CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0003-C19069	C19069	Screening visit eligibility other text	The free-text field related to 'Screening visit eligibility status' specifying other text. The status determined from screening criteria that indicates whether a participant/subject may be eligible for a study	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F0003-C17399	C17399	Global unique identifier number	Number representing the Global Unique ID (GUID) which uniquely identifies a participant	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F0003-C19070	C19070	Screening visit ineligibility primary other text	The free-text field related to 'Screening visit ineligibility primary reason' specifying other text. The primary reason identified during a screening visit which makes the potential participant/subject not eligible for a study	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F0003-C18492	C18492	Screening visit date and time	Date (and time, if applicable and known) the participant/subject was interviewed and screened for potential enrollment into the study	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F0003-C19071	C19071	Screening visit not enrolled primary other text	The free-text field related to 'Screening visit not enrolled primary reason' specifying other text. The primary reason to indicate why the potential participant/subject is not enrolled in a study during a screening visit	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F0003-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Screening Log	False	General (For all diseases)	General (For all diseases)
F0002-C02204	C02204	Protocol deviation occurrence date and time	Date (and time, if applicable and known) on which the protocol deviation occurred	Supplemental	Protocol Deviations	False	General (For all diseases)	General (For all diseases)
F0002-C02205	C02205	Protocol deviation description text	Description of the protocol deviation which includes reasons and contributing factors	Supplemental	Protocol Deviations	False	General (For all diseases)	General (For all diseases)
F0002-C02206	C02206	Protocol deviation occurrence indicator	Indicator of whether any protocol deviations took place during the participant's/subject's involvement in the study	Supplemental	Protocol Deviations	False	General (For all diseases)	General (For all diseases)
F0020-C02025	C02025	Medication prior or concomitant RXNorm code	Code for name of the prior/concomitant agent or drug administered	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F0020-C02008	C02008	Medication prior or concomitant end date and time	The date (and time, if applicable and known) the administration of the prior/concomitant medication ended	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F0020-C18736	C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F0020-C02011	C02011	Medication prior or concomitant dose frequency	Frequency of use of a prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F0020-C18737	C18737	Medication prior or concomitant route type other text	The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F0020-C02013	C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F0020-C02014	C02014	Medication prior or concomitant name	Name of the prior/concomitant agent or drug administered	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F0020-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F0020-C02016	C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F0020-C02002	C02002	Medication prior or concomitant use indicator	Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F0020-C02022	C02022	Medication prior or concomitant dose unit of measure	Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F0020-C02003	C02003	Medication prior or concomitant ongoing indicator	Indicator of or description that the prior/concomitant medication usage is ongoing	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F0020-C02024	C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F0020-C02006	C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F0037-C01013	C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Supplemental	Physical Exam	False	General (For all diseases)	General (For all diseases)
F0037-C01014	C01014	Physical exam abnormality significance type	An indication if the physical exam abnormality in a specific body system is clinically significant	Supplemental	Physical Exam	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.