CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	General (For all diseases)	General (For all diseases)
C56066	PROMIS - Smoking nicotine dependence real gnaw hunger for cigarette scale	Scale related to an individual getting a real gnawing hunger for a cigarette when he/she hasn't smoked in a while, as part of the PROMIS Smoking Nicotine Dependence	Supplemental	PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Daily Smokers	False	General (For all diseases)	General (For all diseases)
C21288	Quality of Life - Force awake morning past week scale	The scale representing how often the participant had to force himself/herself to get up in the morning in the past 7 days, as part of Neuro-QOL Sleep Disturbance	Supplemental	Neuro-QOL Adult Bank - Sleep Disturbance	True	General (For all diseases)	General (For all diseases)
C55216	PROMIS - Alcohol use drink because tense scale	Scale related to an individual drinking because he/she felt tense, as part of the PROMIS Alcohol Use	Supplemental	PROMIS Item Bank v1.0 - Alcohol Use	False	General (For all diseases)	General (For all diseases)
C55756	PROMIS - Smoking coping expectancies smoke allow to take break scale	Scale related to an individual believing smoking allows him/her to take a break from his/her problems for a few minutes, as part of the PROMIS Smoking Coping Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Coping Expectancies for All Smokers	False	General (For all diseases)	General (For all diseases)
C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
C20776	Quality of Life - Startle ease assessment past week scale	The scale which represents how often the participant was easily startled in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	Supplemental	Neuro-QOL Adult Bank - Anxiety	True	General (For all diseases)	General (For all diseases)
C20736	Quality of Life - Pessimism assessment past week scale	The scale which represents how often the participant felt pessimistic in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression	Supplemental	PROMIS Item Bank v1.0 - Emotional Distress - Depression	True	General (For all diseases)	General (For all diseases)
C55506	PROMIS - Applied Cognition abilities able to concentrate scale	Scale related to an individual being able to concentrate, as part of PROMIS Applied Cognition Abilities	Supplemental	PROMIS Item Bank v1.0 - Applied Cognition - Abilities	False	General (For all diseases)	General (For all diseases)
C20750	Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship time spent visit satisfaction past week scale	The scale which represents the extent of the participant's satisfaction with the amount of time spent visiting his/her friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
C54818	PROMIS - Dyspnea severity walk up 30 stair scale	Scale related to the individual being able to walk up 30 stairs (3 flights) without stopping, as part of the PROMIS Dyspnea Severity	Supplemental	PROMIS Item Bank v1.0 - Dyspnea Severity	False	General (For all diseases)	General (For all diseases)
C21155	Quality of Life - Family need satisfaction problem past week scale	The scale representing how often the participant had trouble meeting the needs of their family in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
C00709	Tobacco cigarettes smoked daily average number	Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
C56541	PROMIS - Cognitive Function trouble remember where put thing key scale	Scale related to how often an individual has had trouble remembering where he/she put things, like my keys or his/her wallet in the past 7 days, as part of the PROMIS Cognitive Function	Supplemental	PROMIS Item Bank v2.0 - Cognitive Function	False	General (For all diseases)	General (For all diseases)
C56307	PROMIS - Smoking negative psychosocial expectancies look ridiculous smoke scale	Scale related to an individual believing he/she looks ridiculous while smoking, as part of the PROMIS Smoking Negative Psychosocial Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for All Smokers	False	General (For all diseases)	General (For all diseases)
C21119	Subject home city name	Name of city in which the subject/participant lives	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
C55834	PROMIS - Smoking emotional and sensory expectancies smoke make content scale	Scale related to an individual believing smoking makes him/her feel content, as part of the Smoking Emotional and Sensory Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Emotional and Sensory Expectancies for Daily Smokers	False	General (For all diseases)	General (For all diseases)
C56488	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference feel emotion tense pain scale	Scale related to how often an individual felt emotionally tense because of his/her pain in the past 7 days, as part of the PROMIS Pain Interference	Supplemental	PROMIS Item Bank v1.1 - Pain Interference	False	General (For all diseases)	General (For all diseases)
C10595	Imaging parallel acquisition used type	Type of the parallel acquisition method used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
C55590	PROMIS - Applied Cognition general concerns written lists more often scale	Scale related to an individual having to use written lists more often than usual so he/she would not forget things, as part of the PROMIS Applied Cognition General Concerns	Supplemental	PROMIS Item Bank v1.0 - Applied Cognition - General Concerns	False	General (For all diseases)	General (For all diseases)
C56090	PROMIS - Smoking nicotine dependence craving for cigarette make difficult to quit scale	Scale related to an individual's craving for a cigarette making it difficult for him/her to quit, as part of the Smoking Nicotine Dependence	Supplemental	PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Daily Smokers	False	General (For all diseases)	General (For all diseases)
C55224	PROMIS - Alcohol use typical day drink count scale	Scale related to the count of drinks an individual had on a typical day, as part of the PROMIS Alcohol Use	Supplemental	PROMIS Item Bank v1.0 - Alcohol Use	False	General (For all diseases)	General (For all diseases)
C55750	PROMIS - Smoking coping expectancies angry cigarette calm scale	Scale related to an individual having a cigarette calm him/her down when angry, as part of the PROMIS Smoking Coping Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Coping Expectancies for Daily Smokers	False	General (For all diseases)	General (For all diseases)
C18737	Medication prior or concomitant route type other text	The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
C17811	Imaging phase partial Fourier value	Value of the phase partial Fourier ratio, if used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.