CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 676 - 700 of 755
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12693 Electrophysiology H-reflex nerve segment name

The nerve segment used for the H-reflex test

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C22702 Institutional review board notification indicator

Indicator of whether the Institutional Review Board (IRB) was notified following an adverse event

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

Supplemental Vital Signs General (For all diseases) General (For all diseases)
C18492 Screening visit date and time

Date (and time, if applicable and known) the participant/subject was interviewed and screened for potential enrollment into the study

Supplemental Screening Log General (For all diseases) General (For all diseases)
C20396 Serious adverse event concomitant medication text

The free-text field that describes the concomitant medications taken specific to the serious adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C21239 Quality of Life - Movement no handrail stair climb difficulty scale

The scale which represents the amount of difficulty the participant currently has in climbing stairs step over step without a handrail (alternating feet), as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C12744 Electrophysiology neuromuscular jitter mean consecutive difference abnormal count

Count of pairs/endplates with abnormal mean consecutive difference (MCD) recorded for the neuromuscular jitter study being described

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21135 Quality of Life - Movement spoon eat meal difficulty scale

The scale which represents the amount of difficulty the participant currently has in using a spoon to eat a meal, as part of Neuro-QOL Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C02495 Imaging scanner strength value type

Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C21217 Quality of Life - Clear thought difficulty past week scale

The scale representing how often the participant had trouble thinking clearly in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C12703 Electrophysiology sensory nerve segment length measurement

The sensory nerve segment length measured during the sensory nerve conduction study

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C00703 Tobacco use started age value

Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental Vital Signs General (For all diseases) General (For all diseases)
C19071 Screening visit not enrolled primary other text

The free-text field related to 'Screening visit not enrolled primary reason' specifying other text. The primary reason to indicate why the potential participant/subject is not enrolled in a study during a screening visit

Supplemental Screening Log General (For all diseases) General (For all diseases)
C21323 Quality of Life - Movement without assistance floor stand ability scale

The scale which represents the extent to which the participant was able to get up off the floor from lying on their back without help, as part of Neuro-QOL Lower Extremity Function and Patient-Reported Outcome Measurement Information System (PROMIS) Mobility

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C12755 Electrophysiology Valsalva ratio

The Valsalva ratio measured during autonomic function testing

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21143 Quality of Life - Movement button shirt ability scale

The scale which represents the extent to which the participant was able to button their shirt, as part of Neuro-QOL Upper Extremity and Patient Repoted Outcome Measurement Information System (PROMIS) Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C21225 Quality of Life - Trouble plan task step past week scale

The scale representing how often the participant had trouble planning out steps of a task in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C12712 Electrophysiology blink reflex test R1 latency value

Duration of R1 latency in the blink reflex test

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21293 Quality of Life - Stigma illness recent assessment scale

The scale representing how often the participant was avoided by some people because of their illness lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C00711 Tobacco prior use indicator

Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C01014 Physical exam abnormality significance type

An indication if the physical exam abnormality in a specific body system is clinically significant

Supplemental Physical Exam General (For all diseases) General (For all diseases)
C21123 Subject other phone number

The other phone number of the subject/participant

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C12541 Imaging contrast agent injection time

Time contrast medium was administered

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
Displaying 676 - 700 of 755

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.