CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 151 - 175 of 1696
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C55588 PROMIS - Applied Cognition general concerns work hard to express scale

Scale related to an individual having to work harder than usual to express him/herself clearly, as part of the PROMIS Applied Cognition General Concerns

Supplemental PROMIS Item Bank v1.0 - Applied Cognition - General Concerns General (For all diseases) General (For all diseases)
C56085 PROMIS - Smoking nicotine dependence urge smoke keep get strong scale

Scale related to an individual's urges to smoke getting stronger if he/she doesn't smoke, as part of the Smoking Nicotine Dependence

Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Daily Smokers General (For all diseases) General (For all diseases)
C55222 PROMIS - Alcohol use drink because physical pain scale

Scale related to an individual drinking because he/she had physical pain, as part of the PROMIS Alcohol Use

Supplemental PROMIS Item Bank v1.0 - Alcohol Use General (For all diseases) General (For all diseases)
C55762 PROMIS - Smoking coping expectancies quit smoke more depressed scale

Scale related to an individual feeling if he/she quit smoking he/she would be more likely to feel depressed, as part of the PROMIS Smoking Coping Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Coping Expectancies for All Smokers General (For all diseases) General (For all diseases)
C20789 Quality of Life - Worry many situation assessment past week scale

The scale which represents how often the many situations made the participant worry in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C20707 Patient-Reported Outcome Measurement Information System (PROMIS) - Envy other people past week scale

The scale which represents how often the participant felt envious of others in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental PROMIS Item Bank v1.1 - Anger General (For all diseases) General (For all diseases)
C55516 PROMIS - Applied Cognition abilities remember things without extra effort scale

Scale related to an individual being able to remember things as easily as usual without extra effort, as part of PROMIS Applied Cognition Abilities

Supplemental PROMIS Item Bank v1.0 - Applied Cognition - Abilities General (For all diseases) General (For all diseases)
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C20756 Patient-Reported Outcome Measurement Information System (PROMIS) - Work important completion ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do the work that is really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C54827 PROMIS - Dyspnea severity get in car scale

Scale related to the individual being able to get in or out of a car, as part of the PROMIS Dyspnea Severity

Supplemental PROMIS Item Bank v1.0 - Dyspnea Severity General (For all diseases) General (For all diseases)
C21161 Quality of Life - Friend satisfy expectation activity ability past week scale

The scale representing how often the participant was able to do all of the activities with friends that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C20831 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stay asleep trouble assessment past week scale

The scale which represents how often the participant had trouble staying asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance General (For all diseases) General (For all diseases)
C02306 Adverse event start date and time

Date (and time, if applicable and known) on which the adverse event was first evident

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems.

Supplemental Physical Exam General (For all diseases) General (For all diseases)
C21329 Quality of Life - Movement flight stair handrail up down difficulty scale

The scale which represents the amount of difficulty the participant currently has in going up and down a flight of stairs inside, using a handrail, as part of Neuro-QOL Lower Extremity Function.

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C02210 Enrolled in study indicator

Indicator of whether the participant/subject was enrolled into the clinical research study.

Supplemental Screening Log General (For all diseases) General (For all diseases)
C56547 PROMIS - Cognitive Function need medical instruction repeat scale

Scale related to how often an individual has needed medical instructions repeated because he/she could not keep them straight in the past 7 days, as part of the PROMIS Cognitive Function

Supplemental PROMIS Item Bank v2.0 - Cognitive Function General (For all diseases) General (For all diseases)
C56333 PROMIS - Smoking negative psychosocial expectancies smoke make feel self less attractive scale

Scale related to an individual feeling like smoking makes him/her feel less attractive, as part of the PROMIS Smoking Negative Psychosocial Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for All Smokers General (For all diseases) General (For all diseases)
C55861 PROMIS - Smoking emotional and sensory expectancies enjoy sensation of long slow exhale scale

Scale related to an individual enjoying the sensations of a long, slow exhalation of smoke, as part of the Smoking Emotional and Sensory Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Emotional and Sensory Expectancies for Daily Smokers General (For all diseases) General (For all diseases)
C56494 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain feel burden scale

Scale related to how much pain felt like a burden to an individual in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.1 - Pain Interference General (For all diseases) General (For all diseases)
C55596 PROMIS - Applied Cognition general concerns problem with memory interfere enjoy scale

Scale related to an individual's problems with memory, concentration, or making mental mistakes having interfered with his/her ability to do think he/she enjoys, as part of the PROMIS Applied Cognition General Concerns

Supplemental PROMIS Item Bank v1.0 - Applied Cognition - General Concerns General (For all diseases) General (For all diseases)
C56119 PROMIS - Smoking nicotine dependence tempt to smoke when happy scale

Scale related to an individual being tempted to smoke when he/she is happy, as part of the PROMIS Smoking Nicotine Dependence

Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Daily Smokers General (For all diseases) General (For all diseases)
C55299 PROMIS - Negative consequences worry when drink scale

Scale related to the individual being worried when he/she drank, as part of the PROMIS Negative Consequences

Supplemental PROMIS Item Bank v1.0 - Alcohol: Negative Consequences General (For all diseases) General (For all diseases)
C55756 PROMIS - Smoking coping expectancies smoke allow to take break scale

Scale related to an individual believing smoking allows him/her to take a break from his/her problems for a few minutes, as part of the PROMIS Smoking Coping Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Coping Expectancies for Daily Smokers General (For all diseases) General (For all diseases)
C20715 Patient-Reported Outcome Measurement Information System (PROMIS) - Anger guilt assessment past week scale

The scale which represents how often the participant felt guilty about his/her anger in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental PROMIS Item Bank v1.1 - Anger General (For all diseases) General (For all diseases)
Displaying 151 - 175 of 1696

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.