CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 151 - 175 of 755

« first
‹ previous
…
3
4
5
6
7
8
9
10
11
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0039-C04508	C04508	ECG previous myocardial infarction status	Status of patterns of previous myocardial infarction apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	General (For all diseases)	General (For all diseases)
F2050-C21203	C21203	Quality of Life - Plan activity ahead time difficulty scale	The scale which represents the amount of difficulty the participant currently has in planning an activity several days in advance (e.g., a meal, trip, or visit to friends), as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C10778	C10778	Electrophysiology motor unit number estimation muscle studied name	Name of the muscle studied using the MUNE (motor unit number estimation) technique	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0009-C02307	C02307	Adverse event verbatim term text	The free-text field that describes the adverse event word for word as described by the participant	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0025-C18731	C18731	Lab test other text	The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions	Supplemental	Laboratory Tests and Tracking	False	General (For all diseases)	General (For all diseases)
F0003-C02210	C02210	Enrolled in study indicator	Indicator of whether the participant/subject was enrolled into the clinical research study	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F0004-C02311	C02311	Adverse event MedDRA lowest level term code	Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lowest Level Term (LLT) for an adverse event	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F2052-C21233	C21233	Quality of Life - Feel unloved past week scale	The scale representing how often the participant felt unloved in the past 7 days, as part of Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F1062-C12738	C12738	Needle electromyography interference pattern analysis result	The result of the interference pattern analysis measure during needle electromyography	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2058-C21129	C21129	Quality of Life - Movement touch-tone phone call ability scale	The scale which represents the extent to which the participant was able to make a phone call using a touch tone key-pad, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
F0039-C18776	C18776	ECG atrial arrhythmia type other text	The free-text field related to 'ECG atrial arrhythmia type', specifying other text. Type of atrial arrhythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	General (For all diseases)	General (For all diseases)
F2050-C21211	C21211	Quality of Life - Trouble keep track interrupt past week scale	The scale representing how often the participant had trouble keeping track of what they were doing if they were interrupted in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C12697	C12697	Electrophysiology motor nerve latency value	The length of time needed for the electrical impulse to travel between the stimulation and recording sites measured during the motor nerve conduction study	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0009-C60387	C60387	Adverse event ongoing indicator	Indicator of whether the adverse event experienced by the participant is ongoing	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0026-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0003-C18494	C18494	Screening visit ineligibility primary reason	The primary reason identified during a screening visit which makes the potential participant/subject not eligible for a study	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F0004-C20398	C20398	Serious adverse event study intervention administration text	The free-text field to describe the administration of study intervention	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F2053-C21317	C21317	Quality of Life - Movement sit stand toilet seat scale	The scale which represents the extent to which the participant was able to get on and off the toilet, as part of Neuro-QOL Lower Extremity Function	Supplemental	Neuro-QOL Adult Bank - Lower Extremity Function	True	General (For all diseases)	General (For all diseases)
F1062-C12746	C12746	Electrophysiology fiber density quantitative result value	Fiber density measured for a particular muscle and side	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2058-C21137	C21137	Quality of Life - Movement dress pullover shirt off difficulty scale	The scale which represents the amount of difficulty the participant currently has in taking off a pullover shirt, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
F1053-C02498	C02498	Imaging scanner software version number text	Free-text field specifying the version number of the imaging scanner software	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2050-C21219	C21219	Quality of Life - Thought formation trouble past week scale	The scale representing how often the participant had trouble forming thoughts in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C12705	C12705	Electrophysiology sensory nerve velocity measurement	The signal transmission speed measured during the sensory nerve conduction study	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0010-C00705	C00705	Alcohol current use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F0026-C18767	C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)

Displaying 151 - 175 of 755

« first
‹ previous
…
3
4
5
6
7
8
9
10
11
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.