CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

740 results.
Operations
Selected 15 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21168 Quality of Life - Hobby activity complete past week scale

The scale representing how often the participant was able to do their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C20407 Adverse event reporting identifier name

A name of an authorized group or person reporting the adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C01703 Lab panel category

Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C08238 Imaging repetition gap duration

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental Demographics General (For all diseases) General (For all diseases)
C21272 Quality of Life - Socialize ability friend disappointment self-assessment past week scale

The scale which represents the extent to which the participant felt that their friends were disappointed in their ability to socialize with them in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21176 Quality of Life - Outside home entertainment want satisfication past week scale

The scale representing how often the participant was able to go out for entertainment as much as I want in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C20415 Serious adverse event report completed date

Date when the report on the adverse event was completed

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C01720 Lab test LOINC code

Identifier name given to a test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C10568 Imaging radio frequency coil channel count

Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C21253 Quality of Life - Satisfaction relax recent assessment scale

The scale representing how often the participant was able to be at ease and feel relaxed lately, as part of Neuro-QOL Positive Affect and Well-Being

Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being General (For all diseases) General (For all diseases)
C18871 Needle electromyography spontaneous activity other text

The free-text field related to 'Needle electromyography spontaneous activity type' specifying other text. The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C02002 Medication prior or concomitant use indicator

Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C10683 Imaging T2 weighted spin-echo acquired indicator

Indicator as to whether or not T2-weighted spin-echo data acquired for spatially registering DWI data and performing spatial distortion (B0) correction

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core General (For all diseases) General (For all diseases)
740 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.