CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 1696
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C21327 Quality of Life - Movement bed sit lay down difficulty scale

The scale which represents the amount of difficulty the participant currently has in moving from sitting at the side of the bed to lying down on their back, as part of Neuro-QOL Lower Extremity Function.

 Supplemental Neuro-QOL Adult Bank - Lower Extremity Function True General (For all diseases) General (For all diseases)
C18670 Subscribed drug or substance illicitly used other text

The free-text field related to 'Drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts

 Supplemental Behavioral History False General (For all diseases) General (For all diseases)
C56545 PROMIS - Cognitive Function trouble speak fluently scale

Scale related to how often an individual has had trouble speaking fluently in the past 7 days, as part of the PROMIS Cognitive Function

 Supplemental PROMIS Item Bank v2.0 - Cognitive Function False General (For all diseases) General (For all diseases)
C01028 Physical exam condition SNOMED CT code

Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)

 Supplemental Physical Exam False General (For all diseases) General (For all diseases)
C56325 PROMIS - Smoking negative psychosocial expectancies quit smoke friend respect more scale

Scale related to an individual believing if he/she quits smoking his/her friends will respect he/she more, as part of the PROMIS Smoking Negative Psychosocial Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for All Smokers False General (For all diseases) General (For all diseases)
C21109 Visit assessment complete type

Type of assessment completed during visit.

 Supplemental Visit Checklist False General (For all diseases) General (For all diseases)
C55852 PROMIS - Smoking emotional and sensory expectancies like way cigarette feel physically scale

Scale related to an individual liking the way a cigarette makes him/her feel physically, as part of the Smoking Emotional and Sensory Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Emotional and Sensory Expectancies for Daily Smokers False General (For all diseases) General (For all diseases)
C56492 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference work ability scale

Scale related to how much pain interfered with an individual's ability to work (including work at home) in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C55594 PROMIS - Applied Cognition general concerns upset about problem with memory scale

Scale related to an individual being upset about his/her problems with memory, concentration, or making mental mistakes, as part of the PROMIS Applied Cognition General Concerns

 Supplemental PROMIS Item Bank v1.0 - Applied Cognition - General Concerns False General (For all diseases) General (For all diseases)
C56115 PROMIS - Smoking nicotine dependence idea no cigarette cause stress scale

Scale related to an individual feeling that the idea of not having any cigarettes causing him/her stress, as part of the Smoking Nicotine Dependence

 Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Daily Smokers False General (For all diseases) General (For all diseases)
C55298 PROMIS - Alcohol use typical week drink value

Value related to how often an individual in a typical week would drink, as part of the PROMIS Alcohol Use

 Supplemental PROMIS Item Bank v1.0 - Alcohol Use False General (For all diseases) General (For all diseases)
C55754 PROMIS - Smoking coping expectancies tempt to smoke when anxious scale

Scale related to an individual being tempted to smoke when he/she is anxious, as part of the PROMIS Smoking Coping Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Coping Expectancies for Daily Smokers False General (For all diseases) General (For all diseases)
C20713 Patient-Reported Outcome Measurement Information System (PROMIS) - Anger sulk past week scale

The scale which represents how often the participant sulked when angry in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Supplemental PROMIS Item Bank v1.1 - Anger False General (For all diseases) General (For all diseases)
C55524 PROMIS - Applied Cognition abilities follow drive directions scale

Scale related to an individual's ability to follow driving directions being as good as usual, as part of PROMIS Applied Cognition Abilities

 Supplemental PROMIS Item Bank v1.0 - Applied Cognition - Abilities False General (For all diseases) General (For all diseases)
C20771 Patient-Reported Outcome Measurement Information System (PROMIS) - Errand performance ability satisfaction past week scale

The scale which represents how often the participant's satisfaction with his/her ability to run errands in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C54840 PROMIS - Dyspnea severity sing hum scale

Scale related to the individual being able to sing or hum, as part of the PROMIS Dyspnea Severity

 Supplemental PROMIS Item Bank v1.0 - Dyspnea Severity False General (For all diseases) General (For all diseases)
C21167 Quality of Life - Hobby leisure activity limit complete past week scale

The scale representing how often the participant had to limit their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C20686 Patient-Reported Outcome Measure Information System (PROMIS) - standard error value

The value of the Standard Error (a statistical measure of variance that represents the "margin of error" for the T-score) representing the possible range of the actual final score based upon the scaled T-score on the PROMIS form as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Supplemental PROMIS - Scoring False General (For all diseases) General (For all diseases)
C10586 Imaging bandwidth value

Value, in Hertz per pixel, of bandwidth used in imaging acquisition.

 Supplemental Diffusion Tensor Imaging (DTI) False General (For all diseases) General (For all diseases)
C21244 Quality of Life - Satisfaction life purpose recent assessment scale

The scale representing how often the participant felt their life had purpose lately, as part of Neuro-QOL Positive Affect and Well-Being.

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
C56553 PROMIS - Cognitive Function had to work hard to keep track scale

Scale related to how often an individual has had to work harder than usual to keep track of what he/she was doing in the past 7 days, as part of the PROMIS Cognitive Function

 Supplemental PROMIS Item Bank v2.0 - Cognitive Function False General (For all diseases) General (For all diseases)
C04500 ECG atrial arrhythmia type

Type of atrial arrhythmia, if any, apparent on the electrocardiogram (EKG) being reported

 Supplemental Electrocardiogram (ECG) False General (For all diseases) General (For all diseases)
C56356 PROMIS - Smoking negative psychosocial expectancies feel embarrassed when smoke scale

Scale related to an individual feeling embarassed when he/she smokes, as part of the PROMIS Smoking Negative Psychosocial Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for All Smokers False General (For all diseases) General (For all diseases)
C02300 Adverse event study intervention action taken type

Type of action taken for adverse event in relation to study intervention

 Supplemental Adverse Events False General (For all diseases) General (For all diseases)
C55366 PROMIS - Positive consequences felt comfortable around others scale

Scale related to if the individual felt comfortable around others when he/she drank, as part of the PROMIS Positive Consequences

 Supplemental PROMIS Item Bank v1.0 - Alcohol - Positive Consequences False General (For all diseases) General (For all diseases)
Displaying 201 - 225 of 1696

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.