CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 1701
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56538 PROMIS - Cognitive Function make mistake write down number scale

Scale related to how often an individual has make mistakes when writing down phone numbers in the past 7 days, as part of the PROMIS Cognitive Function

 Supplemental PROMIS Item Bank v2.0 - Cognitive Function False General (For all diseases) General (For all diseases)
C56155 PROMIS - Smoking nicotine dependence quit smoke experience intense crave scale

Scale related to an individual believing he/she quits smoking he/she will experience intense cravings for a cigarette, as part of the Smoking Nicotine Dependence

 Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Nondaily Smokers False General (For all diseases) General (For all diseases)
C55827 PROMIS - Smoking emotional and sensory expectancies stop for cigarette my time scale

Scale related to an individual feeling as if when he/she stops what he/she is doing to have a cigarette it feels like "his/her time", as part of the Smoking Emotional and Sensory Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Emotional and Sensory Expectancies for Daily Smokers False General (For all diseases) General (For all diseases)
C56485 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain interfere ability concentrate scale

Scale related to how much pain interfered with an individual's ability to concentrate in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C55587 PROMIS - Applied Cognition general concerns think been slower scale

Scale related to an individual's thinking being slower than usual, as part of the PROMIS Applied Cognition General Concerns

 Supplemental PROMIS Item Bank v1.0 - Applied Cognition - General Concerns False General (For all diseases) General (For all diseases)
C56083 PROMIS - Smoking nicotine dependence crave cigarette certain time scale

Scale related to an individual craving cigarettes at certain times of day, as part of the Smoking Nicotine Dependence

 Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Daily Smokers False General (For all diseases) General (For all diseases)
C55221 PROMIS - Alcohol use drink because depressed scale

Scale related to an individual drinking because he/she was depressed, as part of the PROMIS Alcohol Use

 Supplemental PROMIS Item Bank v1.0 - Alcohol Use False General (For all diseases) General (For all diseases)
C55761 PROMIS - Smoking coping expectancies too long lose temper scale

Scale related to an individual feeling like if he/she goes too long without a cigarette he/she loses his/her temper more easily, as part of the PROMIS Smoking Coping Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Coping Expectancies for All Smokers False General (For all diseases) General (For all diseases)
C20706 Patient-Reported Outcome Measurement Information System (PROMIS) - Anger upset greater than other people aware past week scale

The scale which represents how often the participant was irritated more than people knew in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Anger False General (For all diseases) General (For all diseases)
C55515 PROMIS - Applied Cognition abilities think clear without extra effort scale

Scale related to an individual being able to think clearly as usual without extra effort, as part of PROMIS Applied Cognition Abilities

 Supplemental PROMIS Item Bank v1.0 - Applied Cognition - Abilities False General (For all diseases) General (For all diseases)
C20755 Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability good satisfaction past week scale

The scale which represents the extent to which the participant felt good about his ability to do things for his/her family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C54825 PROMIS - Dyspnea severity carry weight 5 10 pound room to room scale

Scale related to the individual being able to carry something weighing 5-10 pounds (about 2-4.5 kg, like a basket of clothes) from one room to another, as part of the PROMIS Dyspnea Severity

 Supplemental PROMIS Item Bank v1.0 - Dyspnea Severity False General (For all diseases) General (For all diseases)
C21160 Quality of Life - Friend need satisfactory complete past week scale

The scale representing how often the participant could do everything for their friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C20829 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep toss turn night assessment past week scale

The scale which represents how often the participant tossed and turned at night in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True General (For all diseases) General (For all diseases)
C21328 Quality of Life - Movement low soft couch stand difficulty scale

The scale which represents the amount of difficulty the participant currently has in standing up from a low, soft couch, as part of Neuro-QOL Lower Extremity Function

 Supplemental Neuro-QOL Adult Bank - Lower Extremity Function True General (For all diseases) General (For all diseases)
C56546 PROMIS - Cognitive Function walk in room forgot what to do scale

Scale related to how often an individual has walked into a room and forgotten what he/she meant to get or do there in the past 7 days, as part of the PROMIS Cognitive Function

 Supplemental PROMIS Item Bank v2.0 - Cognitive Function False General (For all diseases) General (For all diseases)
C56331 PROMIS - Smoking negative psychosocial expectancies need for cigarette make feel disappoint scale

Scale related to an individual's need for cigarettes making him/her feel disappointed in him/herself, as part of the PROMIS Smoking Negative Psychosocial Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for All Smokers False General (For all diseases) General (For all diseases)
C55856 PROMIS - Smoking emotional and sensory expectancies smoke feel good scale

Scale related to an individual smoking because smoking feels good to him/her, as part of the Smoking Emotional and Sensory Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Emotional and Sensory Expectancies for Daily Smokers False General (For all diseases) General (For all diseases)
C56493 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain sleep difficulty scale

Scale related to how difficult pain made it to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C18666 Body system other text

The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

 Supplemental Physical Exam False General (For all diseases) General (For all diseases)
C55595 PROMIS - Applied Cognition general concerns problem with memory interfere work scale

Scale related to an individual having problems with memory, concentration, or making mental mistakes interfere with his/her ability to work, as part of the PROMIS Applied Cognition General Concerns

 Supplemental PROMIS Item Bank v1.0 - Applied Cognition - General Concerns False General (For all diseases) General (For all diseases)
C56116 PROMIS - Smoking nicotine dependence smoke when alone scale

Scale related to an individual smoking when he/she is alone, as part of the PROMIS Smoking Nicotine Dependence

 Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Daily Smokers False General (For all diseases) General (For all diseases)
C55157 PROMIS - Alcohol use drink consumption indicator

Indicator of an individual's consumption of an alcoholic beverage within 30 days, as part of the PROMIS Alcohol Use

 Supplemental PROMIS Item Bank v1.0 - Alcohol: Negative Consequences False General (For all diseases) General (For all diseases)
C55755 PROMIS - Smoking coping expectancies rely smoke deal stress scale

Scale related to an individual relying on smoking to deal with stress, as part of the PROMIS Smoking Coping Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Coping Expectancies for Daily Smokers False General (For all diseases) General (For all diseases)
C20714 Patient-Reported Outcome Measurement Information System (PROMIS) - Not allow desire resentment past week scale

The scale which represents how often the participant felt resentful when he/she didn't get his/her way in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Anger False General (For all diseases) General (For all diseases)
Displaying 1 - 25 of 1701

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.