CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 626 - 650 of 755

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0017-C02203	C02203	Off study reason	Primary reason participant/ subject is no longer participating in study (i.e., is not being followed and will not receive intervention/treatment)	Supplemental	Study Discontinuation/Completion	False	General (For all diseases)	General (For all diseases)
F1053-C10591	C10591	Imaging phase encode direction text	Text description of the phase encode direction used in imaging technique acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F0012-C02217	C02217	Inclusion criterion not met number	Inclusion criterion number(s) the participant/subject did not meet	Supplemental	Inclusion and Exclusion Criteria	False	General (For all diseases)	General (For all diseases)
F2055-C20767	C20767	Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance ability satisfaction past week scale	The scale which represents the extent of the participant's satisfaction with his/her ability to perform daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F2048-C21165	C21165	Quality of Life - Home fun limit activity past week scale	The scale representing how often the participant had to limit the things they do for fun at home (like reading, listening to music, etc) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F0004-C60370	C60370	Serious adverse event ongoing indicator	Indicator of whether the serious adverse event experienced by the participant is ongoing	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F2054-C21242	C21242	Quality of Life - Satisfaction hopeful recent assessment scale	The scale representing how often the participant felt hopeful lately, as part of Neuro-QOL Positive Affect and Well-Being	Supplemental	Neuro-QOL Adult Bank - Positive Affect and Well-Being	True	General (For all diseases)	General (For all diseases)
F1062-C12765	C12765	Electrophysiology short pre-exercise compound muscle action potential time	The time intervals used to measure compound muscle action potential (CMAP) during pre-exercise	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1055-C10576	C10576	Imaging in plane resolution axis 1 measurement	Measurement of axis 1 of in-plane spatial resolution used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F0020-C02013	C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F1053-C10687	C10687	Imaging diffusion first b value	Value, in square millimeters per second, of the first b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F0013-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's medical history	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F2055-C21269	C21269	Quality of Life - Socialize ability family disappointment past week scale	The scale which represents the extent to which the participant felt that their family was disappointed in their ability to socialize with them in the past 7 days, as part of Neuro-QOL Satisfaction with SRA	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F2048-C21173	C21173	Quality of Life - Social communication maintanence trouble past week scale	The scale representing how often the participant had trouble keeping in touch with others in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F0004-C60378	C60378	Serious adverse event other important medical event text	The free-text field to describe the medically important event not covered by other 'serious' criteria	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F2054-C21250	C21250	Quality of Life - Satisfaction life enjoyment ability recent assessment scale	The scale representing how often the participant was able to enjoy life lately, as part of Neuro-QOL Positive Affect and Well-Being	Supplemental	Neuro-QOL Adult Bank - Positive Affect and Well-Being	True	General (For all diseases)	General (For all diseases)
F1062-C17969	C17969	Electrophysiology sensory nerve segment name	The name of the segment used in sensory nerve conduction studies	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1055-C10592	C10592	Imaging flow compensation indicator	Indicator of whether flow compensation was used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F0020-C18737	C18737	Medication prior or concomitant route type other text	The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F1053-C17795	C17795	Imaging diffusion third b value	Value, in square millimeters per second, of the third b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F0013-C59686	C59686	COVID-19 status reason	Reason related to the status of whether the participant/subject thinks that they have or have had coronavirus disease 2019 (COVID-19)	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F2055-C21277	C21277	Quality of Life - Leisure activity ability disappointment past week scale	The scale which represents the extent to which the participant was disappointed in their ability to do leisure activites in the past 7 days, as part of Neuro-QOL Satisfaction with SRA	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F0010-C00704	C00704	Alcohol drinking day average drinks consumed range	The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F0026-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0005-C14123	C14123	Country of residence name	Country where the participant/subject currently lives	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.