CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 740
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core General (For all diseases) General (For all diseases)
C02311 Adverse event MedDRA lower level term code

Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C21238 Quality of Life - Movement outdoor slippery surface walk difficulty scale

The scale which represents the amount of difficulty the participant currently has in walking on a slippery surface, outdoors, as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C10583 Imaging base resolution value

Value in points of the base resolution used in imaging acquisition as part of Diffusion Tensor Imaging (DTI)

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C12743 Electrophysiology neuromuscular jitter mean consecutive difference average value

Value, in microseconds, for the average of mean consecutive differences (MCD) recorded for the neuromuscular jitter study being described

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21134 Quality of Life - Movement shampoo hair ability scale

The scale which represents the extent to which the participant was able to shampoo their hair, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C21216 Quality of Life - Familiar person name remember difficulty past week scale

The scale representing how often the participant had trouble remembering the name of a familiar person in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C02213 Randomized indicator

Indicator of whether the participant/subject was randomly assigned (i.e., by chance not choice) to an intervention/treatment group or control group.

Supplemental Informed Consent and Enrollment General (For all diseases) General (For all diseases)
C12702 Electrophysiology sensory nerve impulse direction type

The impulse direction put on the nerve during the sensory nerve conduction study

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C20393 Serious adverse event start date and time

Date (and time, if applicable and known) on which the serious adverse event was first evident

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C21322 Quality of Life - Movement errand shop ability scale

The scale which represents the extent to which the participant was able to run errands and shop, as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C10592 Imaging flow compensation indicator

Indicator of whether flow compensation was used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C12754 Electrophysiology mean circular result

The mean circular result (MCR) measured during autonomic function testing

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21142 Quality of Life - Movement pull trouser on ability scale

The scale which represents the extent to which the participant was able to pull on trousers, as part of Neuro-QOL Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C21224 Quality of Life - Trouble make decision past week scale

The scale representing how often the participant had trouble making decisions in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C04506 ECG right ventricular hypertrophy status

Status of right ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram (ECG) General (For all diseases) General (For all diseases)
C12710 Electrophysiology assessment date and time

Date the particular electrophysiology study was performed

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C20401 Serious adverse event reappearance indicator

Indicate whether the adverse event reappeared after the treatment was restarted

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C21330 Quality of Life - Movement uneven surface walk difficulty scale

The scale which represents the amount of difficulty the participant currently has in walking on uneven surfaces (e.g., grass, dirt road or sidewalk), as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C12762 Electrophysiology quantitative sweat function foot measurement

The amount of sweat collected on the foot

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C20548 Quality of Life in Neurological Disorders (Neuro-Qol) - No household chore fatigue assessment past week scale

The scale representing how often the participant felt too tired to do household chores in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

Supplemental Neuro-QOL Adult Bank - Fatigue General (For all diseases) General (For all diseases)
C20691 Quality of Life - Nothing interest future assessment past week scale

The scale which represents how often the participant felt that he/she had nothing to look forward to in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C04514 ECG T wave abnormality status

Status of an abnormal T wave on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram (ECG) General (For all diseases) General (For all diseases)
C12719 Electrophysiology repetitive nerve stimulation study preactivation amplitude measurement

Measurement, in mV, of the amplitude of the preactivation being described for the repetitive nerve study being recorded

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

Supplemental Vital Signs General (For all diseases) General (For all diseases)
Displaying 1 - 25 of 740

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.