CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1696
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C21118 Subject mailing address name

Name of the mailing address of subject/participant.

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21200 Quality of Life - Read follow complex instruction difficulty scale

The scale which represents the amount of difficulty the participant currently has in reading and following complex instructions (e.g., directions for a new medication), as part of Neuro-QOL Cognitive Function.

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C56463 PROMIS - Pain Behavior when pain frown scale

Scale related to the individual feeling as if when he/she was in pain he/she frowned in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Item Bank v1.1 - Pain Behavior General (For all diseases) General (For all diseases)
C56076 PROMIS - Smoking nicotine dependence go too long cigarette strong urge scale

Scale related to an individual feeling if he/she went too long without a cigarette he/she gets strong urges that are hard to get rid of, as part of the PROMIS Smoking Nicotine Dependence

Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for All Smokers General (For all diseases) General (For all diseases)
C55737 PROMIS - Sleep Related Impairment still feel sleepy when awake scale

Scale related to an individual still feeling sleepy when he/she woke up, as part of the PROMIS Sleep Related Impairment

Supplemental PROMIS Item Bank v1.0 - Sleep Related Impairment General (For all diseases) General (For all diseases)
C56389 PROMIS - Smoking social motivation smoke part self image scale

Scale related to an individual believing smoking is a part of his/her self-image, as part of the PROMIS Smoking Social Motivation

Supplemental PROMIS Item Bank v1.0 - Smoking: Social Motivations for Daily Smokers General (For all diseases) General (For all diseases)
C55435 PROMIS - Anxiety indecisive scale

Scale related to an individual feeling indecisive, as part of the PROMIS Anxiety

Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Anxiety General (For all diseases) General (For all diseases)
C55995 PROMIS - Smoking negative health expectancies smoke make lung hurt scale

Scale related to an individual believing smoking makes his/her lungs hurt, as part of the PROMIS Smoking Negative Health Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Daily Smokers General (For all diseases) General (For all diseases)
C56561 PROMIS - Cognitive Function upset about problem with memory scale

Scale related to how often an individual has been upset about his/her problems with memory, concentration, or making mental mistakes in the past 7 days, as part of the PROMIS Cognitive Function

Supplemental PROMIS Item Bank v2.0 - Cognitive Function General (For all diseases) General (For all diseases)
C54791 PROMIS - Dyspnea severity walk 50 pace scale

Scale related to the individual being able to walk 50 steps/paces on flat ground at a normal speed without stopping, as part of the PROMIS Dyspnea Severity

Supplemental PROMIS Item Bank v1.0 - Dyspnea Severity General (For all diseases) General (For all diseases)
C55688 PROMIS - Dyspnea Functional limitations carry weigh less 5 pound scale

Scale related to an individual being able to carry something weighing less than 5 lbs (about 2 kg, like a houseplant) from one room to another, as part of the PROMIS Dyspnea Functional Limitations

Supplemental PROMIS Item Bank v1.0 - Dyspnea Functional Limitations General (For all diseases) General (For all diseases)
C20805 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restfulness assessment past week scale

The scale which represents how often the participant's sleep was restful in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance General (For all diseases) General (For all diseases)
C55389 PROMIS - Positive consequences outgoing when drink scale

Scale related to if the individual felt outgoing when he/she drank, as part of the PROMIS Positive Consequences

Supplemental PROMIS Item Bank v1.0 - Alcohol - Positive Consequences General (For all diseases) General (For all diseases)
C20739 Quality of Life - Emotional exhaustion assessment past week scale

The scale which represents how often the participant felt emotionally exhausted in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression.

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C20850 Patient-Reported Outcome Measurement Information System (PROMIS) - Energy sufficient past week scale

The scale which represents how often the participant had enough energy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental PROMIS Item Bank v1.0 - Sleep Related Impairment General (For all diseases) General (For all diseases)
C21316 Quality of Life - Stigma illness lost friend recent assessment scale

The scale representing how often the participant lost friends by telling them that they have this illness lately, as part of Neuro-QOL Stigma.

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C21108 Visit present indicator

Indicator for the presence of the subject at the visit.

Supplemental Visit Checklist General (For all diseases) General (For all diseases)
C21208 Quality of Life - Simple mistake more easily past week scale

The scale representing how often the participant made simple mistakes more easily in the past 7 days, as part of Neuro-QOL Cognitive Function.

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C18659 Unexpected adverse event indicator

The indicator of whether the adverse event is unexpected

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C55745 PROMIS - Sleep Related Impairment had trouble stay awake during day scale

Scale related to an individual having trouble staying awake during the day, as part of the PROMIS Sleep Related Impairment

Supplemental PROMIS Item Bank v1.0 - Sleep Related Impairment General (For all diseases) General (For all diseases)
C56377 PROMIS - Smoking social motivation smoke feel more relax with others scale

Scale related to an individual feeling as if smoking makes him/her feel more relaxed when he/she is with other people, as part of the PROMIS Smoking Social Motivation

Supplemental PROMIS Item Bank v1.0 - Smoking: Social Motivations for Nondaily Smokers General (For all diseases) General (For all diseases)
C55490 PROMIS - Applied Cognition abilities remember where put things scale

Scale related to an individual being able to remember where he/she put things, like his/her keys or his/her wallet, as part of PROMIS Applied Cognition Abilities

Supplemental PROMIS Item Bank v1.0 - Applied Cognition - Abilities General (For all diseases) General (For all diseases)
C56004 PROMIS - Smoking negative health expectancies smoke headache scale

Scale related to an individual feeling as if smoking gives him/her a headache, as part of the PROMIS Smoking Negative Health Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Daily Smokers General (For all diseases) General (For all diseases)
C56569 PROMIS - Life Satisfaction had what wanted scale

Scale related to an individual feeling as if he/she had what she/she wanted in life in the past 4 weeks, as part of the PROMIS Life Satisfaction

Supplemental PROMIS Pediatric Item Bank v1.0 - Life Satisfaction-Short Form 4a General (For all diseases) General (For all diseases)
C54807 PROMIS - Dyspnea severity walk half mile scale

Scale related to the individual being able to walk 1/2 mile (almost 1 km) without stopping, as part of the PROMIS Dyspnea Severity

Supplemental PROMIS Item Bank v1.0 - Dyspnea Severity General (For all diseases) General (For all diseases)
Displaying 1 - 25 of 1696

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.