CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 151 - 175 of 869

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0038-C02210	C02210	Enrolled in study indicator	Indicator of whether the participant/subject was enrolled into the clinical research study	Supplemental	Informed Consent and Enrollment	False	General (For all diseases)	General (For all diseases)
F0003-C02210	C02210	Enrolled in study indicator	Indicator of whether the participant/subject was enrolled into the clinical research study	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	General (For all diseases)	General (For all diseases)
F0016-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	General (For all diseases)	General (For all diseases)
F0016-C00022	C00022	Ethnicity USA maternal category	Ethnicity the participant/subject's mother most closely identifies with	Supplemental	Demographics	False	General (For all diseases)	General (For all diseases)
F0016-C00021	C00021	Ethnicity USA paternal category	Ethnicity the participant/subject's father most closely identifies with	Supplemental	Demographics	False	General (For all diseases)	General (For all diseases)
F0004-C17447	C17447	Event description text	The free-text field to describe the event	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F0003-C02216	C02216	Exclusion criterion not met number	Exclusion criterion number(s) the participant/subject did not meet	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F0012-C02216	C02216	Exclusion criterion not met number	Exclusion criterion number(s) the participant/subject did not meet	Supplemental	Inclusion and Exclusion Criteria	False	General (For all diseases)	General (For all diseases)
F0011-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Family History	False	General (For all diseases)	General (For all diseases)
F0011-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	General (For all diseases)	General (For all diseases)
F0011-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	General (For all diseases)	General (For all diseases)
F0011-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	General (For all diseases)	General (For all diseases)
F0011-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	General (For all diseases)	General (For all diseases)
F0006-C21111	C21111	Form not completed indicator	Indicator for the incompletion of the form	Supplemental	Visit Checklist	False	General (For all diseases)	General (For all diseases)
F0016-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	Demographics	False	General (For all diseases)	General (For all diseases)
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	General (For all diseases)	General (For all diseases)
F0016-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	Demographics	False	General (For all diseases)	General (For all diseases)
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	General (For all diseases)	General (For all diseases)
F0013-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0003-C17399	C17399	Global unique identifier number	Number representing the Global Unique ID (GUID) which uniquely identifies a participant	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F0037-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Physical Exam	False	General (For all diseases)	General (For all diseases)
F0026-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0026-C01523	C01523	Head circumference unit of measure	Unit of measure for the head circumference numerical value	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0026-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.