C21118
Subject mailing address name
Name of the mailing address of subject/participant.
Supplemental
Participant/Subject Contact Information
False
General (For all diseases)
General (For all diseases)
C21200
Quality of Life - Read follow complex instruction difficulty scale
The scale which represents the amount of difficulty the participant currently has in reading and following complex instructions (e.g., directions for a new medication), as part of Neuro-QOL Cognitive Function.
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
C56463
PROMIS - Pain Behavior when pain frown scale
Scale related to the individual feeling as if when he/she was in pain he/she frowned in the past 7 days, as part of the PROMIS Pain Behavior
Supplemental
PROMIS Item Bank v1.1 - Pain Behavior
False
General (For all diseases)
General (For all diseases)
C56076
PROMIS - Smoking nicotine dependence go too long cigarette strong urge scale
Scale related to an individual feeling if he/she went too long without a cigarette he/she gets strong urges that are hard to get rid of, as part of the PROMIS Smoking Nicotine Dependence
Supplemental
PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for All Smokers
False
General (For all diseases)
General (For all diseases)
C55737
PROMIS - Sleep Related Impairment still feel sleepy when awake scale
Scale related to an individual still feeling sleepy when he/she woke up, as part of the PROMIS Sleep Related Impairment
Supplemental
PROMIS Item Bank v1.0 - Sleep Related Impairment
True
General (For all diseases)
General (For all diseases)
C56389
PROMIS - Smoking social motivation smoke part self image scale
Scale related to an individual believing smoking is a part of his/her self-image, as part of the PROMIS Smoking Social Motivation
Supplemental
PROMIS Item Bank v1.0 - Smoking: Social Motivations for Daily Smokers
False
General (For all diseases)
General (For all diseases)
C55435
PROMIS - Anxiety indecisive scale
Scale related to an individual feeling indecisive, as part of the PROMIS Anxiety
Supplemental
PROMIS Item Bank v1.0 - Emotional Distress - Anxiety
True
General (For all diseases)
General (For all diseases)
C55995
PROMIS - Smoking negative health expectancies smoke make lung hurt scale
Scale related to an individual believing smoking makes his/her lungs hurt, as part of the PROMIS Smoking Negative Health Expectancies
Supplemental
PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Daily Smokers
False
General (For all diseases)
General (For all diseases)
C56561
PROMIS - Cognitive Function upset about problem with memory scale
Scale related to how often an individual has been upset about his/her problems with memory, concentration, or making mental mistakes in the past 7 days, as part of the PROMIS Cognitive Function
Supplemental
PROMIS Item Bank v2.0 - Cognitive Function
False
General (For all diseases)
General (For all diseases)
C54791
PROMIS - Dyspnea severity walk 50 pace scale
Scale related to the individual being able to walk 50 steps/paces on flat ground at a normal speed without stopping, as part of the PROMIS Dyspnea Severity
Supplemental
PROMIS Item Bank v1.0 - Dyspnea Severity
False
General (For all diseases)
General (For all diseases)
C55688
PROMIS - Dyspnea Functional limitations carry weigh less 5 pound scale
Scale related to an individual being able to carry something weighing less than 5 lbs (about 2 kg, like a houseplant) from one room to another, as part of the PROMIS Dyspnea Functional Limitations
Supplemental
PROMIS Item Bank v1.0 - Dyspnea Functional Limitations
False
General (For all diseases)
General (For all diseases)
C20805
Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restfulness assessment past week scale
The scale which represents how often the participant's sleep was restful in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
Supplemental
PROMIS Item Bank v1.0 - Sleep Disturbance
True
General (For all diseases)
General (For all diseases)
C55389
PROMIS - Positive consequences outgoing when drink scale
Scale related to if the individual felt outgoing when he/she drank, as part of the PROMIS Positive Consequences
Supplemental
PROMIS Item Bank v1.0 - Alcohol - Positive Consequences
False
General (For all diseases)
General (For all diseases)
C20739
Quality of Life - Emotional exhaustion assessment past week scale
The scale which represents how often the participant felt emotionally exhausted in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression.
Supplemental
Neuro-QOL Adult Bank - Depression
True
General (For all diseases)
General (For all diseases)
C20850
Patient-Reported Outcome Measurement Information System (PROMIS) - Energy sufficient past week scale
The scale which represents how often the participant had enough energy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
Supplemental
PROMIS Item Bank v1.0 - Sleep Related Impairment
True
General (For all diseases)
General (For all diseases)
C21316
Quality of Life - Stigma illness lost friend recent assessment scale
The scale representing how often the participant lost friends by telling them that they have this illness lately, as part of Neuro-QOL Stigma.
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
C21108
Visit present indicator
Indicator for the presence of the subject at the visit.
Supplemental
Visit Checklist
False
General (For all diseases)
General (For all diseases)
C21208
Quality of Life - Simple mistake more easily past week scale
The scale representing how often the participant made simple mistakes more easily in the past 7 days, as part of Neuro-QOL Cognitive Function.
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
C18659
Unexpected adverse event indicator
The indicator of whether the adverse event is unexpected
Supplemental
Serious Adverse Events
False
General (For all diseases)
General (For all diseases)
C55745
PROMIS - Sleep Related Impairment had trouble stay awake during day scale
Scale related to an individual having trouble staying awake during the day, as part of the PROMIS Sleep Related Impairment
Supplemental
PROMIS Item Bank v1.0 - Sleep Related Impairment
True
General (For all diseases)
General (For all diseases)
C56377
PROMIS - Smoking social motivation smoke feel more relax with others scale
Scale related to an individual feeling as if smoking makes him/her feel more relaxed when he/she is with other people, as part of the PROMIS Smoking Social Motivation
Supplemental
PROMIS Item Bank v1.0 - Smoking: Social Motivations for Nondaily Smokers
False
General (For all diseases)
General (For all diseases)
C55490
PROMIS - Applied Cognition abilities remember where put things scale
Scale related to an individual being able to remember where he/she put things, like his/her keys or his/her wallet, as part of PROMIS Applied Cognition Abilities
Supplemental
PROMIS Item Bank v1.0 - Applied Cognition - Abilities
False
General (For all diseases)
General (For all diseases)
C56004
PROMIS - Smoking negative health expectancies smoke headache scale
Scale related to an individual feeling as if smoking gives him/her a headache, as part of the PROMIS Smoking Negative Health Expectancies
Supplemental
PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Daily Smokers
False
General (For all diseases)
General (For all diseases)
C56569
PROMIS - Life Satisfaction had what wanted scale
Scale related to an individual feeling as if he/she had what she/she wanted in life in the past 4 weeks, as part of the PROMIS Life Satisfaction
Supplemental
PROMIS Pediatric Item Bank v1.0 - Life Satisfaction-Short Form 4a
False
General (For all diseases)
General (For all diseases)
C54807
PROMIS - Dyspnea severity walk half mile scale
Scale related to the individual being able to walk 1/2 mile (almost 1 km) without stopping, as part of the PROMIS Dyspnea Severity
Supplemental
PROMIS Item Bank v1.0 - Dyspnea Severity
False
General (For all diseases)
General (For all diseases)