CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 351 - 375 of 740
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20571 Quality of Life in Neurological Disorders (Neuro-Qol) - Poor appetite fatigue assessment past week scale

The scale representing how often the participant was too tired to eat in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

Supplemental Neuro-QOL Adult Bank - Fatigue General (For all diseases) General (For all diseases)
C21110 Last visit indicator

Indicator for the visit being the last one

Supplemental Visit Checklist General (For all diseases) General (For all diseases)
C10593 Imaging fat signal suppressed indicator

Indicator as to whether or not fat signal was suppressed in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C20730 Quality of Life - Unhappiness assessment past week scale

The scale which represents how often the participant felt unhappy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C12729 Needle electromyography spontaneous activity type

The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21310 Quality of Life - Stigma illness burden worry recent assessment scale

The scale representing how often the participant worried that he/she was a burden to others because of their illness lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C04507 ECG complete bundle branch block status

Status of complete bundle branch block on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram (ECG) General (For all diseases) General (For all diseases)
C21202 Quality of Life - Manage time daily activity difficulty scale

The scale which represents the amount of difficulty the participant currently has in managing their time to do most of their daily activities, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C10777 Electrophysiology study type

Type of electrophysiology study conducted

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C01541 Weight measurement

Measurement of participant's weight

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C02301 Adverse event end date and time

Date (and time, if applicable and known) on which the adverse event discontinued/stopped

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C21232 Quality of Life - Mistake self critical past week scale

The scale representing how often the participant was critical of himself/herself for their mistakes in the past 7 days, as part of Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C12737 Needle electromyography interference pattern analysis technique name

The interference pattern technique used for analysis measure during needle electromyography

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21128 Quality of Life - Movement brush teeth ability scale

The scale which represents the extent to which the participant was able to brush their teeth, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C02204 Protocol deviation occurrence date and time

Date (and time, if applicable and known) on which the protocol deviation occurred

Supplemental Protocol Deviations General (For all diseases) General (For all diseases)
C04515 ECG ventricular arrhythmia type

Type of ventricular arrythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram (ECG) General (For all diseases) General (For all diseases)
C21210 Quality of Life - Several repeat read past week scale

The scale representing how often the participant had to read something serveral times to understand it in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C12696 Electrophysiology motor nerve segment name

The name of the segment used for the motor nerve conduction study

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Vital Signs General (For all diseases) General (For all diseases)
C12232 Laboratory director name

Name of laboratory director where assessment was performed

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C02309 Serious adverse event indicator

The indicator of whether the adverse event is serious.

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C21240 Quality of Life - Movement dark room no fall walk difficulty scale

The scale which represents the amount of difficulty the participant currently has in walking in a dark room without falling, as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C12745 Electrophysiology neuromuscular jitter study blocking count

Count of pairs/endplates with blocking recorded for the neuromuscular jitter study being described

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21136 Quality of Life - Movement dress pullover shirt on difficulty scale

The scale which represents the amount of difficulty the participant currently has in putting on a pullover shirt, as part of Neuro-QOL Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C02217 Inclusion criterion not met number

Inclusion criterion number(s) the participant/subject did not meet

Supplemental Screening Log General (For all diseases) General (For all diseases)
Displaying 351 - 375 of 740

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.