CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 101 - 125 of 755

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2058-C21134	C21134	Quality of Life - Movement shampoo hair ability scale	The scale which represents the extent to which the participant was able to shampoo their hair, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
F0299-C05123	C05123	Study therapy session expected duration	Duration expected of the study therapy session in minutes according to study protocol	Supplemental	Study Therapies Compliance	False	General (For all diseases)	General (For all diseases)
F2050-C21216	C21216	Quality of Life - Familiar person name remember difficulty past week scale	The scale representing how often the participant had trouble remembering the name of a familiar person in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C12702	C12702	Electrophysiology sensory nerve impulse direction type	The impulse direction put on the nerve during the sensory nerve conduction study	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0010-C00702	C00702	Alcohol use started age value	Age in years when participant/subject started ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F0026-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0003-C19070	C19070	Screening visit ineligibility primary other text	The free-text field related to 'Screening visit ineligibility primary reason' specifying other text. The primary reason identified during a screening visit which makes the potential participant/subject not eligible for a study	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F0004-C20403	C20403	Serious adverse event investigator assessment reason	Reason in the opinion of the principal investigator that is attributed as the cause of the serious adverse event	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F0016-C00022	C00022	Ethnicity USA maternal category	Ethnicity the participant's mother most closely identifies with	Supplemental	Demographics	0	General (For all diseases)	General (For all diseases)
F2049-C20789	C20789	Quality of Life - Worry many situation assessment past week scale	The scale which represents how often the many situations made the participant worry in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	Supplemental	Neuro-QOL Adult Bank - Anxiety	True	General (For all diseases)	General (For all diseases)
F1055-C12540	C12540	Imaging T2 measurement indicator	Indicator of whether T2 measurement was used	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F2055-C20756	C20756	Patient-Reported Outcome Measurement Information System (PROMIS) - Work important completion ability satisfaction past week scale	The scale which represents the extent of the participant's satisfaction with his/her ability to do the work that is really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F2048-C21161	C21161	Quality of Life - Friend satisfy expectation activity ability past week scale	The scale representing how often the participant was able to do all of the activities with friends that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F0004-C20413	C20413	Serious adverse event investigator assessment concomitant medication specify text	The free-text field to specify the concomitant medication that might have caused the serious adverse event, in the opinion of the principal investigator	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F0024-C02009	C02009	Study drug end date and time	Date (and time, if applicable and known) the administration of the study drug ended	Supplemental	Study Drug Dosing	False	General (For all diseases)	General (For all diseases)
F1053-C18716	C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2053-C21329	C21329	Quality of Life - Movement flight stair handrail up down difficulty scale	The scale which represents the amount of difficulty the participant currently has in going up and down a flight of stairs inside, using a handrail, as part of Neuro-QOL Lower Extremity Function	Supplemental	Neuro-QOL Adult Bank - Lower Extremity Function	True	General (For all diseases)	General (For all diseases)
F1062-C12761	C12761	Electrophysiology quantitative sweat function distal leg measurement	The amount of sweat collected on the distal leg	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0016-C00004	C00004	Birth country ISO code	Code (ISO 3166-1 alpha-2 code) for country where the participant was born	Supplemental	Demographics	0	General (For all diseases)	General (For all diseases)
F2055-C21265	C21265	Quality of Life - Friend need ability disappointment past week scale	The scale which represents the extent to which the participant was disappointed in their ability to meet the needs of their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F2048-C21169	C21169	Quality of Life - Community activity want complete past week scale	The scale representing how often the participant was able to do all of the community activities that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F0004-C60374	C60374	Serious adverse event intervention require prevent permanent impairment damage indicator	Indicator of whether the serious adverse event required intervention to prevent permanent impairment or damage	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F1055-C08239	C08239	Imaging echo duration	Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F2054-C21246	C21246	Quality of Life - Satisfaction cheerful recent assessment scale	The scale representing how often the participant felt cheerful lately, as part of Neuro-QOL Positive Affect and Well-Being	Supplemental	Neuro-QOL Adult Bank - Positive Affect and Well-Being	True	General (For all diseases)	General (For all diseases)
F1062-C12769	C12769	Electrophysiology long pre-exercise compound muscle action potential time	The time intervals used to measure compound muscle action potential (CMAP) during post-exercise for the long exercise test	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.