CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 801 - 825 of 843

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1062-C12697	C12697	Electrophysiology motor nerve latency value	The length of time needed for the electrical impulse to travel between the stimulation and recording sites measured during the motor nerve conduction study	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0026-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0005-C14123	C14123	Country of residence name	Country where the participant/subject currently lives	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0004-C17447	C17447	Event description text	The free-text field to describe the event	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F2053-C21317	C21317	Quality of Life - Movement sit stand toilet seat scale	The scale which represents the extent to which the participant was able to get on and off the toilet, as part of Neuro-QOL Lower Extremity Function	Supplemental	Neuro-QOL Adult Bank - Lower Extremity Function	True	General (For all diseases)	General (For all diseases)
F2662-C56584	C56584	PROMIS - Pain Behavior protect part of body hurt scale	Scale related to the individual protecting the part of his/her body that hurt in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a	False	General (For all diseases)	General (For all diseases)
F1062-C12746	C12746	Electrophysiology fiber density quantitative result value	Fiber density measured for a particular muscle and side	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2058-C21137	C21137	Quality of Life - Movement dress pullover shirt off difficulty scale	The scale which represents the amount of difficulty the participant currently has in taking off a pullover shirt, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
F1053-C02498	C02498	Imaging scanner software version number text	Free-text field specifying the version number of the imaging scanner software	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2050-C21219	C21219	Quality of Life - Thought formation trouble past week scale	The scale representing how often the participant had trouble forming thoughts in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F0010-C00714	C00714	Behavioral history assessment date and time	Date (and time, if applicable and known) the participant/subject behavioral history was taken	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F1062-C12705	C12705	Electrophysiology sensory nerve velocity measurement	The signal transmission speed measured during the sensory nerve conduction study	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0026-C18767	C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0005-C21124	C21124	Subject email address name	The name of the email address of the subject/participant	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0004-C20396	C20396	Serious adverse event concomitant medications text	The text that describes the concomitant medications taken	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F2053-C21325	C21325	Quality of Life - Movement armless straight chair stand up difficulty scale	The scale which represents the amount of difficulty the participant currently has in standing up from an armless straight chair (e.g., dining room chair), as part of Neuro-QOL Lower Extremity Function	Supplemental	Neuro-QOL Adult Bank - Lower Extremity Function	True	General (For all diseases)	General (For all diseases)
F1062-C12757	C12757	Electrophysiology blood pressure response Valsalva phase II late result	The blood pressure response to valsalva maneuver during Phase II late	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2058-C21145	C21145	Quality of Life - Movement toenail trim ability scale	The scale which represents the extent to which the participant was able to cut their toe nails, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
F1053-C08245	C08245	Imaging slice count	Count representing the total number of single image planes captured during imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2051-C21227	C21227	Quality of Life - Family friend phone understand difficulty scale	The scale which represents the amount of difficulty the participant currently has in understanding family and friends over the phone, as part of Neuro-QOL Communication	Supplemental	Neuro-QOL Adult Bank - Communication	True	General (For all diseases)	General (For all diseases)
F0011-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	General (For all diseases)	General (For all diseases)
F1062-C12714	C12714	Electrophysiology blink reflex test contralateral R2 latency value	Duration of contralateral R2 latency in the blink reflex test	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0037-C01028	C01028	Physical exam condition SNOMED CT code	Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)	Supplemental	Physical Exam	False	General (For all diseases)	General (For all diseases)
F0008-C21114	C21114	Visit post baseline day count	The number of days since baseline visit	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F0004-C20404	C20404	Investigator assessment concurrent disorder specify text	The free-text field to specify the concurrent disorder that might have caused the serious adverse event	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)

Displaying 801 - 825 of 843

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.