CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1696
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00311 Birth weight report value

Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian

Supplemental Medical History General (For all diseases) General (For all diseases)
C58680 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale

Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health.

Supplemental PROMIS Item Bank v1.2 - Global Health General (For all diseases) General (For all diseases)
C58681 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health.

Supplemental PROMIS Item Bank v1.2 - Global Health General (For all diseases) General (For all diseases)
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.

Core General Core General (For all diseases) General (For all diseases)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

Core General Core General (For all diseases) General (For all diseases)
C17396 Sex genotype type

The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement.

Supplemental Screening Log General (For all diseases) General (For all diseases)
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure' specifying other text. Dosage unit of measure of the prior or concomitant medication administered.

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C56585 PROMIS - Pain Behavior had to stop what doing scale

Scale related to the individual having to stop what he/she was doing in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a General (For all diseases) General (For all diseases)
C56586 PROMIS - Pain Behavior ask for someone to help scale

Scale related to the individual asking someone to help him/her in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a General (For all diseases) General (For all diseases)
C56587 PROMIS - Pain Behavior lay down scale

Scale related to the individual laying down in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a General (For all diseases) General (For all diseases)
C56588 PROMIS - Pain Behavior ask medicine scale

Scale related to the individual asking for medicine in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a General (For all diseases) General (For all diseases)
C56589 PROMIS - Pain Behavior talk about pain scale

Scale related to the individual talking about his/her pain in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a General (For all diseases) General (For all diseases)
C56582 PROMIS - Pain Behavior show on face scale

Scale related to pain showing on an individual's face in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a General (For all diseases) General (For all diseases)
C56583 PROMIS - Pain Behavior move slower scale

Scale related to an individual moving slower in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a General (For all diseases) General (For all diseases)
C56584 PROMIS - Pain Behavior protect part of body hurt scale

Scale related to the individual protecting the part of his/her body that hurt in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a General (For all diseases) General (For all diseases)
C56578 PROMIS - Meaning and Purpose reason for living scale

Scale related to an individual feeling as if he/she has a reason for living, as part of the PROMIS Meaning and Purpose

Supplemental PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a General (For all diseases) General (For all diseases)
C56579 PROMIS - Meaning and Purpose know where going life scale

Scale related to an individual knowing where he/she is going in life, as part of the PROMIS Meaning and Purpose

Supplemental PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a General (For all diseases) General (For all diseases)
C56580 PROMIS - Meaning and Purpose positive about future scale

Scale related to an individual being positive about his/her future, as part of the PROMIS Meaning and Purpose

Supplemental PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a General (For all diseases) General (For all diseases)
C56581 PROMIS - Meaning and Purpose expect enjoy future life scale

Scale related to an individual expecting to enjoy his/her future life, as part of the PROMIS Meaning and Purpose

Supplemental PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a General (For all diseases) General (For all diseases)
C56576 PROMIS - Meaning and Purpose life filled meaning scale

Scale related to an individual feeling as if his/her life is filled with meaning, as part of the PROMIS Meaning and Purpose

Supplemental PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a General (For all diseases) General (For all diseases)
C56574 PROMIS - Meaning and Purpose hopeful about future scale

Scale related to an individual feeling hopeful about his/her future, as part of the PROMIS Meaning and Purpose

Supplemental PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose-Short Form 4a General (For all diseases) General (For all diseases)
C56575 PROMIS - Meaning and Purpose can reach goal scale

Scale related to an individual feeling he/she can reach his/her goals in life, as part of the PROMIS Meaning and Purpose

Supplemental PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose-Short Form 4a General (For all diseases) General (For all diseases)
C56576 PROMIS - Meaning and Purpose life filled meaning scale

Scale related to an individual feeling as if his/her life is filled with meaning, as part of the PROMIS Meaning and Purpose

Supplemental PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose-Short Form 4a General (For all diseases) General (For all diseases)
C56577 PROMIS - Meaning and Purpose life purpose scale

Scale related to an individual feeling as if his/her life has purpose, as part of the PROMIS Meaning and Purpose

Supplemental PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose-Short Form 4a General (For all diseases) General (For all diseases)
C56574 PROMIS - Meaning and Purpose hopeful about future scale

Scale related to an individual feeling hopeful about his/her future, as part of the PROMIS Meaning and Purpose

Supplemental PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a General (For all diseases) General (For all diseases)
Displaying 1 - 25 of 1696

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.