C56448
PROMIS - Pain Behavior when pain stay still scale
Scale related to the individual feeling as if when he/she was in pain, he/she tried to stay very still in the past 7 days, as part of the PROMIS Pain Behavior
Supplemental
PROMIS Item Bank v1.1 - Pain Behavior
False
General (For all diseases)
General (For all diseases)
C12721
Electrophysiology repetitive nerve activation technique type
Indicator of the activation technique used in the repetitive nerve study being recorded
Supplemental
Electrophysiology
False
General (For all diseases)
General (For all diseases)
C20745
Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity ability satisfaction past week scale
The scale which represents the extent of the participant's satisfaction with his/her ability to do leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
C20720
Patient-Reported Outcome Measurement Information System (PROMIS) - Stubbornness assessment past week scale
The scale which represents how often the participant was stubborn with others in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
Supplemental
PROMIS Item Bank v1.1 - Anger
False
General (For all diseases)
General (For all diseases)
C21173
Quality of Life - Social communication maintanence trouble past week scale
The scale representing how often the participant had trouble keeping in touch with others in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
C55307
PROMIS - Negative consequences guilty when drink scale
Scale related to the individual feeling guilty when he/she drank, as part of the PROMIS Negative Consequences
Supplemental
PROMIS Item Bank v1.0 - Alcohol: Negative Consequences
False
General (For all diseases)
General (For all diseases)
C21207
Quality of Life - Learn new task difficulty scale
The scale which represents the amount of difficulty the participant currently has in learning new tasks or instructions, as part of Neuro-QOL Cognitive Function.
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
C20743
Patient-Reported Outcome Measurement Information System (PROMIS) - Important community activity ability satisfaction past week scale
The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the community activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
Supplemental
PROMIS Item Bank v1.0 - Social Activity
True
General (For all diseases)
General (For all diseases)
C56355
PROMIS - Smoking negative psychosocial expectancies smoke make respect self less scale
Scale related to an individual believing his/her smoking makes him/her respect him/herself less, as part of the PROMIS Smoking Negative Psychosocial Expectancies
Supplemental
PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for Nondaily Smokers
False
General (For all diseases)
General (For all diseases)
C00710
Tobacco current use indicator
Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time.
Supplemental
Behavioral History
False
General (For all diseases)
General (For all diseases)
C55861
PROMIS - Smoking emotional and sensory expectancies enjoy sensation of long slow exhale scale
Scale related to an individual enjoying the sensations of a long, slow exhalation of smoke, as part of the Smoking Emotional and Sensory Expectancies
Supplemental
PROMIS Item Bank v1.0 - Smoking: Emotional and Sensory Expectancies for Nondaily Smokers
False
General (For all diseases)
General (For all diseases)
C55424
PROMIS - Anxiety avoid public place activity scale
Scale related to an individual avoiding public places or activities, as part of the PROMIS Anxiety
Supplemental
PROMIS Item Bank v1.0 - Emotional Distress - Anxiety
True
General (For all diseases)
General (For all diseases)
C20693
Quality of Life - Other people withdrawal assessment past week scale
The scale which represents how often the participant withdrew from other people in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression.
Supplemental
PROMIS Item Bank v1.0 - Emotional Distress - Depression
True
General (For all diseases)
General (For all diseases)
C19554
Blood specimen lactate pyruvate ratio status
The status as related to lactate/pyruvate ratio level measured from the specimen's blood serum/plasma sample.
Supplemental
Biomarkers in Mitochondrial Disease
False
General (For all diseases)
General (For all diseases)
C55172
PROMIS - Alcohol use drink more than plan scale
Scale related to an individual drinking more than planned, as part of the PROMIS Alcohol Use
Supplemental
PROMIS Item Bank v1.0 - Alcohol Use
False
General (For all diseases)
General (For all diseases)
C20406
Serious adverse events comment text
Provide any additional information that pertains to the adverse event.
Supplemental
Serious Adverse Events
False
General (For all diseases)
General (For all diseases)
C21120
Subject home state province name
The name of the state or province that the subject/participant inhabits.
Supplemental
Participant/Subject Contact Information
False
General (For all diseases)
General (For all diseases)
C55757
PROMIS - Smoking coping expectancies upset with someone cope scale
Scale related to an individual feeling that when he/she is upset with someone, a cigarette helps him/her cope, as part of the PROMIS Smoking Coping Expectancies
Supplemental
PROMIS Item Bank v1.0 - Smoking: Coping Expectancies for Nondaily Smokers
False
General (For all diseases)
General (For all diseases)
C20554
Quality of Life in Neurological Disorders (Neuro-Qol) - Limit social activity fatigue assessment past week scale
The scale representing how often the participant had to limit social activity because of being tired in the past 7 days, as part of the Quality of Life in Neurological Disorders(Neuro-Qol).
Supplemental
Neuro-QOL Adult Bank - Fatigue
False
General (For all diseases)
General (For all diseases)
C55365
PROMIS - Positive consequences able to express myself scale
Scale related to if the individual was able to express him/herself better when he/she drank , as part of the PROMIS Positive Consequences
Supplemental
PROMIS Item Bank v1.0 - Alcohol - Positive Consequences
False
General (For all diseases)
General (For all diseases)
C56353
PROMIS - Smoking negative psychosocial expectancies quit smoke more attractive to other scale
Scale related to an individual if he/she quits smoking he/she will be more attractive to others, as part of the PROMIS Smoking Negative Psychosocial Expectancies
Supplemental
PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for All Smokers
False
General (For all diseases)
General (For all diseases)
C56579
PROMIS - Meaning and Purpose know where going life scale
Scale related to an individual knowing where he/she is going in life, as part of the PROMIS Meaning and Purpose
Supplemental
PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a
False
General (For all diseases)
General (For all diseases)
C56013
PROMIS - Smoking negative health expectancies smoke feel weaker scale
Scale related to an individual believing smoking makes him/her feel weaker physically, as part of the PROMIS Smoking Negative Health Expectancies
Supplemental
PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Nondaily Smokers
False
General (For all diseases)
General (For all diseases)
C21304
Quality of Life - Stigma illness stranger stare recent assessment scale
The scale representing how often strangers tended to stare at the participant because of their illness lately, as part of Neuro-QOL Stigma.
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
C12772
Electrophysiology long exercise test post-exercise compound muscle action potential measurement
Compound muscle action potential (CMAP) measurement recorded post- long exercise
Supplemental
Electrophysiology
False
General (For all diseases)
General (For all diseases)