CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2653-C56446	C56446	PROMIS - Pain Behavior when pain become angry scale	Scale related to the individual feeling as if when he/she was in pain he/she became angry, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56454	C56454	PROMIS - Pain Behavior when pain ask one or more to leave alone scale	Scale related to the individual feeling as if when in pain he/she asked one or more people to leave him/her alone in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56462	C56462	PROMIS - Pain Behavior when pain quiet withdrawn scale	Scale related to the individual feeling as if when he/she was in pain he/she became quiet and withdrawn in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56470	C56470	PROMIS - Pain Behavior when pain scream scale	Scale related to the individual feeling as if when in pain he/she screamed in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56478	C56478	PROMIS - Pain Behavior when pain wince scale	Scale related to the individual feeling as if when in pain he/she winced in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56447	C56447	PROMIS - Pain Behavior when pain clench teeth scale	Scale related to the individual feeling as if when he/she was in pain he/she clenched his/her teeth in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56455	C56455	PROMIS - Pain Behavior when pain move stiffly scale	Scale related to the individual feeling as if when in pain he/she moved stiffly in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56463	C56463	PROMIS - Pain Behavior when pain frown scale	Scale related to the individual feeling as if when he/she was in pain he/she frowned in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56471	C56471	PROMIS - Pain Behavior when pain upper body tense scale	Scale related to the individual feeling as if when in pain his/her upper body would tense up in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56479	C56479	PROMIS - Pain Behavior when pain move limb protective scale	Scale related to the individual feeling as if when in pain he/she moved his/her limbs protectively in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56448	C56448	PROMIS - Pain Behavior when pain stay still scale	Scale related to the individual feeling as if when he/she was in pain, he/she tried to stay very still in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56456	C56456	PROMIS - Pain Behavior when pain call out for help scale	Scale related to the individual feeling as if when he/she was in pain he/she called out for someone to help him/her, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56464	C56464	PROMIS - Pain Behavior when pain ask for help when walk change position scale	Scale related to the individual feeling as if when in pain he/she asked for help when walking or changing positions in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56472	C56472	PROMIS - Pain Behavior when pain walk carefully scale	Scale related to the individual feeling as if when in pain he/she walked carefully in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56480	C56480	PROMIS - Pain Behavior when pain avoid physical contact scale	Scale related to the individual feeling as if when in pain he/she avoided physical contact with others in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56449	C56449	PROMIS - Pain Behavior when pain appear upset sad scale	Scale related to the individual feeling as if when he/she was in pain he/she appeared upset or sad in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56457	C56457	PROMIS - Pain Behavior pain cause curl up in ball scale	Scale related to the individual feeling as if pain caused him/her to curl up in a ball in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56465	C56465	PROMIS - Pain Behavior when pain groan scale	Scale related to the individual feeling as if when in pain he/she groaned in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2653-C56473	C56473	PROMIS - Pain Behavior when pain bit purse lip scale	Scale related to the individual feeling as if when in pain he/she bit or pursed his/her lips in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F2454-C54690	C54690	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health mental health rate scale	Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	General (For all diseases)	General (For all diseases)
F2454-C54691	C54691	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health social satisfaction rate scale	Scale related to an individual's rating of his/her satisfaction with his/her social activities, as part of the PROMIS Global Health	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	General (For all diseases)	General (For all diseases)
F2454-C54692	C54692	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out social role scale	Scale related to an individual's rating of his/her ability to carry out usual social activities and roles, as part of the PROMIS Global Health	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	General (For all diseases)	General (For all diseases)
F2454-C54693	C54693	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out physical activity scale	Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	General (For all diseases)	General (For all diseases)
F2454-C54694	C54694	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health bother emotional problem scale	Scale related to an individual's rating of how often he/she has been bothered by emotional problems such as feeling anxious, depressed or irritable, as part of the PROMIS Global Health	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	General (For all diseases)	General (For all diseases)
F2454-C54695	C54695	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health fatigue rate scale	Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.