CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1696
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core General (For all diseases) General (For all diseases)
C56066 PROMIS - Smoking nicotine dependence real gnaw hunger for cigarette scale

Scale related to an individual getting a real gnawing hunger for a cigarette when he/she hasn't smoked in a while, as part of the PROMIS Smoking Nicotine Dependence

Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Daily Smokers General (For all diseases) General (For all diseases)
C21288 Quality of Life - Force awake morning past week scale

The scale representing how often the participant had to force himself/herself to get up in the morning in the past 7 days, as part of Neuro-QOL Sleep Disturbance

Supplemental Neuro-QOL Adult Bank - Sleep Disturbance General (For all diseases) General (For all diseases)
C55216 PROMIS - Alcohol use drink because tense scale

Scale related to an individual drinking because he/she felt tense, as part of the PROMIS Alcohol Use

Supplemental PROMIS Item Bank v1.0 - Alcohol Use General (For all diseases) General (For all diseases)
C55756 PROMIS - Smoking coping expectancies smoke allow to take break scale

Scale related to an individual believing smoking allows him/her to take a break from his/her problems for a few minutes, as part of the PROMIS Smoking Coping Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Coping Expectancies for All Smokers General (For all diseases) General (For all diseases)
C02013 Medication prior or concomitant dose unit of measure UCUM code

Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C20776 Quality of Life - Startle ease assessment past week scale

The scale which represents how often the participant was easily startled in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C20736 Quality of Life - Pessimism assessment past week scale

The scale which represents how often the participant felt pessimistic in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Depression General (For all diseases) General (For all diseases)
C55506 PROMIS - Applied Cognition abilities able to concentrate scale

Scale related to an individual being able to concentrate, as part of PROMIS Applied Cognition Abilities

Supplemental PROMIS Item Bank v1.0 - Applied Cognition - Abilities General (For all diseases) General (For all diseases)
C20750 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship time spent visit satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with the amount of time spent visiting his/her friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C54818 PROMIS - Dyspnea severity walk up 30 stair scale

Scale related to the individual being able to walk up 30 stairs (3 flights) without stopping, as part of the PROMIS Dyspnea Severity

Supplemental PROMIS Item Bank v1.0 - Dyspnea Severity General (For all diseases) General (For all diseases)
C21155 Quality of Life - Family need satisfaction problem past week scale

The scale representing how often the participant had trouble meeting the needs of their family in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C00709 Tobacco cigarettes smoked daily average number

Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C56541 PROMIS - Cognitive Function trouble remember where put thing key scale

Scale related to how often an individual has had trouble remembering where he/she put things, like my keys or his/her wallet in the past 7 days, as part of the PROMIS Cognitive Function

Supplemental PROMIS Item Bank v2.0 - Cognitive Function General (For all diseases) General (For all diseases)
C56307 PROMIS - Smoking negative psychosocial expectancies look ridiculous smoke scale

Scale related to an individual believing he/she looks ridiculous while smoking, as part of the PROMIS Smoking Negative Psychosocial Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for All Smokers General (For all diseases) General (For all diseases)
C21119 Subject home city name

Name of city in which the subject/participant lives

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C55834 PROMIS - Smoking emotional and sensory expectancies smoke make content scale

Scale related to an individual believing smoking makes him/her feel content, as part of the Smoking Emotional and Sensory Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Emotional and Sensory Expectancies for Daily Smokers General (For all diseases) General (For all diseases)
C56488 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference feel emotion tense pain scale

Scale related to how often an individual felt emotionally tense because of his/her pain in the past 7 days, as part of the PROMIS Pain Interference

Supplemental PROMIS Item Bank v1.1 - Pain Interference General (For all diseases) General (For all diseases)
C10595 Imaging parallel acquisition used type

Type of the parallel acquisition method used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C55590 PROMIS - Applied Cognition general concerns written lists more often scale

Scale related to an individual having to use written lists more often than usual so he/she would not forget things, as part of the PROMIS Applied Cognition General Concerns

Supplemental PROMIS Item Bank v1.0 - Applied Cognition - General Concerns General (For all diseases) General (For all diseases)
C56090 PROMIS - Smoking nicotine dependence craving for cigarette make difficult to quit scale

Scale related to an individual's craving for a cigarette making it difficult for him/her to quit, as part of the Smoking Nicotine Dependence

Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Daily Smokers General (For all diseases) General (For all diseases)
C55224 PROMIS - Alcohol use typical day drink count scale

Scale related to the count of drinks an individual had on a typical day, as part of the PROMIS Alcohol Use

Supplemental PROMIS Item Bank v1.0 - Alcohol Use General (For all diseases) General (For all diseases)
C55750 PROMIS - Smoking coping expectancies angry cigarette calm scale

Scale related to an individual having a cigarette calm him/her down when angry, as part of the PROMIS Smoking Coping Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Coping Expectancies for Daily Smokers General (For all diseases) General (For all diseases)
C18737 Medication prior or concomitant route type other text

The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
Displaying 1 - 25 of 1696

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.