CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

Displaying 176 - 200 of 1696

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C55996	PROMIS - Smoking negative health expectancies smoke cause damage gum teeth scale	Scale related to an individual believing smoking causes damage to his/her gums and teeth, as part of the PROMIS Smoking Negative Health Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for All Smokers	False	General (For all diseases)	General (For all diseases)
C08238	Imaging repetition gap value	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
C54688	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health quality of life scale	Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	General (For all diseases)	General (For all diseases)
C55677	PROMIS - Dyspnea Functional limitations put socks stockings on scale	Scale related to an individual being able to put on socks or stockings, as part of the PROMIS Dyspnea Functional Limitations	Supplemental	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	General (For all diseases)	General (For all diseases)
C18493	Screening visit eligibility status	The status determined from screening criteria that indicates whether a participant/subject may be eligible for a study.	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
C55364	PROMIS - Positive consequences future better when drink scale	Scale related to if the individual felt as if his/her future seemed better when he/she drank, as part of the PROMIS Positive Consequences	Supplemental	PROMIS Item Bank v1.0 - Alcohol - Positive Consequences	False	General (For all diseases)	General (For all diseases)
C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Exam	False	General (For all diseases)	General (For all diseases)
C20839	Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken alert past week scale	The scale which represents how often the participant felt alert when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).	Supplemental	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	General (For all diseases)	General (For all diseases)
C21180	Quality of Life - Work usual abililty complete past week scale	The scale representing how often the participant was able to do all of their usual work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
C20813	Patient-Reported Outcome Measurement Information System (PROMIS) - Awake lousy assessment past week scale	The scale which represents how often the participant felt lousy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	General (For all diseases)	General (For all diseases)
C56460	PROMIS - Pain Behavior when pain use cane for support scale	Scale related to the individual feeling as if when in pain he/she used a cane or something else for support in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
C19561	Biomarker platelet assessment type	Type of biomarker(s) assessed from platelets (high OXPHOS) samples.	Supplemental	Biomarkers in Mitochondrial Disease	False	General (For all diseases)	General (For all diseases)
C21238	Quality of Life - Movement outdoor slippery surface walk difficulty scale	The scale which represents the amount of difficulty the participant currently has in walking on a slippery surface, outdoors, as part of Neuro-QOL Lower Extremity Function.	Supplemental	Neuro-QOL Adult Bank - Lower Extremity Function	True	General (For all diseases)	General (For all diseases)
C56066	PROMIS - Smoking nicotine dependence real gnaw hunger for cigarette scale	Scale related to an individual getting a real gnawing hunger for a cigarette when he/she hasn't smoked in a while, as part of the PROMIS Smoking Nicotine Dependence	Supplemental	PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for All Smokers	False	General (For all diseases)	General (For all diseases)
C01522	Height measurement	Measurement of participant's/subject's height.	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
C55734	PROMIS - Sleep Related Impairment felt alert when awake scale	Scale related to an individual feeling alert when he/she woke up, as part of the PROMIS Sleep Related Impairment	Supplemental	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	General (For all diseases)	General (For all diseases)
C21134	Quality of Life - Movement shampoo hair ability scale	The scale which represents the extent to which the participant was able to shampoo their hair, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity.	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
C56379	PROMIS - Smoking social motivation feel like group when around others scale	Scale related to an individual feeling like part of a group when he/she is around other smokers, as part of the PROMIS Smoking Social Motivation	Supplemental	PROMIS Item Bank v1.0 - Smoking: Social Motivations for Daily Smokers	False	General (For all diseases)	General (For all diseases)
C00706	Alcohol prior use indicator	Indicator of the participant's/subject's alcohol consumption prior to the past 12 months	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
C55431	PROMIS - Anxiety worry overwhelm scale	Scale related to an individual worries overwhelming him/her, as part of the PROMIS Anxiety	Supplemental	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	General (For all diseases)	General (For all diseases)
C21216	Quality of Life - Familiar person name remember difficulty past week scale	The scale representing how often the participant had trouble remembering the name of a familiar person in the past 7 days, as part of Neuro-QOL Cognitive Function.	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
C55991	PROMIS - Smoking negative health expectancies smoke irritate mouth throat scale	Scale related to an individual believing smoking irritates his/her mouth and throat, as part of the PROMIS Smoking Negative Health Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Daily Smokers	False	General (For all diseases)	General (For all diseases)
C10570	Imaging contrast agent used indicator	Indicator as to whether or not an imaging contrast agent was used for the scan.	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
C58680	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale	Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health.	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	General (For all diseases)	General (For all diseases)
C55685	PROMIS - Dyspnea Functional limitations lift something less 5 pound scale	Scale related to an individual being able to lift something weighing less than 5 lbs (about 2 kg, like a houseplant), as part of the PROMIS Dyspnea Functional Limitations	Supplemental	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.