CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 101 - 125 of 869

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2050-C21213	C21213	Quality of Life - Task memory trouble past week scale	The scale representing how often the participant had trouble remembering whether they did things they were supposed to do, like taking a medicine or buying something they needed, in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C12699	C12699	Electrophysiology motor nerve amplitude measurement	The measured amplitude of signal response to test stimulation during the motor nerve conduction study	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0009-C02305	C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Adverse Events	False	General (For all diseases)	General (For all diseases)
F0026-C01550	C01550	Temperature measurement anatomic site	Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0003-C02209	C02209	Informed consent obtained indicator	Indicator of whether informed consent was obtained for the participant/subject to participate in the clinical research study	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F2067-C20748	C20748	Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship good ability satisfaction past week scale	The scale which represents the extent to which the participant felt good about his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Social Activity	True	General (For all diseases)	General (For all diseases)
F2053-C21319	C21319	Quality of Life - Movement in out car ability scale	The scale which represents the extent to which the participant was able to get in and out of the car, as part of Neuro-QOL Lower Extremity Function	Supplemental	Neuro-QOL Adult Bank - Lower Extremity Function	True	General (For all diseases)	General (For all diseases)
F0004-C04802	C04802	Death date and time	Date (and time, if known) of participant's/subject's death	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F1062-C12750	C12750	Electrophysiology motor unit number estimation surface motor unit action potential average count	Number of surface motor unit action potentials (sMUAPs) averaged to arrive at the average sMUAP value	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2058-C21139	C21139	Quality of Life - Movement medication open difficulty scale	The scale which represents the amount of difficulty the participant currently has in opening medications or vitamin containers (e.g., childproof containers, small bottles) as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
F1053-C08236	C08236	Imaging scanner software name	Name of the scanner software that runs the imaging camera	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2050-C21221	C21221	Quality of Life - Attention difficulty past week scale	The scale representing how often the participant had to work really hard to pay attention or they would make a mistake in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C12707	C12707	Electrophysiology H-reflex latency left value	The H-reflex duration of latency for the left side of the body	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0009-C22702	C22702	Institutional review board notification indicator	Indicator of whether the Institutional Review Board (IRB) was notified following an adverse event	Supplemental	Adverse Events	False	General (For all diseases)	General (For all diseases)
F0037-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Physical Exam	False	General (For all diseases)	General (For all diseases)
F0003-C18493	C18493	Screening visit eligibility status	The status determined from screening criteria that indicates whether a participant/subject may be eligible for a study	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F2067-C20756	C20756	Patient-Reported Outcome Measurement Information System (PROMIS) - Work important completion ability satisfaction past week scale	The scale which represents the extent of the participant's satisfaction with his/her ability to do the work that is really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Social Activity	True	General (For all diseases)	General (For all diseases)
F2053-C21327	C21327	Quality of Life - Movement bed sit lay down difficulty scale	The scale which represents the amount of difficulty the participant currently has in moving from sitting at the side of the bed to lying down on their back, as part of Neuro-QOL Lower Extremity Function	Supplemental	Neuro-QOL Adult Bank - Lower Extremity Function	True	General (For all diseases)	General (For all diseases)
F0004-C20394	C20394	Serious adverse event end date and time	Date (and time, if applicable and known) on which the serious adverse event discontinued/stopped	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F1062-C12759	C12759	Electrophysiology quantitative sweat function forearm measurement	The amount of sweat collected on the forearm	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2059-C20544	C20544	Quality of Life in Neurological Disorders (Neuro-Qol) - Exhaustion fatigue assessment past week scale	The scale representing how often the participant felt exhausted in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)
F2654-C56508	C56508	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make discourage scale	Scale related to how often pain made an individual feel discouraged in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.1 - Pain Interference	False	General (For all diseases)	General (For all diseases)
F2057-C21299	C21299	Quality of Life - Stigma illness unkind treatment recent assessment scale	The scale representing how often people were unkind to the participant because of their illness lately, as part of Neuro-QOL Stigma	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)
F2049-C20794	C20794	Quality of Life - Calmness difficulty assessment past week scale	The scale which represents how often the participant had difficulty calming down in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	Supplemental	Neuro-QOL Adult Bank - Anxiety	True	General (For all diseases)	General (For all diseases)
F2653-C56468	C56468	PROMIS - Pain Behavior when pain moan whine whimper scale	Scale related to the individual feeling as if when in pain he/she moaned, whined, or whimpered in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.