CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 869
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20405 Serious adverse events anticipated indicator

Indicate whether the adverse event was anticipated

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C20406 Serious adverse events comment text

Provide any additional information that pertains to the adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C20407 Adverse event reporting identifier name

A name of an authorized group or person reporting the adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C20408 Serious adverse event report type

Specify which type of report is being completed for the adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C20409 Adverse event attribution indicator

Indicator of whether the adverse event was cause by the treatment in question

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C20410 Serious adverse event not resolution indicator

Indicates whether the adverse event was not resolved

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C20411 Serious adverse event outcome status other text

Free-text field to specify an alternate outcome attributed to the serious adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C20412 Serious adverse event outcome status

Final status of the participant/subject related to the serious adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C20413 Investigator assessment concomitant medication specify text

The free-text field to specify the concomitant medication that might have caused the serious adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C20414 Investigator assessment intervention withdrawal specify text

The free-text field to specify the details of the withdrawal of study intervention that might have caused the serious adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C20415 Serious adverse event report completed date

Date when the report on the adverse event was completed

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C14123 Country of residence name

Country where the participant/subject currently lives

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21117 Subject name

Name of subject/participant

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21118 Subject mailing address name

Name of the mailing address of subject/participant

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21119 Subject home city name

Name of city in which the subject/participant lives

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21120 Subject home state province name

The name of the state or province that the subject/participant inhabits

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21121 Subject zip postal code number

The number of the subject/participant's zip/postal code

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21122 Subject home phone number

The home phone number of the subject/participant

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21123 Subject other phone number

The other phone number of the subject/participant

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21124 Subject email address name

The name of the email address of the subject/participant

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C18027 Comment text

Provide any additional information that pertains to the question

Supplemental Visit Checklist General (For all diseases) General (For all diseases)
C21108 Visit present indicator

Indicator for the presence of the subject at the visit

Supplemental Visit Checklist General (For all diseases) General (For all diseases)
C21109 Visit assessment complete type

Type of assessment completed during visit

Supplemental Visit Checklist General (For all diseases) General (For all diseases)
C21110 Last visit indicator

Indicator for the visit being the last one

Supplemental Visit Checklist General (For all diseases) General (For all diseases)
C21111 Form not completed indicator

Indicator for the incompletion of the form

Supplemental Visit Checklist General (For all diseases) General (For all diseases)
Displaying 51 - 75 of 869

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.