CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 1696
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C56448 PROMIS - Pain Behavior when pain stay still scale

Scale related to the individual feeling as if when he/she was in pain, he/she tried to stay very still in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Item Bank v1.1 - Pain Behavior False General (For all diseases) General (For all diseases)
C12721 Electrophysiology repetitive nerve activation technique type

Indicator of the activation technique used in the repetitive nerve study being recorded

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C20745 Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C20720 Patient-Reported Outcome Measurement Information System (PROMIS) - Stubbornness assessment past week scale

The scale which represents how often the participant was stubborn with others in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Supplemental PROMIS Item Bank v1.1 - Anger False General (For all diseases) General (For all diseases)
C21173 Quality of Life - Social communication maintanence trouble past week scale

The scale representing how often the participant had trouble keeping in touch with others in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C55307 PROMIS - Negative consequences guilty when drink scale

Scale related to the individual feeling guilty when he/she drank, as part of the PROMIS Negative Consequences

 Supplemental PROMIS Item Bank v1.0 - Alcohol: Negative Consequences False General (For all diseases) General (For all diseases)
C21207 Quality of Life - Learn new task difficulty scale

The scale which represents the amount of difficulty the participant currently has in learning new tasks or instructions, as part of Neuro-QOL Cognitive Function.

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
C20743 Patient-Reported Outcome Measurement Information System (PROMIS) - Important community activity ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the community activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Supplemental PROMIS Item Bank v1.0 - Social Activity True General (For all diseases) General (For all diseases)
C56355 PROMIS - Smoking negative psychosocial expectancies smoke make respect self less scale

Scale related to an individual believing his/her smoking makes him/her respect him/herself less, as part of the PROMIS Smoking Negative Psychosocial Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for Nondaily Smokers False General (For all diseases) General (For all diseases)
C00710 Tobacco current use indicator

Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time.

 Supplemental Behavioral History False General (For all diseases) General (For all diseases)
C55861 PROMIS - Smoking emotional and sensory expectancies enjoy sensation of long slow exhale scale

Scale related to an individual enjoying the sensations of a long, slow exhalation of smoke, as part of the Smoking Emotional and Sensory Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Emotional and Sensory Expectancies for Nondaily Smokers False General (For all diseases) General (For all diseases)
C55424 PROMIS - Anxiety avoid public place activity scale

Scale related to an individual avoiding public places or activities, as part of the PROMIS Anxiety

 Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Anxiety True General (For all diseases) General (For all diseases)
C20693 Quality of Life - Other people withdrawal assessment past week scale

The scale which represents how often the participant withdrew from other people in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression.

 Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Depression True General (For all diseases) General (For all diseases)
C19554 Blood specimen lactate pyruvate ratio status

The status as related to lactate/pyruvate ratio level measured from the specimen's blood serum/plasma sample.

 Supplemental Biomarkers in Mitochondrial Disease False General (For all diseases) General (For all diseases)
C55172 PROMIS - Alcohol use drink more than plan scale

Scale related to an individual drinking more than planned, as part of the PROMIS Alcohol Use

 Supplemental PROMIS Item Bank v1.0 - Alcohol Use False General (For all diseases) General (For all diseases)
C20406 Serious adverse events comment text

Provide any additional information that pertains to the adverse event.

 Supplemental Serious Adverse Events False General (For all diseases) General (For all diseases)
C21120 Subject home state province name

The name of the state or province that the subject/participant inhabits.

 Supplemental Participant/Subject Contact Information False General (For all diseases) General (For all diseases)
C55757 PROMIS - Smoking coping expectancies upset with someone cope scale

Scale related to an individual feeling that when he/she is upset with someone, a cigarette helps him/her cope, as part of the PROMIS Smoking Coping Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Coping Expectancies for Nondaily Smokers False General (For all diseases) General (For all diseases)
C20554 Quality of Life in Neurological Disorders (Neuro-Qol) - Limit social activity fatigue assessment past week scale

The scale representing how often the participant had to limit social activity because of being tired in the past 7 days, as part of the Quality of Life in Neurological Disorders(Neuro-Qol).

 Supplemental Neuro-QOL Adult Bank - Fatigue False General (For all diseases) General (For all diseases)
C55365 PROMIS - Positive consequences able to express myself scale

Scale related to if the individual was able to express him/herself better when he/she drank , as part of the PROMIS Positive Consequences

 Supplemental PROMIS Item Bank v1.0 - Alcohol - Positive Consequences False General (For all diseases) General (For all diseases)
C56353 PROMIS - Smoking negative psychosocial expectancies quit smoke more attractive to other scale

Scale related to an individual if he/she quits smoking he/she will be more attractive to others, as part of the PROMIS Smoking Negative Psychosocial Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for All Smokers False General (For all diseases) General (For all diseases)
C56579 PROMIS - Meaning and Purpose know where going life scale

Scale related to an individual knowing where he/she is going in life, as part of the PROMIS Meaning and Purpose

 Supplemental PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a False General (For all diseases) General (For all diseases)
C56013 PROMIS - Smoking negative health expectancies smoke feel weaker scale

Scale related to an individual believing smoking makes him/her feel weaker physically, as part of the PROMIS Smoking Negative Health Expectancies

 Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Nondaily Smokers False General (For all diseases) General (For all diseases)
C21304 Quality of Life - Stigma illness stranger stare recent assessment scale

The scale representing how often strangers tended to stare at the participant because of their illness lately, as part of Neuro-QOL Stigma.

 Supplemental Neuro-QOL Adult Bank - Stigma True General (For all diseases) General (For all diseases)
C12772 Electrophysiology long exercise test post-exercise compound muscle action potential measurement

Compound muscle action potential (CMAP) measurement recorded post- long exercise

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
Displaying 76 - 100 of 1696

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.