CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1696
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core General (For all diseases) General (For all diseases)
C21133 Quality of Life - Movement body wash dry ability scale

The scale which represents the extent to which the participant was able to wash and dry their body, as part of Neuro-QOL Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C00724 APGAR five minute score

Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Supplemental Medical History General (For all diseases) General (For all diseases)
C10577 Imaging signal averages number

Number of signal acquisitions averaged in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C21215 Quality of Life - Room Walked into room and forgot why past week scale

The scale representing how often the participant walked into a room and forgot what they meant to do or get there in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C12719 Electrophysiology repetitive nerve stimulation study preactivation amplitude measurement

Measurement, in mV, of the amplitude of the preactivation being described for the repetitive nerve study being recorded

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C02212 Informed consent obtained date and time

Date (and time, if applicable and known) on which the participant/subject (or the legal representative on behalf of the participant/subject) agrees to participate in a protocol, treatment, or other activity by signing an informed consent document

Supplemental Informed Consent and Enrollment General (For all diseases) General (For all diseases)
C20396 Serious adverse event concomitant medications text

The text that describes the concomitant medications taken

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C56400 PROMIS - Smoking social motivation smoke give something to do with hands scale

Scale related to an individual believing smoking gives him/her something to do with her/his hands, as part of the Smoking Social Motivation

Supplemental PROMIS Item Bank v1.0 - Smoking: Social Motivations for Nondaily Smokers General (For all diseases) General (For all diseases)
C55990 PROMIS - Smoking negative health expectancies smoke short of breath scale

Scale related to an individual believing smoking makes him/her short of breath, as part of the PROMIS Smoking Negative Health Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Nondaily Smokers General (For all diseases) General (For all diseases)
C56572 PROMIS - Life Satisfaction life great scale

Scale related to an individual feeling as if his/her life was great in the past 4 weeks, as part of the PROMIS Life Satisfaction

Supplemental PROMIS Pediatric Item Bank v1.0 - Life Satisfaction- Short Form 8a General (For all diseases) General (For all diseases)
C55709 PROMIS - Self Efficacy managing emotions prevent illness from discourage scale

Scale related to an individual being able to prevent his/her illness from making him/her feel discouraged, as part of the PROMIS Self-Efficacy Managing Emotions

Supplemental PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions General (For all diseases) General (For all diseases)
C56310 PROMIS - Smoking negative psychosocial expectancies people respect less because smoke scale

Scale related to an individual believing people he/she cares about respect him/her less because he/she smokes, as part of the PROMIS Smoking Negative Psychosocial Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for Nondaily Smokers General (For all diseases) General (For all diseases)
C20820 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble worry assessment past week scale

The scale which represents how often the participant worried about not being able to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance General (For all diseases) General (For all diseases)
C55404 PROMIS - Positive expectancies people forget problems when drink scale

Scale related to an individual believing people forget their problems when they drink, as part of the PROMIS Positive Expectancies

Supplemental PROMIS Item Bank v1.0 - Alcohol - Positive Expectancies General (For all diseases) General (For all diseases)
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C55842 PROMIS - Smoking emotional and sensory expectancies smoke make less depressed scale

Scale related to an individual believing smoking makes him/her less depressed, as part of the Smoking Emotional and Sensory Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Emotional and Sensory Expectancies for All Smokers General (For all diseases) General (For all diseases)
C21321 Quality of Life - Movement push open heavy door ability scale

The scale which represents the extent to which the participant was able to push open a heavy door, as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C20753 Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Social Activity General (For all diseases) General (For all diseases)
C55625 PROMIS - Emotional Distress depression guilty scale

Scale related to the individual feeling guilty, as part of the PROMIS Emotional Distress Depression

Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Depression (Calibrated Items) General (For all diseases) General (For all diseases)
C12770 Electrophysiology long pre-exercise compound muscle action potential measurement

Compound muscle action potential (CMAP) measurement recorded pre- long exercise

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21141 Quality of Life - Movement full food plate hold ability scale

The scale which represents the extent to which the participant was able to hold a plate full of food, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C55332 PROMIS - Negative consequences inconsiderate when drink scale

Scale related to an individual being inconsiderate when he/she drank, as part of the PROMIS Negative Consequences

Supplemental PROMIS Item Bank v1.0 - Alcohol: Negative Consequences General (For all diseases) General (For all diseases)
C00032 Race USA paternal category

Race(s) the participant/subject's father most closely identifies with

Supplemental Demographics General (For all diseases) General (For all diseases)
C10591 Imaging phase encode direction text

Text description of the phase encode direction used in imaging technique acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
Displaying 1 - 25 of 1696

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.