CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 740
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21177 Quality of Life - Outside home entertainment limit ability past week scale

The scale representing how often the participant had to limit the things they do for fun outside their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C18729 Lab panel other text

The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C21254 Quality of Life - Satisfaction future event interest recent assessment scale

The scale representing how often the participant looked forward with enjoyment to upcoming events lately, as part of Neuro-QOL Positive Affect and Well-Being

Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being General (For all diseases) General (For all diseases)
C02003 Medication prior or concomitant ongoing indicator

Indicator of or description that the prior/concomitant medication usage is ongoing

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C10685 Imaging slice orientation type

Type of slice orientation used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C12693 Electrophysiology H-reflex nerve segment name

The nerve segment used for the H-reflex test

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C02301 Adverse event end date and time

Date (and time, if applicable and known) on which the adverse event discontinued/stopped

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

Supplemental Vital Signs General (For all diseases) General (For all diseases)
C02204 Protocol deviation occurrence date and time

Date (and time, if applicable and known) on which the protocol deviation occurred

Supplemental Protocol Deviations General (For all diseases) General (For all diseases)
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C21239 Quality of Life - Movement no handrail stair climb difficulty scale

The scale which represents the amount of difficulty the participant currently has in climbing stairs step over step without a handrail (alternating feet), as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C12744 Electrophysiology neuromuscular jitter mean consecutive difference abnormal count

Count of pairs/endplates with abnormal mean consecutive difference (MCD) recorded for the neuromuscular jitter study being described

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21135 Quality of Life - Movement spoon eat meal difficulty scale

The scale which represents the amount of difficulty the participant currently has in using a spoon to eat a meal, as part of Neuro-QOL Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C02495 Imaging scanner strength value type

Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C21217 Quality of Life - Clear thought difficulty past week scale

The scale representing how often the participant had trouble thinking clearly in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C12703 Electrophysiology sensory nerve segment length measurement

The sensory nerve segment length measured during the sensory nerve conduction study

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C02309 Serious adverse event indicator

The indicator of whether the adverse event is serious.

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental Vital Signs General (For all diseases) General (For all diseases)
C02217 Inclusion criterion not met number

Inclusion criterion number(s) the participant/subject did not meet

Supplemental Screening Log General (For all diseases) General (For all diseases)
C20394 Serious adverse event end date and time

Date (and time, if applicable and known) on which the serious adverse event discontinued/stopped

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C21323 Quality of Life - Movement without assistance floor stand ability scale

The scale which represents the extent to which the participant was able to get up off the floor from lying on their back without help, as part of Neuro-QOL Lower Extremity Function and Patient-Reported Outcome Measurement Information System (PROMIS) Mobility

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C12755 Electrophysiology Valsalva ratio

The Valsalva ratio measured during autonomic function testing

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21143 Quality of Life - Movement button shirt ability scale

The scale which represents the extent to which the participant was able to button their shirt, as part of Neuro-QOL Upper Extremity and Patient Repoted Outcome Measurement Information System (PROMIS) Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
Displaying 51 - 75 of 740

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.