CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 1071
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core General (For all diseases) General (For all diseases)
C21217 Quality of Life - Clear thought difficulty past week scale

The scale representing how often the participant had trouble thinking clearly in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C02301 Adverse event end date and time

Date (and time, if applicable and known) on which the adverse event discontinued/stopped

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C21154 Quality of Life - Work responsibility maintain ability past week scale

The scale representing how often the participant could keep up with their work responsibilities (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C02204 Protocol deviation occurrence date and time

Date (and time, if applicable and known) on which the protocol deviation occurred

Supplemental Protocol Deviations General (For all diseases) General (For all diseases)
C17969 Electrophysiology sensory nerve segment name

The name of the segment used in sensory nerve conduction studies

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C55586 PROMIS - Applied Cognition general concerns work hard to keep track scale

Scale related to an individual having to work harder than usual to keep track of what he/she was doing, as part of the PROMIS Applied Cognition General Concerns

Supplemental PROMIS Item Bank v1.0 - Applied Cognition - General Concerns General (For all diseases) General (For all diseases)
C54693 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out physical activity scale

Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health

Supplemental PROMIS Item Bank v1.2 - Global Health General (For all diseases) General (For all diseases)
C10595 Imaging parallel acquisition used type

Type of the parallel acquisition method used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C55514 PROMIS - Applied Cognition abilities remember name of object scale

Scale related to an individual being able to remember the name of a familiar object, as part of PROMIS Applied Cognition Abilities

Supplemental PROMIS Item Bank v1.0 - Applied Cognition - Abilities General (For all diseases) General (For all diseases)
C20844 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep every opportunity past week scale

The scale which represents how often the participant tried to sleep whenever he/she could in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Related Impairment General (For all diseases) General (For all diseases)
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C21225 Quality of Life - Trouble plan task step past week scale

The scale representing how often the participant had trouble planning out steps of a task in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C02309 Serious adverse event indicator

The indicator of whether the adverse event is serious.

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C21162 Quality of Life - Friend visit limit ability past week scale

The scale representing how often the participant felt limited in their ability to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C20787 Quality of Life - Nervousness assessment past week scale

The scale which represents how often the participant felt nervous in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C02217 Inclusion criterion not met number

Inclusion criterion number(s) the participant/subject did not meet

Supplemental Screening Log General (For all diseases) General (For all diseases)
C55594 PROMIS - Applied Cognition general concerns upset about problem with memory scale

Scale related to an individual being upset about his/her problems with memory, concentration, or making mental mistakes, as part of the PROMIS Applied Cognition General Concerns

Supplemental PROMIS Item Bank v1.0 - Applied Cognition - General Concerns General (For all diseases) General (For all diseases)
C55492 PROMIS - Applied Cognition abilities pay attention keep track scale

Scale related to an individual being able to pay attention and keep track of what he/she was doing without extra effort, as part of PROMIS Applied Cognition Abilities

Supplemental PROMIS Item Bank v1.0 - Applied Cognition - Abilities General (For all diseases) General (For all diseases)
C12536 Imaging dimension type

Type of imaging dimension used

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C55524 PROMIS - Applied Cognition abilities follow drive directions scale

Scale related to an individual's ability to follow driving directions being as good as usual, as part of PROMIS Applied Cognition Abilities

Supplemental PROMIS Item Bank v1.0 - Applied Cognition - Abilities General (For all diseases) General (For all diseases)
C20852 Patient-Reported Outcome Measurement Information System (PROMIS) - trouble stay awake during day past week scale

The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Related Impairment General (For all diseases) General (For all diseases)
C18703 Imaging parallel acquisition used other text

The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C20692 Quality of Life - Helplessness assessment past week scale

The scale which represents how often the participant felt helpless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C00702 Alcohol use started age value

Age in years when participant/subject started ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History General (For all diseases) General (For all diseases)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.