CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
1696 results.
Operations
Selected 21 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C56099 PROMIS - Smoking nicotine dependence frequent crave cigarette scale

Scale related to an individual frequently craving cigarettes, as part of the Smoking Nicotine Dependence

 Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Daily Smokers False General (For all diseases) General (For all diseases)
C55297 PROMIS - Alcohol use spent weekend drink value

Value of how often individual spent a whole weekend drinking, as part of the PROMIS Alcohol Use

 Supplemental PROMIS Item Bank v1.0 - Alcohol Use False General (For all diseases) General (For all diseases)
C55753 PROMIS - Smoking coping expectancies when worry cigarette helpful scale

Scale related to an individual feeling like when he/she is worrying about something, a cigarette is helpful, as part of the PROMIS Smoking Coping Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Coping Expectancies for Daily Smokers False General (For all diseases) General (For all diseases)
C01707 Lab test abnormality significance type

Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject.

 Supplemental Laboratory Tests and Tracking False General (For all diseases) General (For all diseases)
C20712 Patient-Reported Outcome Measurement Information System (PROMIS) - Emotional explosion desire past week scale

The scale which represents how often the participant felt ready to explode in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Supplemental PROMIS Item Bank v1.1 - Anger False General (For all diseases) General (For all diseases)
C55523 PROMIS - Applied Cognition abilities count money scale

Scale related to an individual's ability to count money being as good as usual, as part of PROMIS Applied Cognition Abilities

 Supplemental PROMIS Item Bank v1.0 - Applied Cognition - Abilities False General (For all diseases) General (For all diseases)
C20769 Patient-Reported Outcome Measurement Information System (PROMIS) - Dependability assistance ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to meet the needs of those who depend on him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C54839 PROMIS - Dyspnea severity walk 1 mile no stop scale

Scale related to the individual being able to walk (faster than your usual speed) for at least 1 mile (a little more than 1.5 km) without stopping, as part of the PROMIS Dyspnea Severity

 Supplemental PROMIS Item Bank v1.0 - Dyspnea Severity False General (For all diseases) General (For all diseases)
C02201 Off study intervention prematurely indicator

Indicator that participant/subject discontinued study intervention before planned end of study

 Supplemental Study Discontinuation/Completion False General (For all diseases) General (For all diseases)
C21166 Quality of Life - Regular leisure activity ability complete past week scale

The scale representing how often the participant was able to do all of their regular leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C20685 Patient-Reported Outcome Measure Information System (PROMIS) - Item completed count

The count of items on the PROMIS form completed by the participant, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Supplemental PROMIS - Scoring False General (For all diseases) General (For all diseases)
C21243 Quality of Life - Satisfication general life recent assessment scale

The scale representing how often the participant felt their life was satisfying lately, as part of Neuro-QOL Positive Affect and Well-Being.

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
C56552 PROMIS - Cognitive Function brain was not working as well scale

Scale related to how often an individual has felt it has seemed that his/her brain was not working as well as usual in the past 7 days, as part of the PROMIS Cognitive Function

 Supplemental PROMIS Item Bank v2.0 - Cognitive Function False General (For all diseases) General (For all diseases)
C10588 Imaging echo train length measurement

Measurement of the echo train length used in imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False General (For all diseases) General (For all diseases)
C56355 PROMIS - Smoking negative psychosocial expectancies smoke make respect self less scale

Scale related to an individual believing his/her smoking makes him/her respect him/herself less, as part of the PROMIS Smoking Negative Psychosocial Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for All Smokers False General (For all diseases) General (For all diseases)
C55825 PROMIS - Smoking emotional and sensory expectancies smoke stimulate scale

Scale related to an individual having smoking stimulate him/her, as part of the Smoking Emotional and Sensory Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Emotional and Sensory Expectancies for Nondaily Smokers False General (For all diseases) General (For all diseases)
C56499 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference enjoyment social activity scale

Scale which represents how often the participant felt pain interfered with the enjoyment of social activity over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C17793 Imaging diffusion fourth b value

Value, in square millimeters per second, of the fourth b-value used in diffusion acquisition.

 Supplemental Diffusion Tensor Imaging (DTI) False General (For all diseases) General (For all diseases)
C55601 PROMIS - Emotional Distress depression helpless scale

Scale related to the individual feeling helpless, as part of the PROMIS Emotional Distress Depression

 Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Depression (Calibrated Items) False General (For all diseases) General (For all diseases)
C56139 PROMIS - Smoking nicotine dependence though of never smoke again overwhelm scale

Scale related to an individual believing that the thought of never smoking again is overwhelming, as part of the Smoking Nicotine Dependence

 Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Daily Smokers False General (For all diseases) General (For all diseases)
C00015 Education year count

Number of years of education completed (age 5 and beyond)

 Supplemental-Highly Recommended General Core False General (For all diseases) General (For all diseases)
1696 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.