CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 426 - 450 of 740
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21202 Quality of Life - Manage time daily activity difficulty scale

The scale which represents the amount of difficulty the participant currently has in managing their time to do most of their daily activities, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C10777 Electrophysiology study type

Type of electrophysiology study conducted

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21111 Form not completed indicator

Indicator for the incompletion of the form

Supplemental Visit Checklist General (For all diseases) General (For all diseases)
C01541 Weight measurement

Measurement of participant's weight

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C21232 Quality of Life - Mistake self critical past week scale

The scale representing how often the participant was critical of himself/herself for their mistakes in the past 7 days, as part of Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C12737 Needle electromyography interference pattern analysis technique name

The interference pattern technique used for analysis measure during needle electromyography

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21128 Quality of Life - Movement brush teeth ability scale

The scale which represents the extent to which the participant was able to brush their teeth, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C04515 ECG ventricular arrhythmia type

Type of ventricular arrythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram (ECG) General (For all diseases) General (For all diseases)
C21210 Quality of Life - Several repeat read past week scale

The scale representing how often the participant had to read something serveral times to understand it in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C12696 Electrophysiology motor nerve segment name

The name of the segment used for the motor nerve conduction study

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C02302 Adverse event other action taken type

Type of action taken due to adverse event other than action taken with study intervention/ treatment

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Vital Signs General (For all diseases) General (For all diseases)
C02205 Protocol deviation description text

Description of the protocol deviation which includes reasons and contributing factors

Supplemental Protocol Deviations General (For all diseases) General (For all diseases)
C12232 Laboratory director name

Name of laboratory director where assessment was performed

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C21240 Quality of Life - Movement dark room no fall walk difficulty scale

The scale which represents the amount of difficulty the participant currently has in walking in a dark room without falling, as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C12745 Electrophysiology neuromuscular jitter study blocking count

Count of pairs/endplates with blocking recorded for the neuromuscular jitter study being described

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21136 Quality of Life - Movement dress pullover shirt on difficulty scale

The scale which represents the amount of difficulty the participant currently has in putting on a pullover shirt, as part of Neuro-QOL Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C21218 Quality of Life - Reaction slow past week scale

The scale representing how often the participant reacted slowly to things that were said and done in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C12704 Electrophysiology sensory nerve onset or peak latency value

The onset or peak latency measured during the sensory nerve conduction study

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C02310 Adverse event CTCAE low level term name

Text that represents the Common Terminology Criteria for Adverse Events (CTCAE) low level term name for an adverse event

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental Vital Signs General (For all diseases) General (For all diseases)
C17396 Sex genotype type

The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Supplemental Screening Log General (For all diseases) General (For all diseases)
C20395 Serious adverse event laboratory data text

The text that describes the relevant tests or laboratory data specific to the serious adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C21324 Quality of Life - Movement walk fifteen minute duration ability scale

The scale which represents the extent to which the participant was able to go for a walk of at least 15 minutes, as part of Neuro-QOL Lower Extremity Function and Patient-Reported Outcome Measurement Information System (PROMIS) Mobility

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
Displaying 426 - 450 of 740

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.