CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C56448	PROMIS - Pain Behavior when pain stay still scale	Scale related to the individual feeling as if when he/she was in pain, he/she tried to stay very still in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
C20705	Quality of Life - Depression assessment past week scale	The scale which represents how often the participant felt depressed in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
C56012	PROMIS - Smoking negative health expectancies smoke worry high blood pressure scale	Scale related to an individual worrying about smoking causing high blood pressure, as part of the PROMIS Smoking Negative Health Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Nondaily Smokers	False	General (For all diseases)	General (For all diseases)
C56579	PROMIS - Meaning and Purpose know where going life scale	Scale related to an individual knowing where he/she is going in life, as part of the PROMIS Meaning and Purpose	Supplemental	PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a	False	General (For all diseases)	General (For all diseases)
C55719	PROMIS - Self Efficacy managing emotions handle upset situation scale	Scale related to an individual being able to handle upsetting situations, as part of the PROMIS Self-Efficacy Managing Emotions	Supplemental	PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions	False	General (For all diseases)	General (For all diseases)
C56355	PROMIS - Smoking negative psychosocial expectancies smoke make respect self less scale	Scale related to an individual believing his/her smoking makes him/her respect him/herself less, as part of the PROMIS Smoking Negative Psychosocial Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for Nondaily Smokers	False	General (For all diseases)	General (For all diseases)
C21199	Quality of Life - Check financial document accuracy difficulty scale	The scale which represents the amount of difficulty the participant currently has in checking the accuracy of financial documents (e.g., bills, checkbook, or bank statements), as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
C55418	PROMIS - Anxiety racing pounding heart scale	Scale related to an individual feeling like he/she had a racing or pounding heart, as part of the PROMIS Anxiety	Supplemental	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	General (For all diseases)	General (For all diseases)
C55991	PROMIS - Smoking negative health expectancies smoke irritate mouth throat scale	Scale related to an individual believing smoking irritates his/her mouth and throat, as part of the PROMIS Smoking Negative Health Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for All Smokers	False	General (For all diseases)	General (For all diseases)
C18703	Imaging parallel acquisition used other text	The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
C20765	Patient-Reported Outcome Measurement Information System (PROMIS) - Household responsibity regular person ability satisfaction past week scale	The scale which represents the extent of the participant's satisfaction with his/her ability to do regular personal and household responsibilities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Social Activity	True	General (For all diseases)	General (For all diseases)
C55673	PROMIS - Dyspnea Functional limitations carry something 10 20 pound scale	Scale related to an individual being able to carry something weighing 10-20 pounds (about 4.5-9 kg, like a large bag of groceries), as part of the PROMIS Dyspnea Functional Limitations	Supplemental	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	General (For all diseases)	General (For all diseases)
C20549	Quality of Life in Neurological Disorders (Neuro-Qol) - Not leave house fatigue assessment past week scale	The scale representing how often the participant felt too tired to leave the house in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)
C55354	PROMIS - Negative expectancies rude when drink scale	Scale related to people being rude when they drink, as part of the PROMIS Negative Expectancies	Supplemental	PROMIS Item Bank v1.0 - Alcohol: Negative Expectancies	False	General (For all diseases)	General (For all diseases)
C20793	Quality of Life - Tension assessment past week scale	The scale which represents how often the participant felt tense in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	Supplemental	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	General (For all diseases)	General (For all diseases)
C21301	Quality of Life - Stigma illness emotional distance recent assessment scale	The scale representing how often the participant felt emotionally stable lately, as part of Neuro-QOL Stigma	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)
C56456	PROMIS - Pain Behavior when pain call out for help scale	Scale related to the individual feeling as if when he/she was in pain he/she called out for someone to help him/her, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
C20737	Quality of Life - Life empty assessment past week scale	The scale which represents how often the participant felt that life was empty in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
C56055	PROMIS - Smoking nicotine dependence smoke more before situation no smoke scale	Scale related to an individual smoking more before going into a situation where smoking is not allowed, as part of the PROMIS Smoking Nicotine Dependence	Supplemental	PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for All Smokers	False	General (For all diseases)	General (For all diseases)
C56587	PROMIS - Pain Behavior lay down scale	Scale related to the individual laying down in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a	False	General (For all diseases)	General (For all diseases)
C55727	PROMIS - Self Efficacy managing emotions stay positive scale	Scale related to an individual being able to stay positive when he/she feels like he/she is the only one going through this, as part of the PROMIS Self-Efficacy Managing Emotions	Supplemental	PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions	False	General (For all diseases)	General (For all diseases)
C56389	PROMIS - Smoking social motivation smoke part self image scale	Scale related to an individual believing smoking is a part of his/her self-image, as part of the PROMIS Smoking Social Motivation	Supplemental	PROMIS Item Bank v1.0 - Smoking: Social Motivations for All Smokers	False	General (For all diseases)	General (For all diseases)
C21207	Quality of Life - Learn new task difficulty scale	The scale which represents the amount of difficulty the participant currently has in learning new tasks or instructions, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
C55427	PROMIS - Anxiety worried scale	Scale related to an individual feeling worried, as part of the PROMIS Anxiety	Supplemental	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	General (For all diseases)	General (For all diseases)
C55986	PROMIS - Smoking negative health expectancies smoke years off life scale	Scale related to an individual believing smoking is taking years of his/her life, as part of the PROMIS Smoking Negative Health Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Daily Smokers	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.