CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0012-C02217	C02217	Inclusion criterion not met number	Inclusion criterion number(s) the participant/subject did not meet	Supplemental	Inclusion and Exclusion Criteria	False	General (For all diseases)	General (For all diseases)
F2052-C20696	C20696	Quality of Life - Sadness assessment past week scale	The scale which represents how often the participant felt sad in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F1062-C12723	C12723	Electrophysiology repetitive nerve activation duration	Duration, in sec, of the activation technique used in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2057-C21304	C21304	Quality of Life - Stigma illness stranger stare recent assessment scale	The scale representing how often strangers tended to stare at the participant because of their illness lately, as part of Neuro-QOL Stigma	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)
F0010-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F0006-C21108	C21108	Visit present indicator	Indicator for the presence of the subject at the visit	Supplemental	Visit Checklist	False	General (For all diseases)	General (For all diseases)
F0020-C02025	C02025	Medication prior or concomitant RXNorm code	Code for name of the prior/concomitant agent or drug administered	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F2059-C20573	C20573	Quality of Life in Neurological Disorders (Neuro-Qol) - Overall weakness fatigue assessement past week scale	The scale representing how often the participant felt weak all over in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)
F0013-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's medical history	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F2052-C20732	C20732	Quality of Life - Hopelessness assessment past week scale	The scale which represents how often the participant felt hopeless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F1062-C12731	C12731	Needle electromyography motor unit action potential area measurement	The area value of the motor unit action potential (MUAP) measure during needle electromyography	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2057-C21312	C21312	Quality of Life - Stigma illness different feel compare other people recent assessment scale	The scale representing how often the participant felt different from others because of their illness lately, as part of Neuro-QOL Stigma	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)
F2050-C21204	C21204	Quality of Life - Organize difficulty scale	The scale which represents the amount of difficulty the participant currently has in getting things organized, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C10780	C10780	Electrophysiology anatomic site	Area of the body (e.g., nerve or muscle) where the type of electrophysiology study is performed	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0012-C02215	C02215	Study eligibility indicator	Indicator of whether the participant/subject is eligible for participation in the clinical research protocol according to its inclusion and exclusion criteria	Supplemental	Inclusion and Exclusion Criteria	False	General (For all diseases)	General (For all diseases)
F0008-C21116	C21116	Visit follow-up indicator	Indicator for a follow-up visit	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F0022-C02010	C02010	Study drug dosage form text	Text of dosage form used to administer study drug	Supplemental	Study Drug Compliance	False	General (For all diseases)	General (For all diseases)
F0001-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	General (For all diseases)	General (For all diseases)
F0004-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F0013-C59686	C59686	COVID-19 status reason	Reason related to the status of whether the participant/subject thinks that they have or have had coronavirus disease 2019 (COVID-19)	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F2052-C21234	C21234	Quality of Life - Maintain task thought trouble past week scale	The scale representing how often the participant had trouble keeping their mind on what they were doing in the past 7 days, as part of Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F1062-C12739	C12739	Electrophysiology neuromuscular jitter electrode type	The type of electrode used for the neuromuscular jitter test	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2058-C21130	C21130	Quality of Life - Movement pick up coin ability scale	The scale which represents the extent to which the participant was able to pick up coins from a table top, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
F2050-C21212	C21212	Quality of Life - Multitask difficulty past week scale	The scale representing how often the participant had difficulty doing more than one thing at a time in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C12698	C12698	Electrophysiology motor nerve segment length measurement	The nerve segment length measured during the motor nerve conduction study	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.