F2056-C21290
C21290
Quality of Life - Awake pain past week scale
The scale representing how often pain woke the participant up in the last 7 days, as part of Neuro-QOL Sleep Disturbance
Supplemental
Neuro-QOL Adult Bank - Sleep Disturbance
True
General (For all diseases)
General (For all diseases)
F2049-C20780
C20780
Quality of Life - Fear terrible future occurrence past week scale
The scale which represents how often the participant felt something awful would happen in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety
Supplemental
Neuro-QOL Adult Bank - Anxiety
True
General (For all diseases)
General (For all diseases)
F2055-C20752
C20752
Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity complete important ability satisfaction past week scale
The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the leisure activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21157
C21157
Quality of Life - Family activity expectation complete past week scale
The scale representing how often the participant was able to do all of the family activities that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F1053-C18703
C18703
Imaging parallel acquisition used other text
The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition
Supplemental
Diffusion Tensor Imaging (DTI)
False
General (For all diseases)
General (For all diseases)
F2057-C21298
C21298
Quality of Life - Stigma illness physical limit embarassment recent assessment scale
The scale representing how often the participant felt embarassed because of their physical limitations lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2049-C20793
C20793
Quality of Life - Tension assessment past week scale
The scale which represents how often the participant felt tense in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety
Supplemental
Neuro-QOL Adult Bank - Anxiety
True
General (For all diseases)
General (For all diseases)
F2055-C20767
C20767
Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance ability satisfaction past week scale
The scale which represents the extent of the participant's satisfaction with his/her ability to perform daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21165
C21165
Quality of Life - Home fun limit activity past week scale
The scale representing how often the participant had to limit the things they do for fun at home (like reading, listening to music, etc) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2055-C21269
C21269
Quality of Life - Socialize ability family disappointment past week scale
The scale which represents the extent to which the participant felt that their family was disappointed in their ability to socialize with them in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21173
C21173
Quality of Life - Social communication maintanence trouble past week scale
The scale representing how often the participant had trouble keeping in touch with others in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2054-C21250
C21250
Quality of Life - Satisfaction life enjoyment ability recent assessment scale
The scale representing how often the participant was able to enjoy life lately, as part of Neuro-QOL Positive Affect and Well-Being
Supplemental
Neuro-QOL Adult Bank - Positive Affect and Well-Being
True
General (For all diseases)
General (For all diseases)
F2055-C21277
C21277
Quality of Life - Leisure activity ability disappointment past week scale
The scale which represents the extent to which the participant was disappointed in their ability to do leisure activites in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21181
C21181
Quality of Life - Work usual complete past week scale
The scale representing how often the participant was accomplishing as much as usual at work for them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2054-C21258
C21258
Quality of Life - Satisfaction good life recent assessment scale
The scale representing how often the participant had a good life, as part of Neuro-QOL Positive Affect and Well-Being
Supplemental
Neuro-QOL Adult Bank - Positive Affect and Well-Being
True
General (For all diseases)
General (For all diseases)
F0013-C59688
C59688
COVID-19 first date not applicable status
Status denoting that the date the participant/subject was first told or first thought that they had coronavirus disease 2019 (COVID-19) is not applicable
Supplemental
Medical History
False
General (For all diseases)
General (For all diseases)
F2055-C21285
C21285
Quality of Life - Personal responsibility care ability satisfaction past week scale
The scale which represents the extent to which the participant was satisfied with their ability to take care of personal and household responsibilities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21189
C21189
Quality of Life - Work limit complete past week scale
The scale representing how often the participant was limited in doing their work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2055-C20743
C20743
Patient-Reported Outcome Measurement Information System (PROMIS) - Important community activity ability satisfaction past week scale
The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the community activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21149
C21149
Quality of Life - Social interaction friend ability past week scale
The scale representing how often the participant was able to socialize with their friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2053-C21319
C21319
Quality of Life - Movement in out car ability scale
The scale which represents the extent to which the participant was able to get in and out of the car, as part of Neuro-QOL Lower Extremity Function
Supplemental
Neuro-QOL Adult Bank - Lower Extremity Function
True
General (For all diseases)
General (For all diseases)
F2058-C21139
C21139
Quality of Life - Movement medication open difficulty scale
The scale which represents the amount of difficulty the participant currently has in opening medications or vitamin containers (e.g., childproof containers, small bottles) as part of Neuro-QOL Upper Extremity
Supplemental
Neuro-QOL Adult Bank - Upper Extremity
True
General (For all diseases)
General (For all diseases)
F2050-C21221
C21221
Quality of Life - Attention difficulty past week scale
The scale representing how often the participant had to work really hard to pay attention or they would make a mistake in the past 7 days, as part of Neuro-QOL Cognitive Function
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
F0005-C21124
C21124
Subject email address name
The name of the email address of the subject/participant
Supplemental
Participant/Subject Contact Information
False
General (For all diseases)
General (For all diseases)
F2053-C21327
C21327
Quality of Life - Movement bed sit lay down difficulty scale
The scale which represents the amount of difficulty the participant currently has in moving from sitting at the side of the bed to lying down on their back, as part of Neuro-QOL Lower Extremity Function
Supplemental
Neuro-QOL Adult Bank - Lower Extremity Function
True
General (For all diseases)
General (For all diseases)