F2056-C21292
C21292
Quality of Life - Middle night physical tension past week scale
The scale representing how often the participant felt physically tense during the middle of the night or early morning hours in the past 7 days, as part of Neuro-QOL Sleep Disturbance
Supplemental
Neuro-QOL Adult Bank - Sleep Disturbance
True
General (For all diseases)
General (For all diseases)
F2056-C20816
C20816
Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale
The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Sleep Disturbance
True
General (For all diseases)
General (For all diseases)
F2056-C20822
C20822
Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale
The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Sleep Disturbance
True
General (For all diseases)
General (For all diseases)
F2056-C20852
C20852
Patient-Reported Outcome Measurement Information System (PROMIS) - trouble stay awake during day past week scale
The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Sleep Disturbance
True
General (For all diseases)
General (For all diseases)
F2056-C21288
C21288
Quality of Life - Force awake morning past week scale
The scale representing how often the participant had to force himself/herself to get up in the morning in the past 7 days, as part of Neuro-QOL Sleep Disturbance
Supplemental
Neuro-QOL Adult Bank - Sleep Disturbance
True
General (For all diseases)
General (For all diseases)
F2057-C21303
C21303
Quality of Life - Stigma illness social situation embarassment recent assessment scale
The scale representing how often the participant felt embarassed in social situations because of their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21311
C21311
Quality of Life - Stigma illness speech embarassment recent assessment scale
The scale representing how often the participant felt embarassed about their speech lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21297
C21297
Quality of Life - Stigma illness uncomfortable other people recent assessment scale
The scale representing how often some people seemed uncomfortable with the participant because of their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21304
C21304
Quality of Life - Stigma illness stranger stare recent assessment scale
The scale representing how often strangers tended to stare at the participant because of their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21312
C21312
Quality of Life - Stigma illness different feel compare other people recent assessment scale
The scale representing how often the participant felt different from others because of their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21298
C21298
Quality of Life - Stigma illness physical limit embarassment recent assessment scale
The scale representing how often the participant felt embarassed because of their physical limitations lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21313
C21313
Quality of Life - Stigma illness blame self problem recent assessment scale
The scale representing how often the participant tended to blame himself/herself for their problems lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21305
C21305
Quality of Life - Stigma illness other people attitude worry recent assessment scale
The scale representing how often the participant worried about other people's attitudes towards him/her lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21299
C21299
Quality of Life - Stigma illness unkind treatment recent assessment scale
The scale representing how often people were unkind to the participant because of their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21314
C21314
Quality of Life - Stigma illness new friend avoidance recent assessment scale
The scale representing how often the participant avoided making new friends to avoid telling others about their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21306
C21306
Quality of Life - Stigma illness unfair treatment recent assessment scale
The scale representing how often the participant was treated unfairly by others because of their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21300
C21300
Quality of Life - Stigma illness blame recent assessment scale
The scale representing how often some people acted as though it was the participant's own fault they have this illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21315
C21315
Quality of Life - Stigma illness other people lost job recent assessment scale
The scale representing how often people with the participant's illness lost their jobs when their employers found out about it lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21307
C21307
Quality of Life - Stigma illness affect appearance unhappiness recent assessment scale
The scale representing how often the participant was unhappy about the way their illness affected their appearance lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21293
C21293
Quality of Life - Stigma illness recent assessment scale
The scale representing how often the participant was avoided by some people because of their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21301
C21301
Quality of Life - Stigma illness emotional distance recent assessment scale
The scale representing how often the participant felt emotionally stable lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21316
C21316
Quality of Life - Stigma illness lost friend recent assessment scale
The scale representing how often the participant lost friends by telling them that they have this illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21308
C21308
Quality of Life - Stigma illness difficult maintain cleanliness recent assessment scale
The scale representing how often it was hard for the participant to stay neat and clean because of their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21294
C21294
Quality of Life - Stigma illness left out event recent assessment scale
The scale representing how often the participant felt left out of things because of their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2057-C21302
C21302
Quality of Life - Stigma illness ridicule recent assessment scale
The scale representing how often people made fun of the participant because of their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)