CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 176 - 200 of 1696
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C55996 PROMIS - Smoking negative health expectancies smoke cause damage gum teeth scale

Scale related to an individual believing smoking causes damage to his/her gums and teeth, as part of the PROMIS Smoking Negative Health Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for All Smokers General (For all diseases) General (For all diseases)
C08238 Imaging repetition gap value

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C54688 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health quality of life scale

Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health

Supplemental PROMIS Item Bank v1.2 - Global Health General (For all diseases) General (For all diseases)
C55677 PROMIS - Dyspnea Functional limitations put socks stockings on scale

Scale related to an individual being able to put on socks or stockings, as part of the PROMIS Dyspnea Functional Limitations

Supplemental PROMIS Item Bank v1.0 - Dyspnea Functional Limitations General (For all diseases) General (For all diseases)
C18493 Screening visit eligibility status

The status determined from screening criteria that indicates whether a participant/subject may be eligible for a study.

Supplemental Screening Log General (For all diseases) General (For all diseases)
C55364 PROMIS - Positive consequences future better when drink scale

Scale related to if the individual felt as if his/her future seemed better when he/she drank, as part of the PROMIS Positive Consequences

Supplemental PROMIS Item Bank v1.0 - Alcohol - Positive Consequences General (For all diseases) General (For all diseases)
C01010 Physical exam date and time

Date (and time if applicable and known) physical exam was performed

Supplemental Physical Exam General (For all diseases) General (For all diseases)
C20839 Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken alert past week scale

The scale which represents how often the participant felt alert when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental PROMIS Item Bank v1.0 - Sleep Related Impairment General (For all diseases) General (For all diseases)
C21180 Quality of Life - Work usual abililty complete past week scale

The scale representing how often the participant was able to do all of their usual work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C20813 Patient-Reported Outcome Measurement Information System (PROMIS) - Awake lousy assessment past week scale

The scale which represents how often the participant felt lousy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance General (For all diseases) General (For all diseases)
C56460 PROMIS - Pain Behavior when pain use cane for support scale

Scale related to the individual feeling as if when in pain he/she used a cane or something else for support in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Item Bank v1.1 - Pain Behavior General (For all diseases) General (For all diseases)
C19561 Biomarker platelet assessment type

Type of biomarker(s) assessed from platelets (high OXPHOS) samples.

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C21238 Quality of Life - Movement outdoor slippery surface walk difficulty scale

The scale which represents the amount of difficulty the participant currently has in walking on a slippery surface, outdoors, as part of Neuro-QOL Lower Extremity Function.

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C56066 PROMIS - Smoking nicotine dependence real gnaw hunger for cigarette scale

Scale related to an individual getting a real gnawing hunger for a cigarette when he/she hasn't smoked in a while, as part of the PROMIS Smoking Nicotine Dependence

Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for All Smokers General (For all diseases) General (For all diseases)
C01522 Height measurement

Measurement of participant's/subject's height.

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C55734 PROMIS - Sleep Related Impairment felt alert when awake scale

Scale related to an individual feeling alert when he/she woke up, as part of the PROMIS Sleep Related Impairment

Supplemental PROMIS Item Bank v1.0 - Sleep Related Impairment General (For all diseases) General (For all diseases)
C21134 Quality of Life - Movement shampoo hair ability scale

The scale which represents the extent to which the participant was able to shampoo their hair, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity.

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C56379 PROMIS - Smoking social motivation feel like group when around others scale

Scale related to an individual feeling like part of a group when he/she is around other smokers, as part of the PROMIS Smoking Social Motivation

Supplemental PROMIS Item Bank v1.0 - Smoking: Social Motivations for Daily Smokers General (For all diseases) General (For all diseases)
C00706 Alcohol prior use indicator

Indicator of the participant's/subject's alcohol consumption prior to the past 12 months

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C55431 PROMIS - Anxiety worry overwhelm scale

Scale related to an individual worries overwhelming him/her, as part of the PROMIS Anxiety

Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Anxiety General (For all diseases) General (For all diseases)
C21216 Quality of Life - Familiar person name remember difficulty past week scale

The scale representing how often the participant had trouble remembering the name of a familiar person in the past 7 days, as part of Neuro-QOL Cognitive Function.

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C55991 PROMIS - Smoking negative health expectancies smoke irritate mouth throat scale

Scale related to an individual believing smoking irritates his/her mouth and throat, as part of the PROMIS Smoking Negative Health Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Daily Smokers General (For all diseases) General (For all diseases)
C10570 Imaging contrast agent used indicator

Indicator as to whether or not an imaging contrast agent was used for the scan.

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C58680 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale

Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health.

Supplemental PROMIS Item Bank v1.2 - Global Health General (For all diseases) General (For all diseases)
C55685 PROMIS - Dyspnea Functional limitations lift something less 5 pound scale

Scale related to an individual being able to lift something weighing less than 5 lbs (about 2 kg, like a houseplant), as part of the PROMIS Dyspnea Functional Limitations

Supplemental PROMIS Item Bank v1.0 - Dyspnea Functional Limitations General (For all diseases) General (For all diseases)
Displaying 176 - 200 of 1696

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.