CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1062-C12729	C12729	Needle electromyography spontaneous activity type	The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0039-C04507	C04507	ECG complete bundle branch block status	Status of complete bundle branch block on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	General (For all diseases)	General (For all diseases)
F2056-C21288	C21288	Quality of Life - Force awake morning past week scale	The scale representing how often the participant had to force himself/herself to get up in the morning in the past 7 days, as part of Neuro-QOL Sleep Disturbance	Supplemental	Neuro-QOL Adult Bank - Sleep Disturbance	True	General (For all diseases)	General (For all diseases)
F1062-C10777	C10777	Electrophysiology study type	Type of electrophysiology study conducted	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2049-C20776	C20776	Quality of Life - Startle ease assessment past week scale	The scale which represents how often the participant was easily startled in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	Supplemental	Neuro-QOL Adult Bank - Anxiety	True	General (For all diseases)	General (For all diseases)
F2055-C20750	C20750	Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship time spent visit satisfaction past week scale	The scale which represents the extent of the participant's satisfaction with the amount of time spent visiting his/her friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F2048-C21155	C21155	Quality of Life - Family need satisfaction problem past week scale	The scale representing how often the participant had trouble meeting the needs of their family in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F1062-C12737	C12737	Needle electromyography interference pattern analysis technique name	The interference pattern technique used for analysis measure during needle electromyography	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0039-C04515	C04515	ECG ventricular arrhythmia type	Type of ventricular arrythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	General (For all diseases)	General (For all diseases)
F2057-C21296	C21296	Quality of Life - Stigma illness embarrassment recent assessment scale	The scale representing how often the participant felt embarrassed about their illness lately, as part of Neuro-QOL Stigma	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)
F1062-C12696	C12696	Electrophysiology motor nerve segment name	The name of the segment used for the motor nerve conduction study	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2049-C20791	C20791	Quality of Life - Relax trouble assessment past week scale	The scale which represents how often the participant had trouble relaxing in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	Supplemental	Neuro-QOL Adult Bank - Anxiety	True	General (For all diseases)	General (For all diseases)
F0026-C01535	C01535	Respiratory rate	Rate of the participant's breathing (inhalation and exhalation)	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F2055-C20759	C20759	Patient-Reported Outcome Measurement Information System (PROMIS) - Work ability satisfaction past week scale	The scale which represents how often the participant's satisfaction with his/her ability to work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F2048-C21163	C21163	Quality of Life - Friend activity satisfactory past week scale	The scale representing how often the participant was able to do all of the activities with friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F2059-C20552	C20552	Quality of Life in Neurological Disorders (Neuro-Qol) - Tiredness fatigue asssessment past week scale	The scale representing how often the participant felt tired in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)
F0010-C00701	C00701	Tobacco use stopped age value	Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F2052-C20694	C20694	Quality of Life - Nothing happy assessment past week scale	The scale which represents how often the participant felt that nothing could cheer him up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F2057-C21303	C21303	Quality of Life - Stigma illness social situation embarassment recent assessment scale	The scale representing how often the participant felt embarassed in social situations because of their illness lately, as part of Neuro-QOL Stigma	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)
F0003-C18496	C18496	Screening visit not enrolled primary reason	The primary reason to indicate why the potential participant/subject is not enrolled in a study during a screening visit	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F1055-C12508	C12508	Imaging radio frequency coil function type	The function of the radio frequency (RF) coil used	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F0025-C01708	C01708	Lab test performed indicator	Indicator of whether the lab test has been performed on the participant/subject	Supplemental	Laboratory Tests and Tracking	False	General (For all diseases)	General (For all diseases)
F1053-C18689	C18689	Imaging anatomic site other text	The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F0017-C02202	C02202	Off study date and time	Date (and time, if applicable and known) when participant/subject completes study or is prematurely withdrawn from study (i.e., is not being followed and will not receive intervention/treatment)	Supplemental	Study Discontinuation/Completion	False	General (For all diseases)	General (For all diseases)
F2059-C20572	C20572	Quality of Life in Neurological Disorders (Neuro-Qol) - Rest during day fatigue assessment past week scale	The scale representing how often the participant was so tired that they needed rest during the day in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.