CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 869
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56516 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent sit 10 minute more scale

Scale related to how often pain prevented an individual from sitting for more than 10 minutes in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56486 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference day to day activity scale

Scale which represents how much the participant felt pain interfered with day to day activities over the past seven days as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56494 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain feel burden scale

Scale related to how much pain felt like a burden to an individual in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56502 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference irritable pain scale

Scale which represents how irritable the participant felt because of pain in the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56509 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make anxious scale

Scale related to how often pain made an individual feel anxious in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56517 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference hard to plan social activities unsure pain scale

Scale related to how often it was hard to plan social activities because an individual didn't know if he/she would be in pain in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56487 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain interfere with enjoy recreational activity scale

Scale related to how much pain interfered with an individual's enjoyment of recreational activities in the past 7 days, as part of the PROMIS Pain Interference

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56495 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference work around home scale

Scale which represents how often the participant felt pain interfered with work around the home over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56503 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference tasks away from home scale

Scale which represents how much pain interfered with participant doing tasks away from home (e.g., getting groceries, running errands) over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56510 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain avoid social activity because more hurt scale

Scale related to how often an individual avoided social activities because it might make him/her hurt more in the past 7 days, as part of Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56518 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain restrict social life home scale

Scale related to how often an individual's pain restrict his/her social life to his/her home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56488 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference feel emotion tense pain scale

Scale related to how often an individual felt emotionally tense because of his/her pain in the past 7 days, as part of the PROMIS Pain Interference

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56496 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference participate social activity ability scale

Scale which represents how often the participant felt pain interfered with participant's ability to participate in social activity over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56504 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make feel depressed scale

Scale related to how often pain made an individual feel depressed in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56511 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent from walk more 1 mile scale

Scale related to how often pain prevented an individual from walking more than 1 mile in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56519 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent sit 1 hour more scale

Scale related to how often an individual's pain prevented him/her from sitting for more than one hour in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56505 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain distress scale

Scale related to how often pain distressed individual in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56481 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference difficult take new information pain scale

Scale related to how difficult it was for an individual to take new information because of pain in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56489 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference fun scale

Scale which represents how often the participant felt pain interfered with the things they would usually do for fun over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56497 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference household chore ability scale

Scale which represents how often the participant felt pain interfered with household chores over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56512 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent from stand more 1 hour scale

Scale related to how often pain prevented an individual from standing more than one hour in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56506 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain keep from socialize other scale

Scale related to how often pain kept an individual from socializing with others in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56482 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference enjoyment life scale

Scale which represents how often the participant felt pain interfered with the enjoyment of social activities over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56490 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain interfere with family life scale

Scale related to how much pain interfered with an individual's family life in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56498 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference ability make trip from home scale

Scale which represents how often the participant felt pain interfered with the ability to make trip from home over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
Displaying 126 - 150 of 869

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.