CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 869
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs General (For all diseases) General (For all diseases)
C02211 Enrolled in study date and time

Date (and time, if applicable and known) the participant/subject is enrolled into the study

Supplemental Screening Log General (For all diseases) General (For all diseases)
C20750 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship time spent visit satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with the amount of time spent visiting his/her friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Social Activity General (For all diseases) General (For all diseases)
C21321 Quality of Life - Movement push open heavy door ability scale

The scale which represents the extent to which the participant was able to push open a heavy door, as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C17447 Event description text

The free-text field to describe the event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C12753 Electrophysiology expiratory inspiratory ratio

Ratio of the expiratory time to the inspiratory time during the breathing cycle measured during autonomic function testing

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21141 Quality of Life - Movement full food plate hold ability scale

The scale which represents the extent to which the participant was able to hold a plate full of food, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C21223 Quality of Life - Trouble start simple task past week scale

The scale representing how often the participant had trouble getting started on very simple tasks in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C12709 Electrophysiology blink reflex test electrode type

Type of electrode used for the blink reflex test

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C00700 Alcohol use stopped age value

Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C01012 Physical exam body system result type

Assessment result of each body system examined

Supplemental Physical Exam General (For all diseases) General (For all diseases)
C18495 Protocol ID number

The designated number used to identify the protocol or study to which participants/subjects will be enrolled

Supplemental Screening Log General (For all diseases) General (For all diseases)
C20758 Patient-Reported Outcome Measurement Information System (PROMIS) - Family accomplishment happy ability satisfaction past week scale

The scale which represents how often the participant was happy with how much he/she did for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Social Activity General (For all diseases) General (For all diseases)
C21329 Quality of Life - Movement flight stair handrail up down difficulty scale

The scale which represents the amount of difficulty the participant currently has in going up and down a flight of stairs inside, using a handrail, as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C20396 Serious adverse event concomitant medications text

The text that describes the concomitant medications taken

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C12761 Electrophysiology quantitative sweat function distal leg measurement

The amount of sweat collected on the distal leg

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C20547 Quality of Life in Neurological Disorders (Neuro-Qol) - Fatigue assessment past week scale

The scale representing how often the participant felt fatigued in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

Supplemental Neuro-QOL Adult Bank - Fatigue General (For all diseases) General (For all diseases)
C10576 Imaging in plane resolution axis 1 measurement

Axis 1 of in-plane spatial resolution used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C20690 Quality of Life - Worthlessness assessment past week scale

The scale which represents how often the participant felt worthless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C12718 Electrophysiology repetitive nerve stimulation study preactivation number

The numeric identifier corresponding to the amplitude and area values recorded for preactivation during the repetitive nerve stimulation study

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C00708 Alcohol use related to hospitalization indicator

Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C02211 Enrolled in study date and time

Date (and time, if applicable and known) the participant/subject is enrolled into the study

Supplemental Informed Consent and Enrollment General (For all diseases) General (For all diseases)
C21118 Subject mailing address name

Name of the mailing address of subject/participant

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C20404 Investigator assessment concurrent disorder specify text

The free-text field to specify the concurrent disorder that might have caused the serious adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
Displaying 126 - 150 of 869

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.