CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2048-C21156	C21156	Quality of Life - Regular family activity limit ability past week scale	The scale representing how often the participant had to limit regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F0003-C02210	C02210	Enrolled in study indicator	Indicator of whether the participant/subject was enrolled into the clinical research study	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F1053-C08238	C08238	Imaging repetition gap duration	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2057-C21297	C21297	Quality of Life - Stigma illness uncomfortable other people recent assessment scale	The scale representing how often some people seemed uncomfortable with the participant because of their illness lately, as part of Neuro-QOL Stigma	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)
F2049-C20792	C20792	Quality of Life - Uneasiness assessment past week scale	The scale which represents how often the participant felt uneasy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	Supplemental	Neuro-QOL Adult Bank - Anxiety	True	General (For all diseases)	General (For all diseases)
F0009-C22703	C22703	Serious adverse event form completion indicator	Indicator of whether the Serious Adverse Event (SAE) form was completed following an adverse event	Supplemental	Adverse Events	False	General (For all diseases)	General (For all diseases)
F0037-C01010	C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Exam	False	General (For all diseases)	General (For all diseases)
F2055-C20761	C20761	Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance time spent satisfaction past week scale	The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent performing daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F2048-C21164	C21164	Quality of Life - Friend visit limit time past week scale	The scale representing how often the participant felt limited in the amount of time they had to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F0003-C18494	C18494	Screening visit ineligibility primary reason	The primary reason identified during a screening visit which makes the potential participant/subject not eligible for a study	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F2054-C21243	C21243	Quality of Life - Satisfication general life recent assessment scale	The scale representing how often the participant felt their life was satisfying lately, as part of Neuro-QOL Positive Affect and Well-Being	Supplemental	Neuro-QOL Adult Bank - Positive Affect and Well-Being	True	General (For all diseases)	General (For all diseases)
F0022-C02021	C02021	Study drug expected taken count	Count of expected amount of study drug taken	Supplemental	Study Drug Compliance	False	General (For all diseases)	General (For all diseases)
F1053-C18714	C18714	Imaging radio frequency coil channel count other text	The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F1062-C12766	C12766	Electrophysiology short pre-exercise compound muscle action potential measurement	The compound muscle action potential (CMAP) values measured at the pre-exercise intervals	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2059-C20554	C20554	Quality of Life in Neurological Disorders (Neuro-Qol) - Limit social activity fatigue assessment past week scale	The scale representing how often the participant had to limit social activity because of being tired in the past 7 days, as part of the Quality of Life in Neurological Disorders(Neuro-Qol)	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)
F2052-C20696	C20696	Quality of Life - Sadness assessment past week scale	The scale which represents how often the participant felt sad in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F1062-C12723	C12723	Electrophysiology repetitive nerve activation duration	Duration, in sec, of the activation technique used in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2057-C21304	C21304	Quality of Life - Stigma illness stranger stare recent assessment scale	The scale representing how often strangers tended to stare at the participant because of their illness lately, as part of Neuro-QOL Stigma	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)
F1055-C18696	C18696	Imaging dimension other text	The free-text field related to 'Imaging dimension type' specifying other text. Type of imaging dimension used	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F0025-C01701	C01701	Lab specimen collection date and time	Date (and time if applicable and known) when the specimen was collected	Supplemental	Laboratory Tests and Tracking	False	General (For all diseases)	General (For all diseases)
F1055-C08236	C08236	Imaging scanner software name	Name of the scanner software that runs the imaging camera	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F2059-C20573	C20573	Quality of Life in Neurological Disorders (Neuro-Qol) - Overall weakness fatigue assessement past week scale	The scale representing how often the participant felt weak all over in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)
F2052-C20732	C20732	Quality of Life - Hopelessness assessment past week scale	The scale which represents how often the participant felt hopeless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F1062-C12731	C12731	Needle electromyography motor unit action potential area measurement	The area value of the motor unit action potential (MUAP) measure during needle electromyography	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2057-C21312	C21312	Quality of Life - Stigma illness different feel compare other people recent assessment scale	The scale representing how often the participant felt different from others because of their illness lately, as part of Neuro-QOL Stigma	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.