug Dosing General (For all diseases) General (For all diseases)
C02009 Study drug end date and time

Date (and time, if applicable and known) the administration of the study drug ended

Supplemental Study Drug Dosing General (For all diseases) General (For all diseases)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.