CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 740
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21211 Quality of Life - Trouble keep track interrupt past week scale

The scale representing how often the participant had trouble keeping track of what they were doing if they were interrupted in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C12697 Electrophysiology motor nerve latency value

The length of time needed for the electrical impulse to travel between the stimulation and recording sites measured during the motor nerve conduction study

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Vital Signs General (For all diseases) General (For all diseases)
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C02222 Off study intervention prematurely reason

Primary reason participant/subject discontinued study intervention before planned end of study

Supplemental Study Discontinuation/Completion General (For all diseases) General (For all diseases)
C17447 Event description text

The free-text field to describe the event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C21317 Quality of Life - Movement sit stand toilet seat scale

The scale which represents the extent to which the participant was able to get on and off the toilet, as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C12746 Electrophysiology fiber density quantitative result value

Fiber density measured for a particular muscle and side

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21137 Quality of Life - Movement dress pullover shirt off difficulty scale

The scale which represents the amount of difficulty the participant currently has in taking off a pullover shirt, as part of Neuro-QOL Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C02498 Imaging scanner software version number text

Free-text field specifying the version number of the imaging scanner software

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C21219 Quality of Life - Thought formation trouble past week scale

The scale representing how often the participant had trouble forming thoughts in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C12705 Electrophysiology sensory nerve velocity measurement

The signal transmission speed measured during the sensory nerve conduction study

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C18767 Temperature measurement other text

The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs General (For all diseases) General (For all diseases)
C02014 Medication prior or concomitant name

Name of the prior/concomitant agent or drug administered

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C20396 Serious adverse event concomitant medications text

The text that describes the concomitant medications taken

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C21325 Quality of Life - Movement armless straight chair stand up difficulty scale

The scale which represents the amount of difficulty the participant currently has in standing up from an armless straight chair (e.g., dining room chair), as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C00003 Postnatal age value

Time elapsed after birth of the participant/subject

Supplemental Medical History General (For all diseases) General (For all diseases)
C12757 Electrophysiology blood pressure response Valsalva phase II late result

The blood pressure response to valsalva maneuver during Phase II late

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21145 Quality of Life - Movement toenail trim ability scale

The scale which represents the extent to which the participant was able to cut their toe nails, as part of Neuro-QOL Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C21227 Quality of Life - Family friend phone understand difficulty scale

The scale which represents the amount of difficulty the participant currently has in understanding family and friends over the phone, as part of Neuro-QOL Communication

Supplemental Neuro-QOL Adult Bank - Communication General (For all diseases) General (For all diseases)
C12714 Electrophysiology blink reflex test contralateral R2 latency value

Duration of contralateral R2 latency in the blink reflex test

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C01028 Physical exam condition SNOMED CT code

Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)

Supplemental Physical Exam General (For all diseases) General (For all diseases)
C04800 Death cause text

Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate

Supplemental Death Report General (For all diseases) General (For all diseases)
C20404 Investigator assessment concurrent disorder specify text

The free-text field to specify the concurrent disorder that might have caused the serious adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
Displaying 151 - 175 of 740

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.