CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	General (For all diseases)	General (For all diseases)
C21133	Quality of Life - Movement body wash dry ability scale	The scale which represents the extent to which the participant was able to wash and dry their body, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
C00724	APGAR five minute score	Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
C10577	Imaging signal averages number	Number of signal acquisitions averaged in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
C21215	Quality of Life - Room Walked into room and forgot why past week scale	The scale representing how often the participant walked into a room and forgot what they meant to do or get there in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
C12719	Electrophysiology repetitive nerve stimulation study preactivation amplitude measurement	Measurement, in mV, of the amplitude of the preactivation being described for the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
C02212	Informed consent obtained date and time	Date (and time, if applicable and known) on which the participant/subject (or the legal representative on behalf of the participant/subject) agrees to participate in a protocol, treatment, or other activity by signing an informed consent document	Supplemental	Informed Consent and Enrollment	False	General (For all diseases)	General (For all diseases)
C20396	Serious adverse event concomitant medications text	The text that describes the concomitant medications taken	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
C56400	PROMIS - Smoking social motivation smoke give something to do with hands scale	Scale related to an individual believing smoking gives him/her something to do with her/his hands, as part of the Smoking Social Motivation	Supplemental	PROMIS Item Bank v1.0 - Smoking: Social Motivations for Nondaily Smokers	False	General (For all diseases)	General (For all diseases)
C55990	PROMIS - Smoking negative health expectancies smoke short of breath scale	Scale related to an individual believing smoking makes him/her short of breath, as part of the PROMIS Smoking Negative Health Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Nondaily Smokers	False	General (For all diseases)	General (For all diseases)
C56572	PROMIS - Life Satisfaction life great scale	Scale related to an individual feeling as if his/her life was great in the past 4 weeks, as part of the PROMIS Life Satisfaction	Supplemental	PROMIS Pediatric Item Bank v1.0 - Life Satisfaction- Short Form 8a	False	General (For all diseases)	General (For all diseases)
C55709	PROMIS - Self Efficacy managing emotions prevent illness from discourage scale	Scale related to an individual being able to prevent his/her illness from making him/her feel discouraged, as part of the PROMIS Self-Efficacy Managing Emotions	Supplemental	PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions	False	General (For all diseases)	General (For all diseases)
C56310	PROMIS - Smoking negative psychosocial expectancies people respect less because smoke scale	Scale related to an individual believing people he/she cares about respect him/her less because he/she smokes, as part of the PROMIS Smoking Negative Psychosocial Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for Nondaily Smokers	False	General (For all diseases)	General (For all diseases)
C20820	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble worry assessment past week scale	The scale which represents how often the participant worried about not being able to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	General (For all diseases)	General (For all diseases)
C55404	PROMIS - Positive expectancies people forget problems when drink scale	Scale related to an individual believing people forget their problems when they drink, as part of the PROMIS Positive Expectancies	Supplemental	PROMIS Item Bank v1.0 - Alcohol - Positive Expectancies	False	General (For all diseases)	General (For all diseases)
C01701	Lab specimen collection date and time	Date (and time if applicable and known) when the specimen was collected	Supplemental	Laboratory Tests and Tracking	False	General (For all diseases)	General (For all diseases)
C55842	PROMIS - Smoking emotional and sensory expectancies smoke make less depressed scale	Scale related to an individual believing smoking makes him/her less depressed, as part of the Smoking Emotional and Sensory Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Emotional and Sensory Expectancies for All Smokers	False	General (For all diseases)	General (For all diseases)
C21321	Quality of Life - Movement push open heavy door ability scale	The scale which represents the extent to which the participant was able to push open a heavy door, as part of Neuro-QOL Lower Extremity Function	Supplemental	Neuro-QOL Adult Bank - Lower Extremity Function	True	General (For all diseases)	General (For all diseases)
C20753	Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability satisfaction past week scale	The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Social Activity	True	General (For all diseases)	General (For all diseases)
C55625	PROMIS - Emotional Distress depression guilty scale	Scale related to the individual feeling guilty, as part of the PROMIS Emotional Distress Depression	Supplemental	PROMIS Item Bank v1.0 - Emotional Distress - Depression (Calibrated Items)	False	General (For all diseases)	General (For all diseases)
C12770	Electrophysiology long pre-exercise compound muscle action potential measurement	Compound muscle action potential (CMAP) measurement recorded pre- long exercise	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
C21141	Quality of Life - Movement full food plate hold ability scale	The scale which represents the extent to which the participant was able to hold a plate full of food, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
C55332	PROMIS - Negative consequences inconsiderate when drink scale	Scale related to an individual being inconsiderate when he/she drank, as part of the PROMIS Negative Consequences	Supplemental	PROMIS Item Bank v1.0 - Alcohol: Negative Consequences	False	General (For all diseases)	General (For all diseases)
C00032	Race USA paternal category	Race(s) the participant/subject's father most closely identifies with	Supplemental	Demographics	False	General (For all diseases)	General (For all diseases)
C10591	Imaging phase encode direction text	Text description of the phase encode direction used in imaging technique acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.