CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 869
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58680 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale

Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health

 Supplemental PROMIS Item Bank v1.2 - Global Health True General (For all diseases) General (For all diseases)
C58681 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health

 Supplemental PROMIS Item Bank v1.2 - Global Health True General (For all diseases) General (For all diseases)
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 Core Demographics False General (For all diseases) General (For all diseases)
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 Core General Core False General (For all diseases) General (For all diseases)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core Demographics False General (For all diseases) General (For all diseases)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core General Core False General (For all diseases) General (For all diseases)
C17396 Sex genotype type

The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

 Supplemental Screening Log False General (For all diseases) General (For all diseases)
C56582 PROMIS - Pain Behavior show on face scale

Scale related to pain showing on an individual's face in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a False General (For all diseases) General (For all diseases)
C56583 PROMIS - Pain Behavior move slower scale

Scale related to an individual moving slower in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a False General (For all diseases) General (For all diseases)
C56584 PROMIS - Pain Behavior protect part of body hurt scale

Scale related to the individual protecting the part of his/her body that hurt in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a False General (For all diseases) General (For all diseases)
C56585 PROMIS - Pain Behavior had to stop what doing scale

Scale related to the individual having to stop what he/she was doing in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a False General (For all diseases) General (For all diseases)
C56586 PROMIS - Pain Behavior ask for someone to help scale

Scale related to the individual asking someone to help him/her in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a False General (For all diseases) General (For all diseases)
C56587 PROMIS - Pain Behavior lay down scale

Scale related to the individual laying down in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a False General (For all diseases) General (For all diseases)
C56588 PROMIS - Pain Behavior ask medicine scale

Scale related to the individual asking for medicine in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a False General (For all diseases) General (For all diseases)
C56589 PROMIS - Pain Behavior talk about pain scale

Scale related to the individual talking about his/her pain in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a False General (For all diseases) General (For all diseases)
C56520 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain keep stand position scale

Scale related to how often pain kept individual from getting into a standing position in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56498 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference ability make trip from home scale

Scale which represents how often the participant felt pain interfered with the ability to make trip from home over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56506 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain keep from socialize other scale

Scale related to how often pain kept an individual from socializing with others in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56482 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference enjoyment life scale

Scale which represents how often the participant felt pain interfered with the enjoyment of social activities over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56490 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain interfere with family life scale

Scale related to how much pain interfered with an individual's family life in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56513 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make difficult plan social activity scale

Scale related to how often pain made it difficult for an individual to plan social activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56499 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference enjoyment social activity scale

Scale which represents how often the participant felt pain interfered with the enjoyment of social activity over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56507 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain severe think nothing else scale

Scale related to how often an individual's pain was so severe he/she could think of nothing else in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56483 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference ability participate leisure scale

Scale which represents how much pain interfered with ability to participate in leisure activities over the past seven days as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56491 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference with relationship others scale

Scale related to how much pain interfered with an individual's relationships with other people in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
Displaying 101 - 125 of 869

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.