CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	General (For all diseases)	General (For all diseases)
F2050-C21217	C21217	Quality of Life - Clear thought difficulty past week scale	The scale representing how often the participant had trouble thinking clearly in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F0009-C02301	C02301	Adverse event end date and time	Date (and time, if applicable and known) on which the adverse event discontinued/stopped	Supplemental	Adverse Events	False	General (For all diseases)	General (For all diseases)
F2048-C21154	C21154	Quality of Life - Work responsibility maintain ability past week scale	The scale representing how often the participant could keep up with their work responsibilities (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F0002-C02204	C02204	Protocol deviation occurrence date and time	Date (and time, if applicable and known) on which the protocol deviation occurred	Supplemental	Protocol Deviations	False	General (For all diseases)	General (For all diseases)
F1062-C17969	C17969	Electrophysiology sensory nerve segment name	The name of the segment used in sensory nerve conduction studies	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2515-C55586	C55586	PROMIS - Applied Cognition general concerns work hard to keep track scale	Scale related to an individual having to work harder than usual to keep track of what he/she was doing, as part of the PROMIS Applied Cognition General Concerns	Supplemental	PROMIS Item Bank v1.0 - Applied Cognition - General Concerns	False	General (For all diseases)	General (For all diseases)
F2454-C54693	C54693	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out physical activity scale	Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	General (For all diseases)	General (For all diseases)
F1055-C10595	C10595	Imaging parallel acquisition used type	Type of the parallel acquisition method used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F2514-C55514	C55514	PROMIS - Applied Cognition abilities remember name of object scale	Scale related to an individual being able to remember the name of a familiar object, as part of PROMIS Applied Cognition Abilities	Supplemental	PROMIS Item Bank v1.0 - Applied Cognition - Abilities	False	General (For all diseases)	General (For all diseases)
F2066-C20844	C20844	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep every opportunity past week scale	The scale which represents how often the participant tried to sleep whenever he/she could in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	General (For all diseases)	General (For all diseases)
F1053-C17811	C17811	Imaging phase partial Fourier value	Value of the phase partial Fourier ratio, if used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2050-C21225	C21225	Quality of Life - Trouble plan task step past week scale	The scale representing how often the participant had trouble planning out steps of a task in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F0009-C02309	C02309	Serious adverse event indicator	The indicator of whether the adverse event is serious.	Supplemental	Adverse Events	False	General (For all diseases)	General (For all diseases)
F2048-C21162	C21162	Quality of Life - Friend visit limit ability past week scale	The scale representing how often the participant felt limited in their ability to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F2049-C20787	C20787	Quality of Life - Nervousness assessment past week scale	The scale which represents how often the participant felt nervous in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	Supplemental	Neuro-QOL Adult Bank - Anxiety	True	General (For all diseases)	General (For all diseases)
F0003-C02217	C02217	Inclusion criterion not met number	Inclusion criterion number(s) the participant/subject did not meet	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F2515-C55594	C55594	PROMIS - Applied Cognition general concerns upset about problem with memory scale	Scale related to an individual being upset about his/her problems with memory, concentration, or making mental mistakes, as part of the PROMIS Applied Cognition General Concerns	Supplemental	PROMIS Item Bank v1.0 - Applied Cognition - General Concerns	False	General (For all diseases)	General (For all diseases)
F2514-C55492	C55492	PROMIS - Applied Cognition abilities pay attention keep track scale	Scale related to an individual being able to pay attention and keep track of what he/she was doing without extra effort, as part of PROMIS Applied Cognition Abilities	Supplemental	PROMIS Item Bank v1.0 - Applied Cognition - Abilities	False	General (For all diseases)	General (For all diseases)
F1055-C12536	C12536	Imaging dimension type	Type of imaging dimension used	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F2514-C55524	C55524	PROMIS - Applied Cognition abilities follow drive directions scale	Scale related to an individual's ability to follow driving directions being as good as usual, as part of PROMIS Applied Cognition Abilities	Supplemental	PROMIS Item Bank v1.0 - Applied Cognition - Abilities	False	General (For all diseases)	General (For all diseases)
F2066-C20852	C20852	Patient-Reported Outcome Measurement Information System (PROMIS) - trouble stay awake during day past week scale	The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	General (For all diseases)	General (For all diseases)
F1053-C18703	C18703	Imaging parallel acquisition used other text	The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2052-C20692	C20692	Quality of Life - Helplessness assessment past week scale	The scale which represents how often the participant felt helpless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F0010-C00702	C00702	Alcohol use started age value	Age in years when participant/subject started ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.