F0005-C21117
C21117
Subject name
Name of subject/participant
Supplemental
Participant/Subject Contact Information
False
General (For all diseases)
General (For all diseases)
F2054-C21245
C21245
Quality of Life - Satisfaction life significance recent assessment scale
The scale representing how often the participant felt their life had meaning lately, as part of Neuro-QOL Positive Affect and Well-Being
Supplemental
Neuro-QOL Adult Bank - Positive Affect and Well-Being
True
General (For all diseases)
General (For all diseases)
F1062-C12768
C12768
Electrophysiology short post-exercise compound muscle action potential measurement
The compound muscle action potential (CMAP) values measured at the post-exercise intervals
Supplemental
Electrophysiology
False
General (For all diseases)
General (For all diseases)
F2059-C20560
C20560
Quality of Life in Neurological Disorders (Neuro-Qol) - Sleep need during day past week scale
The scale representing how often the participant needed to sleep during the day in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)
Supplemental
Neuro-QOL Adult Bank - Fatigue
False
General (For all diseases)
General (For all diseases)
F1053-C10589
C10589
Imaging shot count
The number of shots used in the imaging echo-planner acquisition
Supplemental
Diffusion Tensor Imaging (DTI)
False
General (For all diseases)
General (For all diseases)
F2052-C20704
C20704
Quality of Life - Loneliness assessment past week scale
The scale which represents how often the participant felt lonely in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression
Supplemental
Neuro-QOL Adult Bank - Depression
True
General (For all diseases)
General (For all diseases)
F2654-C56502
C56502
Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference irritable pain scale
Scale which represents how irritable the participant felt because of pain in the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
PROMIS Item Bank v1.1 - Pain Interference
False
General (For all diseases)
General (For all diseases)
F1062-C12725
C12725
Electrophysiology repetitive nerve postactivation number
The numeric value given to the amplitude and area values recorded for postactivation during the repetitive nerve stimulation study
Supplemental
Electrophysiology
False
General (For all diseases)
General (For all diseases)
F2057-C21306
C21306
Quality of Life - Stigma illness unfair treatment recent assessment scale
The scale representing how often the participant was treated unfairly by others because of their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F0010-C00719
C00719
Tobacco product used type
Type of tobacco product (e.g., cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject
Supplemental
Behavioral History
False
General (For all diseases)
General (For all diseases)
F0039-C04503
C04503
ECG heart rate
Rate in beats per minute of ventricular contractions recorded in the electrocardiogram (ECG/EKG) being recorded. Also called Heart Rate (HR)
Supplemental
Electrocardiogram (ECG)
False
General (For all diseases)
General (For all diseases)
F2050-C21198
C21198
Quality of Life - Keep track time difficulty scale
The scale which represents the amount of difficulty the participant currently has in keeping track of time (e.g., using a clock), as part of Neuro-QOL Cognitive Function
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
F0006-C18027
C18027
Comment text
Provide any additional information that pertains to the question
Supplemental
Visit Checklist
False
General (For all diseases)
General (For all diseases)
F2059-C20577
C20577
Quality of Life in Neurological Disorders (Neuro-Qol) - Limit social activity physical weakness fatigue asssessment past week scale
The scale representing how often the participant had to limit social activity because of being physically weak in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)
Supplemental
Neuro-QOL Adult Bank - Fatigue
False
General (For all diseases)
General (For all diseases)
F2052-C20736
C20736
Quality of Life - Pessimism assessment past week scale
The scale which represents how often the participant felt pessimistic in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression
Supplemental
Neuro-QOL Adult Bank - Depression
True
General (For all diseases)
General (For all diseases)
F2654-C56510
C56510
Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain avoid social activity because more hurt scale
Scale related to how often an individual avoided social activities because it might make him/her hurt more in the past 7 days, as part of Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
PROMIS Item Bank v1.1 - Pain Interference
False
General (For all diseases)
General (For all diseases)
F1062-C12733
C12733
Needle electromyography motor unit action potential complexity percent value
The complexity of the motor unit action potential measured during needle electromyography
Supplemental
Electrophysiology
False
General (For all diseases)
General (For all diseases)
F2057-C21314
C21314
Quality of Life - Stigma illness new friend avoidance recent assessment scale
The scale representing how often the participant avoided making new friends to avoid telling others about their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F0011-C18679
C18679
Family history medical condition relative type other text
The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant
Supplemental
Family History
False
General (For all diseases)
General (For all diseases)
F2653-C56472
C56472
PROMIS - Pain Behavior when pain walk carefully scale
Scale related to the individual feeling as if when in pain he/she walked carefully in the past 7 days, as part of the PROMIS Pain Behavior
Supplemental
PROMIS Item Bank v1.1 - Pain Behavior
False
General (For all diseases)
General (For all diseases)
F2055-C21279
C21279
Quality of Life - Work people disappointment self-assessment past week scale
The scale which represents the extent to which the participant felt that they were disappointing to other people at work in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21183
C21183
Quality of Life - Work everything ability past week scale
The scale representing how often the participant could do everything for work that they wanted do (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2454-C54688
C54688
Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health quality of life scale
Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health
Supplemental
PROMIS Item Bank v1.2 - Global Health
True
General (For all diseases)
General (For all diseases)
F1055-C10587
C10587
Imaging echo spacing value
Measurement, in milliseconds, of the echo spacing used in diffusion acquisition
Supplemental
Magnetic Resonance Imaging (MRI)
False
General (For all diseases)
General (For all diseases)
F2054-C21260
C21260
Quality of Life - Satisfaction live life fully recent assessment scale
The scale representing how often the participant felt they were living life to the fullest lately, as part of Neuro-QOL Positive Affect and Well-Being
Supplemental
Neuro-QOL Adult Bank - Positive Affect and Well-Being
True
General (For all diseases)
General (For all diseases)