CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 526 - 550 of 740
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20781 Quality of Life - Worry assessment past week scale

The scale which represents how often the participant felt worried in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C20785 Quality of Life - Overwhelm worry assessment past week scale

The scale which represents how often the participant's worries overwhelmed him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C20787 Quality of Life - Nervousness assessment past week scale

The scale which represents how often the participant felt nervous in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C20789 Quality of Life - Worry many situation assessment past week scale

The scale which represents how often the many situations made the participant worry in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C20790 Quality of Life - Sleep difficultly assessment past week scale

The scale which represents how often the participant had difficulty sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C20791 Quality of Life - Relax trouble assessment past week scale

The scale which represents how often the participant had trouble relaxing in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C20792 Quality of Life - Uneasiness assessment past week scale

The scale which represents how often the participant felt uneasy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C20793 Quality of Life - Tension assessment past week scale

The scale which represents how often the participant felt tense in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C20794 Quality of Life - Calmness difficulty assessment past week scale

The scale which represents how often the participant had difficulty calming down in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C21192 Quality of Life - Normal routine disturbance nervousness past week scale

The scale representing how often the participant felt nervous when their normal routine was disturbed in the past 7 days, as part of Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C21193 Quality of Life - Future fear assessment past week scale

The scale representing how often the participant felt fearful about their future in the past 7 days, as part of Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C21194 Quality of Life - Physical health worry past week scale

The scale which represents how often the participant worried about their physical health, as part of Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C21195 Quality of Life - No reason fear assessment past week scale

The scale which represents how often the participant suddenly felt scared for no reason in the past 7 days, as part of Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C21196 Quality of Life - Death worry past week scale

The scale representing how often the participant worried about dying in the past 7 days, as part of Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C21197 Quality of Life - Shyness assessment past week scale

The scale which represents how often the patient felt shy in the past 7 days, as part of Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C21198 Quality of Life - Keep track time difficulty scale

The scale which represents the amount of difficulty the participant currently has in keeping track of time (e.g., using a clock), as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
C21199 Quality of Life - Check financial document accuracy difficulty scale

The scale which represents the amount of difficulty the participant currently has in checking the accuracy of financial documents (e.g., bills, checkbook, or bank statements), as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
C21200 Quality of Life - Read follow complex instruction difficulty scale

The scale which represents the amount of difficulty the participant currently has in reading and following complex instructions (e.g., directions for a new medication), as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
C21201 Quality of Life - Plan keep appointment not weekly routine difficulty scale

The scale which represents the amount of difficulty the participant currently has in planning for and keeping appointments that are not part of their weekly routine (e.g., a therapy or doctor appointment, or a social gathering with friends and family), as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
C21202 Quality of Life - Manage time daily activity difficulty scale

The scale which represents the amount of difficulty the participant currently has in managing their time to do most of their daily activities, as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
C21203 Quality of Life - Plan activity ahead time difficulty scale

The scale which represents the amount of difficulty the participant currently has in planning an activity several days in advance (e.g., a meal, trip, or visit to friends), as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
C21204 Quality of Life - Organize difficulty scale

The scale which represents the amount of difficulty the participant currently has in getting things organized, as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
C21205 Quality of Life - Remember object location difficulty scale

The scale which represents the amount of difficulty the participant currently has in remembering where things were placed or put away (e.g., keys), as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
C21206 Quality of Life - Remember errand not written difficulty scale

The scale which represents the amount of difficulty the participant currently has in remembering a list of 4 to 5 errands without writing it down, as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
C21207 Quality of Life - Learn new task difficulty scale

The scale which represents the amount of difficulty the participant currently has in learning new tasks or instructions, as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
Displaying 526 - 550 of 740

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.