CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 18 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2055-C20761	C20761	Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance time spent satisfaction past week scale	The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent performing daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F0009-C02302	C02302	Adverse event other action taken type	Type of action taken due to adverse event other than action taken with study intervention/ treatment	Supplemental	Adverse Events	False	General (For all diseases)	General (For all diseases)
F0002-C02205	C02205	Protocol deviation description text	Description of the protocol deviation which includes reasons and contributing factors	Supplemental	Protocol Deviations	False	General (For all diseases)	General (For all diseases)
F1055-C18689	C18689	Imaging anatomic site other text	The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F2052-C20735	C20735	Quality of Life - Nothing interest assessment past week scale	The scale which represents how often the participant felt that nothing was interesting in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F2653-C56461	C56461	PROMIS - Pain Behavior limp because pain scale	Scale related to the individual feeling as if he/she limped because of pain in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
F1062-C12732	C12732	Needle electromyography motor unit action potential duration	The duration of the motor unit action potential during needle electromyography	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F1055-C02498	C02498	Imaging scanner software version number text	Free-text field specifying the version number of the imaging scanner software	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F2055-C21268	C21268	Quality of Life - Household chore satisfaction ability past week scale	The scale which represents the extent to which the participant was satisfied with their ability to do household chores and tasks in the past 7 days, as part of Neuro-QOL Satisfaction with SRA	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F2050-C21205	C21205	Quality of Life - Remember object location difficulty scale	The scale which represents the amount of difficulty the participant currently has in remembering where things were placed or put away (e.g., keys), as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F0004-C20411	C20411	Serious adverse event outcome status other text	Free-text field to specify an alternate outcome attributed to the serious adverse event	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F1062-C10782	C10782	Electrophysiology motor unit number estimation method used type	Type of method or technique used for MUNE (motor unit number estimation)	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0009-C02310	C02310	Adverse event CTCAE low level term name	Text that represents the Common Terminology Criteria for Adverse Events (CTCAE) low level term name for an adverse event	Supplemental	Adverse Events	False	General (For all diseases)	General (For all diseases)
F2054-C21249	C21249	Quality of Life - Satisfaction life many area interest recent assessment scale	The scale representing how often the participant was interested in many areas of their life lately, as part of Neuro-QOL Positive Affect and Well-Being	Supplemental	Neuro-QOL Adult Bank - Positive Affect and Well-Being	True	General (For all diseases)	General (For all diseases)
F0003-C17396	C17396	Sex genotype type	The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F1062-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2052-C21235	C21235	Quality of Life - Depression help need past week scale	The scale representing how often the participant felt like they needeed help for their depression in the past 7 days, as part of Neuro-QOL Depression Adult Bank	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.