CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1696
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C56448 PROMIS - Pain Behavior when pain stay still scale

Scale related to the individual feeling as if when he/she was in pain, he/she tried to stay very still in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Item Bank v1.1 - Pain Behavior General (For all diseases) General (For all diseases)
C20705 Quality of Life - Depression assessment past week scale

The scale which represents how often the participant felt depressed in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C56012 PROMIS - Smoking negative health expectancies smoke worry high blood pressure scale

Scale related to an individual worrying about smoking causing high blood pressure, as part of the PROMIS Smoking Negative Health Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Nondaily Smokers General (For all diseases) General (For all diseases)
C56579 PROMIS - Meaning and Purpose know where going life scale

Scale related to an individual knowing where he/she is going in life, as part of the PROMIS Meaning and Purpose

Supplemental PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a General (For all diseases) General (For all diseases)
C55719 PROMIS - Self Efficacy managing emotions handle upset situation scale

Scale related to an individual being able to handle upsetting situations, as part of the PROMIS Self-Efficacy Managing Emotions

Supplemental PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions General (For all diseases) General (For all diseases)
C56355 PROMIS - Smoking negative psychosocial expectancies smoke make respect self less scale

Scale related to an individual believing his/her smoking makes him/her respect him/herself less, as part of the PROMIS Smoking Negative Psychosocial Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for Nondaily Smokers General (For all diseases) General (For all diseases)
C21199 Quality of Life - Check financial document accuracy difficulty scale

The scale which represents the amount of difficulty the participant currently has in checking the accuracy of financial documents (e.g., bills, checkbook, or bank statements), as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C55418 PROMIS - Anxiety racing pounding heart scale

Scale related to an individual feeling like he/she had a racing or pounding heart, as part of the PROMIS Anxiety

Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Anxiety General (For all diseases) General (For all diseases)
C55991 PROMIS - Smoking negative health expectancies smoke irritate mouth throat scale

Scale related to an individual believing smoking irritates his/her mouth and throat, as part of the PROMIS Smoking Negative Health Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for All Smokers General (For all diseases) General (For all diseases)
C18703 Imaging parallel acquisition used other text

The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C20765 Patient-Reported Outcome Measurement Information System (PROMIS) - Household responsibity regular person ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do regular personal and household responsibilities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Social Activity General (For all diseases) General (For all diseases)
C55673 PROMIS - Dyspnea Functional limitations carry something 10 20 pound scale

Scale related to an individual being able to carry something weighing 10-20 pounds (about 4.5-9 kg, like a large bag of groceries), as part of the PROMIS Dyspnea Functional Limitations

Supplemental PROMIS Item Bank v1.0 - Dyspnea Functional Limitations General (For all diseases) General (For all diseases)
C20549 Quality of Life in Neurological Disorders (Neuro-Qol) - Not leave house fatigue assessment past week scale

The scale representing how often the participant felt too tired to leave the house in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

Supplemental Neuro-QOL Adult Bank - Fatigue General (For all diseases) General (For all diseases)
C55354 PROMIS - Negative expectancies rude when drink scale

Scale related to people being rude when they drink, as part of the PROMIS Negative Expectancies

Supplemental PROMIS Item Bank v1.0 - Alcohol: Negative Expectancies General (For all diseases) General (For all diseases)
C20793 Quality of Life - Tension assessment past week scale

The scale which represents how often the participant felt tense in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Anxiety General (For all diseases) General (For all diseases)
C21301 Quality of Life - Stigma illness emotional distance recent assessment scale

The scale representing how often the participant felt emotionally stable lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C56456 PROMIS - Pain Behavior when pain call out for help scale

Scale related to the individual feeling as if when he/she was in pain he/she called out for someone to help him/her, as part of the PROMIS Pain Behavior

Supplemental PROMIS Item Bank v1.1 - Pain Behavior General (For all diseases) General (For all diseases)
C20737 Quality of Life - Life empty assessment past week scale

The scale which represents how often the participant felt that life was empty in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C56055 PROMIS - Smoking nicotine dependence smoke more before situation no smoke scale

Scale related to an individual smoking more before going into a situation where smoking is not allowed, as part of the PROMIS Smoking Nicotine Dependence

Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for All Smokers General (For all diseases) General (For all diseases)
C56587 PROMIS - Pain Behavior lay down scale

Scale related to the individual laying down in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a General (For all diseases) General (For all diseases)
C55727 PROMIS - Self Efficacy managing emotions stay positive scale

Scale related to an individual being able to stay positive when he/she feels like he/she is the only one going through this, as part of the PROMIS Self-Efficacy Managing Emotions

Supplemental PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions General (For all diseases) General (For all diseases)
C56389 PROMIS - Smoking social motivation smoke part self image scale

Scale related to an individual believing smoking is a part of his/her self-image, as part of the PROMIS Smoking Social Motivation

Supplemental PROMIS Item Bank v1.0 - Smoking: Social Motivations for All Smokers General (For all diseases) General (For all diseases)
C21207 Quality of Life - Learn new task difficulty scale

The scale which represents the amount of difficulty the participant currently has in learning new tasks or instructions, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C55427 PROMIS - Anxiety worried scale

Scale related to an individual feeling worried, as part of the PROMIS Anxiety

Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Anxiety General (For all diseases) General (For all diseases)
C55986 PROMIS - Smoking negative health expectancies smoke years off life scale

Scale related to an individual believing smoking is taking years of his/her life, as part of the PROMIS Smoking Negative Health Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Daily Smokers General (For all diseases) General (For all diseases)
Displaying 1 - 25 of 1696

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.