CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

Displaying 1 - 25 of 1696

1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C00311	Birth weight report value	Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
C58680	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale	Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health.	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	General (For all diseases)	General (For all diseases)
C58681	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale	Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health.	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	General (For all diseases)	General (For all diseases)
C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.	Core	General Core	False	General (For all diseases)	General (For all diseases)
C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth.	Core	General Core	False	General (For all diseases)	General (For all diseases)
C17396	Sex genotype type	The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement.	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure' specifying other text. Dosage unit of measure of the prior or concomitant medication administered.	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
C56585	PROMIS - Pain Behavior had to stop what doing scale	Scale related to the individual having to stop what he/she was doing in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a	False	General (For all diseases)	General (For all diseases)
C56586	PROMIS - Pain Behavior ask for someone to help scale	Scale related to the individual asking someone to help him/her in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a	False	General (For all diseases)	General (For all diseases)
C56587	PROMIS - Pain Behavior lay down scale	Scale related to the individual laying down in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a	False	General (For all diseases)	General (For all diseases)
C56588	PROMIS - Pain Behavior ask medicine scale	Scale related to the individual asking for medicine in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a	False	General (For all diseases)	General (For all diseases)
C56589	PROMIS - Pain Behavior talk about pain scale	Scale related to the individual talking about his/her pain in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a	False	General (For all diseases)	General (For all diseases)
C56582	PROMIS - Pain Behavior show on face scale	Scale related to pain showing on an individual's face in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a	False	General (For all diseases)	General (For all diseases)
C56583	PROMIS - Pain Behavior move slower scale	Scale related to an individual moving slower in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a	False	General (For all diseases)	General (For all diseases)
C56584	PROMIS - Pain Behavior protect part of body hurt scale	Scale related to the individual protecting the part of his/her body that hurt in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a	False	General (For all diseases)	General (For all diseases)
C56578	PROMIS - Meaning and Purpose reason for living scale	Scale related to an individual feeling as if he/she has a reason for living, as part of the PROMIS Meaning and Purpose	Supplemental	PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a	False	General (For all diseases)	General (For all diseases)
C56579	PROMIS - Meaning and Purpose know where going life scale	Scale related to an individual knowing where he/she is going in life, as part of the PROMIS Meaning and Purpose	Supplemental	PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a	False	General (For all diseases)	General (For all diseases)
C56580	PROMIS - Meaning and Purpose positive about future scale	Scale related to an individual being positive about his/her future, as part of the PROMIS Meaning and Purpose	Supplemental	PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a	False	General (For all diseases)	General (For all diseases)
C56581	PROMIS - Meaning and Purpose expect enjoy future life scale	Scale related to an individual expecting to enjoy his/her future life, as part of the PROMIS Meaning and Purpose	Supplemental	PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a	False	General (For all diseases)	General (For all diseases)
C56576	PROMIS - Meaning and Purpose life filled meaning scale	Scale related to an individual feeling as if his/her life is filled with meaning, as part of the PROMIS Meaning and Purpose	Supplemental	PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a	False	General (For all diseases)	General (For all diseases)
C56574	PROMIS - Meaning and Purpose hopeful about future scale	Scale related to an individual feeling hopeful about his/her future, as part of the PROMIS Meaning and Purpose	Supplemental	PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose-Short Form 4a	False	General (For all diseases)	General (For all diseases)
C56575	PROMIS - Meaning and Purpose can reach goal scale	Scale related to an individual feeling he/she can reach his/her goals in life, as part of the PROMIS Meaning and Purpose	Supplemental	PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose-Short Form 4a	False	General (For all diseases)	General (For all diseases)
C56576	PROMIS - Meaning and Purpose life filled meaning scale	Scale related to an individual feeling as if his/her life is filled with meaning, as part of the PROMIS Meaning and Purpose	Supplemental	PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose-Short Form 4a	False	General (For all diseases)	General (For all diseases)
C56577	PROMIS - Meaning and Purpose life purpose scale	Scale related to an individual feeling as if his/her life has purpose, as part of the PROMIS Meaning and Purpose	Supplemental	PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose-Short Form 4a	False	General (For all diseases)	General (For all diseases)
C56574	PROMIS - Meaning and Purpose hopeful about future scale	Scale related to an individual feeling hopeful about his/her future, as part of the PROMIS Meaning and Purpose	Supplemental	PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a	False	General (For all diseases)	General (For all diseases)

Displaying 1 - 25 of 1696

1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.