CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 740
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21111 Form not completed indicator

Indicator for the incompletion of the form

 Supplemental Visit Checklist False General (For all diseases) General (For all diseases)
C05120 Study therapy session actual duration

Duration of the actual study therapy session in minutes

 Supplemental Study Therapies Compliance False General (For all diseases) General (For all diseases)
C05122 Study therapy administered date and time

Date (and time, if applicable and known) the study therapy was administered to the participant/subject

 Supplemental Study Therapies Compliance False General (For all diseases) General (For all diseases)
C05123 Study therapy session expected duration

Duration expected of the study therapy session in minutes according to study protocol

 Supplemental Study Therapies Compliance False General (For all diseases) General (For all diseases)
C02023 Study drug dose unit of measure

Unit of measure of the study drug dosage administered

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C02026 Study drug dose unit of measure UCUM code

Code that represents the dosage unit of measure of the study drug administered

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C02007 Study drug dose

Dose of study drug taken per administration

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C02009 Study drug end date and time

Date (and time, if applicable and known) the administration of the study drug ended

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C02012 Study drug dose frequency

Frequency of use of study drug

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C02017 Study drug start date and time

Date (and time, if applicable and known) on which the study drug usage begins

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C02018 Study drug dispensed count

Count of amount of study drug dispensed to the participant/subject

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02019 Study drug actual return count

Count of amount of study drug returned

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02020 Study drug expected returned count

Count of expected amount of study drug returned

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02021 Study drug expected taken count

Count of expected amount of study drug taken

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02004 Study drug dispensed date and time

Date (and time, if applicable and known) on which a participant/subject was given or applied a therapeutic agent (drug, intervention therapy) used in a clinical trial protocol

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02005 Study drug returned date and time

Date (and time, if applicable and known) on which the study drug was returned

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02010 Study drug dosage form text

Text of dosage form used to administer study drug

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02202 Off study date and time

Date (and time, if applicable and known) when participant/subject completes study or is prematurely withdrawn from study (i.e., is not being followed and will not receive intervention/treatment)

 Supplemental Study Discontinuation/Completion False General (For all diseases) General (For all diseases)
C02203 Off study reason

Primary reason participant/ subject is no longer participating in study (i.e., is not being followed and will not receive intervention/treatment)

 Supplemental Study Discontinuation/Completion False General (For all diseases) General (For all diseases)
C02222 Off study intervention prematurely reason

Primary reason participant/subject discontinued study intervention before planned end of study

 Supplemental Study Discontinuation/Completion False General (For all diseases) General (For all diseases)
C18740 Off study intervention prematurely other text

The free-text field related to 'Off study intervention prematurely reason' specifying other text. Primary reason participant/subject discontinued study intervention before planned end of study

 Supplemental Study Discontinuation/Completion False General (For all diseases) General (For all diseases)
C02200 Last study intervention date and time

Date (and time, if applicable) of the last known study intervention that the participant/subject received

 Supplemental Study Discontinuation/Completion False General (For all diseases) General (For all diseases)
C02201 Off study intervention prematurely indicator

Indicator that participant/subject discontinued study intervention before planned end of study

 Supplemental Study Discontinuation/Completion False General (For all diseases) General (For all diseases)
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

 Supplemental Social Status False General (For all diseases) General (For all diseases)
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

 Supplemental Social Status False General (For all diseases) General (For all diseases)
Displaying 26 - 50 of 740

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.