CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	General (For all diseases)	General (For all diseases)
C21198	Quality of Life - Keep track time difficulty scale	The scale which represents the amount of difficulty the participant currently has in keeping track of time (e.g., using a clock), as part of Neuro-QOL Cognitive Function.	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
C12743	Electrophysiology neuromuscular jitter mean consecutive difference average value	Value, in microseconds, for the average of mean consecutive differences (MCD) recorded for the neuromuscular jitter study being described	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
C56461	PROMIS - Pain Behavior limp because pain scale	Scale related to the individual feeling as if he/she limped because of pain in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
C56069	PROMIS - Smoking nicotine dependence smoke when ill in bed scale	Scale related to an individual smoking even when he/she is so ill that he/she is in bed most of the day, as part of the PROMIS Smoking Nicotine Dependence	Supplemental	PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for All Smokers	False	General (For all diseases)	General (For all diseases)
C01541	Weight measurement	Measurement of participant's/subject's weight	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
C12702	Electrophysiology sensory nerve impulse direction type	The impulse direction put on the nerve during the sensory nerve conduction study	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
C00703	Tobacco use started age value	Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
C55735	PROMIS - Sleep Related Impairment woke up start day scale	Scale related to an individual feeling ready to start the day when he/she woke up, as part of the PROMIS Sleep Related Impairment	Supplemental	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	General (For all diseases)	General (For all diseases)
C56383	PROMIS - Smoking social motivation enjoy social aspect of smoke with others scale	Scale related to an individual enjoying the social aspect of smoking with other smokers, as part of the PROMIS Smoking Social Motivation	Supplemental	PROMIS Item Bank v1.0 - Smoking: Social Motivations for Daily Smokers	False	General (For all diseases)	General (For all diseases)
C10963	Imaging B0-susceptibility distortion correction indicator	Indicator as to whether image post-processing has included co-registering to T2-weighted image(s) for B0-susceptibility distortion correction.	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
C55432	PROMIS - Anxiety twitch tremble muscles scale	Scale related to an individual having twitching or trembling muscles, as part of the PROMIS Anxiety	Supplemental	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	General (For all diseases)	General (For all diseases)
C55992	PROMIS - Smoking negative health expectancies worry smoke ruin quality of life scale	Scale related to an individual worrying that smoking will lower his/her life, as part of the PROMIS Smoking Negative Health Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Daily Smokers	False	General (For all diseases)	General (For all diseases)
C19069	Screening visit eligibility other text	The free-text field related to 'Screening visit eligibility status' specifying other text. The status determined from screening criteria that indicates whether a participant/subject may be eligible for a study.	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
C58681	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale	Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health.	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	General (For all diseases)	General (For all diseases)
C55686	PROMIS - Dyspnea Functional limitations lift something weigh 5 10 pound scale	Scale related to an individual being able to lift something weighing 5-10 lbs (about 2-4.5 kg, like a basket of clothes), as part of the PROMIS Dyspnea Functional Limitations	Supplemental	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	General (For all diseases)	General (For all diseases)
C18776	ECG atrial arrhythmia other text	The free-text field related to 'ECG atrial arrhythmia type' specifying other text. Type of atrial arrhythmia, if any, apparent on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	General (For all diseases)	General (For all diseases)
C20577	Quality of Life in Neurological Disorders (Neuro-Qol) - Limit social activity physical weakness fatigue asssessment past week scale	The scale representing how often the participant had to limit social activity because of being physically weak in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)
C55387	PROMIS - Positive consequences calm down when drink scale	Scale related to if the individual calming down when he/she drank, as part of the PROMIS Positive Consequences	Supplemental	PROMIS Item Bank v1.0 - Alcohol - Positive Consequences	False	General (For all diseases)	General (For all diseases)
C20736	Quality of Life - Pessimism assessment past week scale	The scale which represents how often the participant felt pessimistic in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression.	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
C20848	Patient-Reported Outcome Measurement Information System (PROMIS) - Irritability poor sleep past week scale	The scale which represents how often the participant felt irritable because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).	Supplemental	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	General (For all diseases)	General (For all diseases)
C01539	Temperature measurement	Measurement of the participant's/subject's body temperature.	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
C21314	Quality of Life - Stigma illness new friend avoidance recent assessment scale	The scale representing how often the participant avoided making new friends to avoid telling others about their illness lately, as part of Neuro-QOL Stigma.	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)
C21206	Quality of Life - Remember errand not written difficulty scale	The scale which represents the amount of difficulty the participant currently has in remembering a list of 4 to 5 errands without writing it down, as part of Neuro-QOL Cognitive Function.	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
C12754	Electrophysiology mean circular result	The mean circular result (MCR) measured during autonomic function testing	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.