CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 755
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20395 Serious adverse event laboratory data text

The free-text field that describes the relevant tests or laboratory data specific to the serious adverse event

 Supplemental Serious Adverse Events 0 General (For all diseases) General (For all diseases)
C21238 Quality of Life - Movement outdoor slippery surface walk difficulty scale

The scale which represents the amount of difficulty the participant currently has in walking on a slippery surface, outdoors, as part of Neuro-QOL Lower Extremity Function

 Supplemental Neuro-QOL Adult Bank - Lower Extremity Function True General (For all diseases) General (For all diseases)
C12743 Electrophysiology neuromuscular jitter mean consecutive difference average value

Value, in microseconds, for the average of mean consecutive differences (MCD) recorded for the neuromuscular jitter study being described

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C21134 Quality of Life - Movement shampoo hair ability scale

The scale which represents the extent to which the participant was able to shampoo their hair, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity

 Supplemental Neuro-QOL Adult Bank - Upper Extremity True General (For all diseases) General (For all diseases)
C05123 Study therapy session expected duration

Duration expected of the study therapy session in minutes according to study protocol

 Supplemental Study Therapies Compliance False General (For all diseases) General (For all diseases)
C21216 Quality of Life - Familiar person name remember difficulty past week scale

The scale representing how often the participant had trouble remembering the name of a familiar person in the past 7 days, as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
C12702 Electrophysiology sensory nerve impulse direction type

The impulse direction put on the nerve during the sensory nerve conduction study

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C00702 Alcohol use started age value

Age in years when participant/subject started ingesting alcoholic beverages, including social drinking

 Supplemental Behavioral History False General (For all diseases) General (For all diseases)
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

 Supplemental Vital Signs False General (For all diseases) General (For all diseases)
C19070 Screening visit ineligibility primary other text

The free-text field related to 'Screening visit ineligibility primary reason' specifying other text. The primary reason identified during a screening visit which makes the potential participant/subject not eligible for a study

 Supplemental Screening Log False General (For all diseases) General (For all diseases)
C20747 Patient-Reported Outcome Measurement Information System (PROMIS) - Outside home fun ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun outside of the home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C21153 Quality of Life - Daily routine perform past week scale

The scale representing how often the participant was able to perform their daily routines in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C02004 Study drug dispensed date and time

Date (and time, if applicable and known) on which a participant/subject was given or applied a therapeutic agent (drug, intervention therapy) used in a clinical trial protocol

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C18656 Imaging diffusion fifth b value

Value, in square millimeters per second, of the fifth b-value used in diffusion acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False General (For all diseases) General (For all diseases)
C00022 Ethnicity USA maternal category

Ethnicity the participant's mother most closely identifies with

 Supplemental Demographics 0 General (For all diseases) General (For all diseases)
C20414 Serious adverse event investigator assessment intervention withdrawal specify text

The free-text field to specify the details of the withdrawal of study intervention that might have caused the serious adverse event, in the opinion of the principal investigator

 Supplemental Serious Adverse Events 0 General (For all diseases) General (For all diseases)
C20789 Quality of Life - Worry many situation assessment past week scale

The scale which represents how often the many situations made the participant worry in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C12540 Imaging T2 measurement indicator

Indicator of whether T2 measurement was used

 Supplemental Magnetic Resonance Imaging (MRI) False General (For all diseases) General (For all diseases)
C20756 Patient-Reported Outcome Measurement Information System (PROMIS) - Work important completion ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do the work that is really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C21161 Quality of Life - Friend satisfy expectation activity ability past week scale

The scale representing how often the participant was able to do all of the activities with friends that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C02009 Study drug end date and time

Date (and time, if applicable and known) the administration of the study drug ended

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

 Supplemental Diffusion Tensor Imaging (DTI) False General (For all diseases) General (For all diseases)
C21329 Quality of Life - Movement flight stair handrail up down difficulty scale

The scale which represents the amount of difficulty the participant currently has in going up and down a flight of stairs inside, using a handrail, as part of Neuro-QOL Lower Extremity Function

 Supplemental Neuro-QOL Adult Bank - Lower Extremity Function True General (For all diseases) General (For all diseases)
C12761 Electrophysiology quantitative sweat function distal leg measurement

The amount of sweat collected on the distal leg

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C00004 Birth country ISO code

Code (ISO 3166-1 alpha-2 code) for country where the participant was born

 Supplemental Demographics 0 General (For all diseases) General (For all diseases)
Displaying 176 - 200 of 755

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.