CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 201 - 225 of 740
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10593 Imaging fat signal suppressed indicator

Indicator as to whether or not fat signal was suppressed in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C20741 Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity time amount satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with the amount of time he spent doing leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21147 Quality of Life - Family responsibility maintain past week scale

The scale representing how often the participant could keep up with their family responsibilities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C02025 Medication prior or concomitant RXNorm code

Code for name of the prior/concomitant agent or drug administered

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C00316 Medical history condition end date and time

Date (and time, if applicable and known) for the end of an event in the participant's medical history

Supplemental Medical History General (For all diseases) General (For all diseases)
C21288 Quality of Life - Force awake morning past week scale

The scale representing how often the participant had to force himself/herself to get up in the morning in the past 7 days, as part of Neuro-QOL Sleep Disturbance

Supplemental Neuro-QOL Adult Bank - Sleep Disturbance General (For all diseases) General (For all diseases)
C20776 Quality of Life - Startle ease assessment past week scale

The scale which represents how often the participant was easily startled in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C12508 Imaging radio frequency coil function type

The function of the radio frequency (RF) coil used

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C20750 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship time spent visit satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with the amount of time spent visiting his/her friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21155 Quality of Life - Family need satisfaction problem past week scale

The scale representing how often the participant had trouble meeting the needs of their family in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C02010 Study drug dosage form text

Text of dosage form used to administer study drug

Supplemental Study Drug Compliance General (For all diseases) General (For all diseases)
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C59686 COVID-19 status reason

Reason related to the status of whether the participant/subject thinks that they have or have had coronavirus disease 2019 (COVID-19)

Supplemental Medical History General (For all diseases) General (For all diseases)
C21296 Quality of Life - Stigma illness embarrassment recent assessment scale

The scale representing how often the participant felt embarrassed about their illness lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C20791 Quality of Life - Relax trouble assessment past week scale

The scale which represents how often the participant had trouble relaxing in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C20759 Patient-Reported Outcome Measurement Information System (PROMIS) - Work ability satisfaction past week scale

The scale which represents how often the participant's satisfaction with his/her ability to work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21163 Quality of Life - Friend activity satisfactory past week scale

The scale representing how often the participant was able to do all of the activities with friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C02017 Study drug start date and time

Date (and time, if applicable and known) on which the study drug usage begins

Supplemental Study Drug Dosing General (For all diseases) General (For all diseases)
C18719 Imaging slice orientation type other text

The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C21196 Quality of Life - Death worry past week scale

The scale representing how often the participant worried about dying in the past 7 days, as part of Neuro-QOL Anxiety

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C21267 Quality of Life - Friend regular activity limitation bother past week scale

The scale which represents the extent to which the participant was bothered by limitations in their regular activities with friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21171 Quality of Life - Hobby leisure activity decrease time period past week scale

The scale representing how often the participant had to do their hobbies or leisure activities for shorter periods of time than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.