CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 301 - 325 of 755
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00712 Subscribed drug or substance illicitly used category

Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C01015 Physical exam performed indicator

Indicator of whether a physical exam was performed on the participant/subject

Supplemental Physical Exam General (For all diseases) General (For all diseases)
C21124 Subject email address name

The name of the email address of the subject/participant

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C20550 Quality of Life in Neurological Disorders (Neuro-Qol) - Frustration tired for action fatigue assessment past week scale

The scale representing how often the participant felt frustrated by being too tired to do the things they wanted to do in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

Supplemental Neuro-QOL Adult Bank - Fatigue General (For all diseases) General (For all diseases)
C20693 Quality of Life - Other people withdrawal assessment past week scale

The scale which represents how often the participant withdrew from other people in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C12721 Electrophysiology repetitive nerve activation technique type

Indicator of the activation technique used in the repetitive nerve study being recorded

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21302 Quality of Life - Stigma illness ridicule recent assessment scale

The scale representing how often people made fun of the participant because of their illness lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event

Supplemental Family History General (For all diseases) General (For all diseases)
C02214 Randomized date and time

Date (and time, if applicable and known) the participant/subject is randomly assigned (i.e., by chance not choice) to an intervention/treatment group or control group

Supplemental Informed Consent and Enrollment General (For all diseases) General (For all diseases)
C21194 Quality of Life - Physical health worry past week scale

The scale which represents how often the participant worried about their physical health, as part of Neuro-QOL Anxiety

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C18703 Imaging parallel acquisition used other text

The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C21114 Visit post baseline day count

The number of days since baseline visit

Supplemental Visit Schedule General (For all diseases) General (For all diseases)
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C20571 Quality of Life in Neurological Disorders (Neuro-Qol) - Poor appetite fatigue assessment past week scale

The scale representing how often the participant was too tired to eat in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

Supplemental Neuro-QOL Adult Bank - Fatigue General (For all diseases) General (For all diseases)
C20730 Quality of Life - Unhappiness assessment past week scale

The scale which represents how often the participant felt unhappy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C12729 Needle electromyography spontaneous activity type

The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21310 Quality of Life - Stigma illness burden worry recent assessment scale

The scale representing how often the participant worried that he/she was a burden to others because of their illness lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C04507 ECG complete bundle branch block status

Status of complete bundle branch block on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram (ECG) General (For all diseases) General (For all diseases)
C21202 Quality of Life - Manage time daily activity difficulty scale

The scale which represents the amount of difficulty the participant currently has in managing their time to do most of their daily activities, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C10777 Electrophysiology study type

Type of electrophysiology study conducted

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C02306 Adverse event start date and time

Date (and time, if applicable and known) on which the adverse event was first evident

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C18729 Lab panel other text

The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C02209 Informed consent obtained indicator

Indicator of whether informed consent was obtained for the participant/subject to participate in the clinical research study

Supplemental Screening Log General (For all diseases) General (For all diseases)
C02310 Adverse event CTCAE term name

Name that represents the Common Terminology Criteria for Adverse Events (CTCAE) term for an adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C21232 Quality of Life - Mistake self critical past week scale

The scale representing how often the participant was critical of himself/herself for their mistakes in the past 7 days, as part of Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.