CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 869
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02205 Protocol deviation description text

Description of the protocol deviation which includes reasons and contributing factors

Supplemental Protocol Deviations General (For all diseases) General (For all diseases)
C20745 Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Social Activity General (For all diseases) General (For all diseases)
C21240 Quality of Life - Movement dark room no fall walk difficulty scale

The scale which represents the amount of difficulty the participant currently has in walking in a dark room without falling, as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C02309 Serious adverse event indicator

The indicator of whether the adverse event is serious.

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C12745 Electrophysiology neuromuscular jitter study blocking count

Count of pairs/endplates with blocking recorded for the neuromuscular jitter study being described

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21136 Quality of Life - Movement dress pullover shirt on difficulty scale

The scale which represents the amount of difficulty the participant currently has in putting on a pullover shirt, as part of Neuro-QOL Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C21218 Quality of Life - Reaction slow past week scale

The scale representing how often the participant reacted slowly to things that were said and done in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C12704 Electrophysiology sensory nerve onset or peak latency value

The onset or peak latency measured during the sensory nerve conduction study

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C02310 Adverse event CTCAE low level term name

Text that represents the Common Terminology Criteria for Adverse Events (CTCAE) low level term name for an adverse event

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental Vital Signs General (For all diseases) General (For all diseases)
C17396 Sex genotype type

The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Supplemental Screening Log General (For all diseases) General (For all diseases)
C20753 Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Social Activity General (For all diseases) General (For all diseases)
C21324 Quality of Life - Movement walk fifteen minute duration ability scale

The scale which represents the extent to which the participant was able to go for a walk of at least 15 minutes, as part of Neuro-QOL Lower Extremity Function and Patient-Reported Outcome Measurement Information System (PROMIS) Mobility

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C20391 Sex type

The sex of the subject/participant

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C12756 Electrophysiology blood pressure response Valsalva phase II early result

The blood pressure response to valsalva maneuver during Phase II early

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21144 Quality of Life - Movement fingernail trim ability scale

The scale which represents the extent to which the participant was able to trim their fingernails, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C21226 Quality of Life - Write task list difficulty scale

The scale which represents the amount of difficulty the participant currently has in writing notes to himself/herself or 'to do' lists, as part of Neuro-QOL Communication

Supplemental Neuro-QOL Adult Bank - Communication General (For all diseases) General (For all diseases)
C12713 Electrophysiology blink reflex test ipsilateral R2 latency value

Duration of ipsilateral R2 latency in the blink reflex test

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C00703 Tobacco use started age value

Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C01015 Physical exam performed indicator

Indicator of whether a physical exam was performed on the participant/subject

Supplemental Physical Exam General (For all diseases) General (For all diseases)
C19069 Screening visit eligibility other text

The free-text field related to 'Screening visit eligibility status' specifying other text. The status determined from screening criteria that indicates whether a participant/subject may be eligible for a study

Supplemental Screening Log General (For all diseases) General (For all diseases)
C20761 Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance time spent satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent performing daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Social Activity General (For all diseases) General (For all diseases)
C21241 Quality of Life - Satisfaction well being recent asssement scale

The scale representing how often the participant had a sense of well-being lately, as part of Neuro-QOL Positive Affect and Well-Being

Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being General (For all diseases) General (For all diseases)
Displaying 251 - 275 of 869

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.