CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 201 - 225 of 869
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54688 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health quality of life scale

Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health

Supplemental PROMIS Item Bank v1.2 - Global Health General (For all diseases) General (For all diseases)
C54689 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health physical health rate scale

Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health

Supplemental PROMIS Item Bank v1.2 - Global Health General (For all diseases) General (For all diseases)
C21317 Quality of Life - Movement sit stand toilet seat scale

The scale which represents the extent to which the participant was able to get on and off the toilet, as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C21325 Quality of Life - Movement armless straight chair stand up difficulty scale

The scale which represents the amount of difficulty the participant currently has in standing up from an armless straight chair (e.g., dining room chair), as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C21242 Quality of Life - Satisfaction hopeful recent assessment scale

The scale representing how often the participant felt hopeful lately, as part of Neuro-QOL Positive Affect and Well-Being

Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being General (For all diseases) General (For all diseases)
C21303 Quality of Life - Stigma illness social situation embarassment recent assessment scale

The scale representing how often the participant felt embarassed in social situations because of their illness lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C21311 Quality of Life - Stigma illness speech embarassment recent assessment scale

The scale representing how often the participant felt embarassed about their speech lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C21276 Quality of Life - Community activity ability other people disappointment self-assessment past week scale

The scale which represents the extent to which the participant felt that others were disappointed in their ability to do community activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21257 Quality of Life - Satisfaction confident recent assessment scale

The scale representing how often the participant felt confident lately, as part of Neuro-QOL Positive Affect and Well-Being

Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being General (For all diseases) General (For all diseases)
C21284 Quality of Life - Work home limitation bother past week scale

The scale which represents the extent to which the participant was bothered by limitations in performing their work (include work at home) in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21289 Quality of Life - Bad dream sleep trouble past week scale

The scale representing how often the participant had trouble sleeping because of dreams in the past 7 days, as part of Neuro-QOL Sleep Disturbance

Supplemental Neuro-QOL Adult Bank - Sleep Disturbance General (For all diseases) General (For all diseases)
C21297 Quality of Life - Stigma illness uncomfortable other people recent assessment scale

The scale representing how often some people seemed uncomfortable with the participant because of their illness lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C21268 Quality of Life - Household chore satisfaction ability past week scale

The scale which represents the extent to which the participant was satisfied with their ability to do household chores and tasks in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21249 Quality of Life - Satisfaction life many area interest recent assessment scale

The scale representing how often the participant was interested in many areas of their life lately, as part of Neuro-QOL Positive Affect and Well-Being

Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being General (For all diseases) General (For all diseases)
C21318 Quality of Life - Movement up down step curb ability scale

The scale which represents the extent to which the participant was able to step up and down curbs, as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C21326 Quality of Life - Movement chair sit stand difficulty scale

The scale which represents the amount of difficulty the participant currently has in sitting down on and standing up from a chair with arms, as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C21243 Quality of Life - Satisfication general life recent assessment scale

The scale representing how often the participant felt their life was satisfying lately, as part of Neuro-QOL Positive Affect and Well-Being

Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being General (For all diseases) General (For all diseases)
C21304 Quality of Life - Stigma illness stranger stare recent assessment scale

The scale representing how often strangers tended to stare at the participant because of their illness lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C21312 Quality of Life - Stigma illness different feel compare other people recent assessment scale

The scale representing how often the participant felt different from others because of their illness lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C21277 Quality of Life - Leisure activity ability disappointment past week scale

The scale which represents the extent to which the participant was disappointed in their ability to do leisure activites in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21258 Quality of Life - Satisfaction good life recent assessment scale

The scale representing how often the participant had a good life, as part of Neuro-QOL Positive Affect and Well-Being

Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being General (For all diseases) General (For all diseases)
C21285 Quality of Life - Personal responsibility care ability satisfaction past week scale

The scale which represents the extent to which the participant was satisfied with their ability to take care of personal and household responsibilities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21290 Quality of Life - Awake pain past week scale

The scale representing how often pain woke the participant up in the last 7 days, as part of Neuro-QOL Sleep Disturbance

Supplemental Neuro-QOL Adult Bank - Sleep Disturbance General (For all diseases) General (For all diseases)
C21298 Quality of Life - Stigma illness physical limit embarassment recent assessment scale

The scale representing how often the participant felt embarassed because of their physical limitations lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C21269 Quality of Life - Socialize ability family disappointment past week scale

The scale which represents the extent to which the participant felt that their family was disappointed in their ability to socialize with them in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
Displaying 201 - 225 of 869

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.