CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1696
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C20704 Quality of Life - Loneliness assessment past week scale

The scale which represents how often the participant felt lonely in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression.

 Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Depression True General (For all diseases) General (For all diseases)
C18666 Body system other text

The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

 Supplemental Medical History False General (For all diseases) General (For all diseases)
C21261 Quality of Life - Satisfaction close ideal life recent assessment scale

The scale representing how often the participant felt in most ways their life was close to their ideal lately, as part of Neuro-QOL Positive Affect and Well-Being.

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
C19567 Biomarker muscle histology assessment type

Type of biomarker(s) assessed from muscle histology.

 Supplemental Biomarkers in Mitochondrial Disease False General (For all diseases) General (For all diseases)
C56517 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference hard to plan social activities unsure pain scale

Scale related to how often it was hard to plan social activities because an individual didn't know if he/she would be in pain in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C56094 PROMIS - Smoking nicotine dependence go without cigarette hour craving scale

Scale related to an individual believing when he/she go without a cigarette for a few hours, he/she experiences craving, as part of the Smoking Nicotine Dependence

 Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Nondaily Smokers False General (For all diseases) General (For all diseases)
C55322 PROMIS - Negative consequences trouble counting on when drink scale

Scale related to others having trouble counting on an individual when he/she drank, as part of the PROMIS Negative Consequences

 Supplemental PROMIS Item Bank v1.0 - Alcohol: Negative Consequences False General (For all diseases) General (For all diseases)
C55768 PROMIS - Smoking coping expectancies tempt to smoke emotional crisis scale

Scale related to an individual being tempted to smoke when he/she experiences an emotional crisis, as part of the PROMIS Smoking Coping Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Coping Expectancies for Nondaily Smokers False General (For all diseases) General (For all diseases)
C12541 Imaging contrast agent injection time

Time contrast medium was administered

 Supplemental Magnetic Resonance Imaging (MRI) False General (For all diseases) General (For all diseases)
C56477 PROMIS - Pain Behavior when pain clench jaw grit teeth scale

Scale related to the individual feeling as if when in pain he/she clenched his/her jaw or gritted his/her teeth in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Item Bank v1.1 - Pain Behavior False General (For all diseases) General (For all diseases)
C20777 Patient-Reported Outcome Measurement Information System (PROMIS) - Concentration trouble assessment past week scale

The scale which represents how often the participant had trouble paying attention in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Anxiety True General (For all diseases) General (For all diseases)
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions.

 Supplemental Laboratory Tests and Tracking False General (For all diseases) General (For all diseases)
C55579 PROMIS - Applied Cognition general concerns walk in room forget scale

Scale related to an individual walking into a room and forgetting what he/she meant to get or do there, as part of the PROMIS Applied Cognition General Concerns

 Supplemental PROMIS Item Bank v1.0 - Applied Cognition - General Concerns False General (For all diseases) General (For all diseases)
C56058 PROMIS - Smoking nicotine dependence crave cigarette grip of unknown force scale

Scale related to an individual believing that when he./she is really craving a cigarette, it feels like he/she is in the grip of some unknown force that I cannot control, as part of the PROMIS Smoking Nicotine Dependence

 Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Daily Smokers False General (For all diseases) General (For all diseases)
C20816 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale

The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Supplemental Neuro-QOL Adult Bank - Sleep Disturbance True General (For all diseases) General (For all diseases)
C20397 Serious adverse event relevant history text

The text that describes relevant history including pre-existing medical conditions.

 Supplemental Serious Adverse Events False General (For all diseases) General (For all diseases)
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

 Supplemental Social Status False General (For all diseases) General (For all diseases)
C56403 PROMIS - Smoking social motivation smoke make more self confident with others scale

Scale related to an individual believing smoking makes him/her more self-confident with others, as part of the PROMIS Smoking Social Motivation

 Supplemental PROMIS Item Bank v1.0 - Smoking: Social Motivations for Nondaily Smokers False General (For all diseases) General (For all diseases)
C55991 PROMIS - Smoking negative health expectancies smoke irritate mouth throat scale

Scale related to an individual believing smoking irritates his/her mouth and throat, as part of the PROMIS Smoking Negative Health Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Nondaily Smokers False General (For all diseases) General (For all diseases)
C56573 PROMIS - Life Satisfaction enjoy life scale

Scale related to an individual enjoying his/her life in the past 4 weeks, as part of the PROMIS Life Satisfaction

 Supplemental PROMIS Pediatric Item Bank v1.0 - Life Satisfaction- Short Form 8a False General (For all diseases) General (For all diseases)
C55710 PROMIS - Self Efficacy managing emotions avoid feeling helpless scale

Scale related to an individual being able to avoid feeling helpless, as part of the PROMIS Self-Efficacy Managing Emotions

 Supplemental PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions False General (For all diseases) General (For all diseases)
C56313 PROMIS - Smoking negative psychosocial expectancies people think foolish for ignore warning scale

Scale related to an individual believing people thinking he/she is foolish for ignoring the warnings about cigarette smoking, as part of the PROMIS Smoking Negative Psychosocial Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for Nondaily Smokers False General (For all diseases) General (For all diseases)
C20821 Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime worry assessment past week scale

The scale which represents how often the participant felt worried at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True General (For all diseases) General (For all diseases)
C55407 PROMIS - Positive expectancies drinking improve person mood scale

Scale related to an individual believing drinking improves a person's mood, as part of the PROMIS Positive Expectancies

 Supplemental PROMIS Item Bank v1.0 - Alcohol - Positive Expectancies False General (For all diseases) General (For all diseases)
C55848 PROMIS - Smoking emotional and sensory expectancies smoke self satisfy scale

Scale related to an individual smoking because it is self-satisfying, as part of the Smoking Emotional and Sensory Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Emotional and Sensory Expectancies for All Smokers False General (For all diseases) General (For all diseases)
Displaying 101 - 125 of 1696

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.