CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1696
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core General (For all diseases) General (For all diseases)
C21198 Quality of Life - Keep track time difficulty scale

The scale which represents the amount of difficulty the participant currently has in keeping track of time (e.g., using a clock), as part of Neuro-QOL Cognitive Function.

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C12743 Electrophysiology neuromuscular jitter mean consecutive difference average value

Value, in microseconds, for the average of mean consecutive differences (MCD) recorded for the neuromuscular jitter study being described

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C56461 PROMIS - Pain Behavior limp because pain scale

Scale related to the individual feeling as if he/she limped because of pain in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Item Bank v1.1 - Pain Behavior General (For all diseases) General (For all diseases)
C56069 PROMIS - Smoking nicotine dependence smoke when ill in bed scale

Scale related to an individual smoking even when he/she is so ill that he/she is in bed most of the day, as part of the PROMIS Smoking Nicotine Dependence

Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for All Smokers General (For all diseases) General (For all diseases)
C01541 Weight measurement

Measurement of participant's/subject's weight

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C12702 Electrophysiology sensory nerve impulse direction type

The impulse direction put on the nerve during the sensory nerve conduction study

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C00703 Tobacco use started age value

Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C55735 PROMIS - Sleep Related Impairment woke up start day scale

Scale related to an individual feeling ready to start the day when he/she woke up, as part of the PROMIS Sleep Related Impairment

Supplemental PROMIS Item Bank v1.0 - Sleep Related Impairment General (For all diseases) General (For all diseases)
C56383 PROMIS - Smoking social motivation enjoy social aspect of smoke with others scale

Scale related to an individual enjoying the social aspect of smoking with other smokers, as part of the PROMIS Smoking Social Motivation

Supplemental PROMIS Item Bank v1.0 - Smoking: Social Motivations for Daily Smokers General (For all diseases) General (For all diseases)
C10963 Imaging B0-susceptibility distortion correction indicator

Indicator as to whether image post-processing has included co-registering to T2-weighted image(s) for B0-susceptibility distortion correction.

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C55432 PROMIS - Anxiety twitch tremble muscles scale

Scale related to an individual having twitching or trembling muscles, as part of the PROMIS Anxiety

Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Anxiety General (For all diseases) General (For all diseases)
C55992 PROMIS - Smoking negative health expectancies worry smoke ruin quality of life scale

Scale related to an individual worrying that smoking will lower his/her life, as part of the PROMIS Smoking Negative Health Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Daily Smokers General (For all diseases) General (For all diseases)
C19069 Screening visit eligibility other text

The free-text field related to 'Screening visit eligibility status' specifying other text. The status determined from screening criteria that indicates whether a participant/subject may be eligible for a study.

Supplemental Screening Log General (For all diseases) General (For all diseases)
C58681 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health.

Supplemental PROMIS Item Bank v1.2 - Global Health General (For all diseases) General (For all diseases)
C55686 PROMIS - Dyspnea Functional limitations lift something weigh 5 10 pound scale

Scale related to an individual being able to lift something weighing 5-10 lbs (about 2-4.5 kg, like a basket of clothes), as part of the PROMIS Dyspnea Functional Limitations

Supplemental PROMIS Item Bank v1.0 - Dyspnea Functional Limitations General (For all diseases) General (For all diseases)
C18776 ECG atrial arrhythmia other text

The free-text field related to 'ECG atrial arrhythmia type' specifying other text. Type of atrial arrhythmia, if any, apparent on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram (ECG) General (For all diseases) General (For all diseases)
C20577 Quality of Life in Neurological Disorders (Neuro-Qol) - Limit social activity physical weakness fatigue asssessment past week scale

The scale representing how often the participant had to limit social activity because of being physically weak in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).

Supplemental Neuro-QOL Adult Bank - Fatigue General (For all diseases) General (For all diseases)
C55387 PROMIS - Positive consequences calm down when drink scale

Scale related to if the individual calming down when he/she drank, as part of the PROMIS Positive Consequences

Supplemental PROMIS Item Bank v1.0 - Alcohol - Positive Consequences General (For all diseases) General (For all diseases)
C20736 Quality of Life - Pessimism assessment past week scale

The scale which represents how often the participant felt pessimistic in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression.

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C20848 Patient-Reported Outcome Measurement Information System (PROMIS) - Irritability poor sleep past week scale

The scale which represents how often the participant felt irritable because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental PROMIS Item Bank v1.0 - Sleep Related Impairment General (For all diseases) General (For all diseases)
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature.

Supplemental Vital Signs General (For all diseases) General (For all diseases)
C21314 Quality of Life - Stigma illness new friend avoidance recent assessment scale

The scale representing how often the participant avoided making new friends to avoid telling others about their illness lately, as part of Neuro-QOL Stigma.

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C21206 Quality of Life - Remember errand not written difficulty scale

The scale which represents the amount of difficulty the participant currently has in remembering a list of 4 to 5 errands without writing it down, as part of Neuro-QOL Cognitive Function.

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C12754 Electrophysiology mean circular result

The mean circular result (MCR) measured during autonomic function testing

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
Displaying 1 - 25 of 1696

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.