CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1062-C12764	C12764	Electrophysiology tilt study blood pressure change result	Blood Pressure changes experienced from a tilt test	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0016-C18385	C18385	Birth time	Time the participant was born	Supplemental	Demographics	0	General (For all diseases)	General (For all diseases)
F1053-C10584	C10584	Imaging phase resolution percentage value	The value in percent of the phase resolution used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2055-C21268	C21268	Quality of Life - Household chore satisfaction ability past week scale	The scale which represents the extent to which the participant was satisfied with their ability to do household chores and tasks in the past 7 days, as part of Neuro-QOL Satisfaction with SRA	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F2048-C21172	C21172	Quality of Life - Social activity outside home limit complete past week scale	The scale representing how often the participant had to limit activities outside of their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F0004-C60377	C60377	Serious adverse event other important medical event indicator	Indicator of whether the serious adverse event is a medically important event not covered by other 'serious' criteria	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F1055-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F2054-C21249	C21249	Quality of Life - Satisfaction life many area interest recent assessment scale	The scale representing how often the participant was interested in many areas of their life lately, as part of Neuro-QOL Positive Affect and Well-Being	Supplemental	Neuro-QOL Adult Bank - Positive Affect and Well-Being	True	General (For all diseases)	General (For all diseases)
F1062-C12772	C12772	Electrophysiology long exercise test post-exercise compound muscle action potential measurement	Compound muscle action potential (CMAP) measurement recorded post- long exercise	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0017-C18740	C18740	Off study intervention prematurely other text	The free-text field related to 'Off study intervention prematurely reason' specifying other text. Primary reason participant/subject discontinued study intervention before planned end of study	Supplemental	Study Discontinuation/Completion	False	General (For all diseases)	General (For all diseases)
F1053-C10593	C10593	Imaging fat signal suppressed indicator	Indicator as to whether or not fat signal was suppressed in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F0013-C00002	C00002	Post conceptional age value	Gestational age plus postnatal age of the participant/subject	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F2055-C21276	C21276	Quality of Life - Community activity ability other people disappointment self-assessment past week scale	The scale which represents the extent to which the participant felt that others were disappointed in their ability to do community activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F2048-C21180	C21180	Quality of Life - Work usual abililty complete past week scale	The scale representing how often the participant was able to do all of their usual work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F0004-C60385	C60385	Serious adverse event sponsor assessment indicator	Indicator of whether the adverse event is serious, based on the sponsor's assessment	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F1055-C10584	C10584	Imaging phase resolution percentage value	The value in percent of the phase resolution used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F2054-C21257	C21257	Quality of Life - Satisfaction confident recent assessment scale	The scale representing how often the participant felt confident lately, as part of Neuro-QOL Positive Affect and Well-Being	Supplemental	Neuro-QOL Adult Bank - Positive Affect and Well-Being	True	General (For all diseases)	General (For all diseases)
F0020-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F1053-C10842	C10842	Imaging analysis software name	Name of the software used for data processing or analysis of the imaging study	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F0013-C00319	C00319	Medical history condition ongoing indicator	Indicator of whether a medical condition/disease experienced by the participant is ongoing	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F2055-C21284	C21284	Quality of Life - Work home limitation bother past week scale	The scale which represents the extent to which the participant was bothered by limitations in performing their work (include work at home) in the past 7 days, as part of Neuro-QOL Satisfaction with SRA	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F2048-C21188	C21188	Quality of Life - Work usual ability past week scale	The scale representing how often the participant was able to do all of their usual work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F1055-C10594	C10594	Imaging parallel acquisition used indicator	Indicator of whether a parallel acquisition method is used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F2055-C20742	C20742	Patient-Reported Outcome Measurement Information System (PROMIS) - Social activity current level satisfaction past week scale	The scale which represents the extent of the participant's satisfaction with his/her current level of social activity in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F2048-C21148	C21148	Quality of Life - Regular family activity ability past week scale	The scale representing how often the participant was able to do all of their regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.