CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 843
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56469 PROMIS - Pain Behavior when pain flung arm limb around scale

Scale related to the individual feeling as if when in pain he/she flung his/her arms or limbs around in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Item Bank v1.1 - Pain Behavior False General (For all diseases) General (For all diseases)
C21276 Quality of Life - Community activity ability other people disappointment self-assessment past week scale

The scale which represents the extent to which the participant felt that others were disappointed in their ability to do community activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C21180 Quality of Life - Work usual abililty complete past week scale

The scale representing how often the participant was able to do all of their usual work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C20687 Patient-Reported Outcome Measure Information System (PROMIS) - T-score value

The value of the T-score, a standardized score with a mean of 50 and a standard deviation (SD) of 10 representing the rescaled raw score, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS - Scoring False General (For all diseases) General (For all diseases)
C10584 Imaging phase resolution percentage value

The value in percent of the phase resolution used in imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False General (For all diseases) General (For all diseases)
C21257 Quality of Life - Satisfaction confident recent assessment scale

The scale representing how often the participant felt confident lately, as part of Neuro-QOL Positive Affect and Well-Being

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
C10842 Imaging analysis software name

Name of the software used for data processing or analysis of the imaging study

 Supplemental Diffusion Tensor Imaging (DTI) False General (For all diseases) General (For all diseases)
C56477 PROMIS - Pain Behavior when pain clench jaw grit teeth scale

Scale related to the individual feeling as if when in pain he/she clenched his/her jaw or gritted his/her teeth in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Item Bank v1.1 - Pain Behavior False General (For all diseases) General (For all diseases)
C21284 Quality of Life - Work home limitation bother past week scale

The scale which represents the extent to which the participant was bothered by limitations in performing their work (include work at home) in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C21188 Quality of Life - Work usual ability past week scale

The scale representing how often the participant was able to do all of their usual work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C54693 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out physical activity scale

Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health

 Supplemental PROMIS Item Bank v1.2 - Global Health True General (For all diseases) General (For all diseases)
C10594 Imaging parallel acquisition used indicator

Indicator of whether a parallel acquisition method is used in imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False General (For all diseases) General (For all diseases)
C20742 Patient-Reported Outcome Measurement Information System (PROMIS) - Social activity current level satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her current level of social activity in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C21148 Quality of Life - Regular family activity ability past week scale

The scale representing how often the participant was able to do all of their regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C17807 Imaging parallel acquisition details text

Text description of any additional details about the parallel acquisition used, if any, in the MRI sequence being reported

 Supplemental Diffusion Tensor Imaging (DTI) False General (For all diseases) General (For all diseases)
C56485 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain interfere ability concentrate scale

Scale related to how much pain interfered with an individual's ability to concentrate in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C21289 Quality of Life - Bad dream sleep trouble past week scale

The scale representing how often the participant had trouble sleeping because of dreams in the past 7 days, as part of Neuro-QOL Sleep Disturbance

 Supplemental Neuro-QOL Adult Bank - Sleep Disturbance True General (For all diseases) General (For all diseases)
C20779 Quality of Life - Fidgety assessment past week scale

The scale which represents how often the participant felt fidgety in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C56445 PROMIS - Pain Behavior when pain move extreme slow scale

Scale related to an individual feeling as if when he/she was in pain he/she moved extremely slowly in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Item Bank v1.1 - Pain Behavior False General (For all diseases) General (For all diseases)
C12509 Imaging radio frequency coil category

Type of radio frequency (RF) coil(s) category used for the body part scanned

 Supplemental Magnetic Resonance Imaging (MRI) False General (For all diseases) General (For all diseases)
C20751 Patient-Reported Outcome Measurement Information System (PROMIS) - Home fun ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun at home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C21156 Quality of Life - Regular family activity limit ability past week scale

The scale representing how often the participant had to limit regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C04510 ECG QRS duration

Duration in milliseconds (msec) of the QRS complex for the electrocardiogram (ECG/EKG) being recorded

 Supplemental Electrocardiogram (ECG) False General (For all diseases) General (For all diseases)
C02216 Exclusion criterion not met number

Exclusion criterion number(s) the participant/subject did not meet

 Supplemental Inclusion and Exclusion Criteria False General (For all diseases) General (For all diseases)
C20397 Serious adverse event relevant history text

The text that describes relevant history including pre-existing medical conditions

 Supplemental Serious Adverse Events False General (For all diseases) General (For all diseases)
Displaying 201 - 225 of 843

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.